awful night with off the scale pain on left wound area which is radiating to top of shoulder down to rib line.
Waiting to hear if they will approve morphine, if not the wife, the cat and the postman are all in for a hard time.
Not sure 6 weeks post should be this bad but as someone said they have sawn me in half and restitched me back so there’s gonna be nerve damage which takes time.
Anyway, i am a whimp and do like a good moan.
Stay safe all of you.
Xxxx
Hoping things do improve soon but it’s bound to take time after such major surgery.
Wishing you well. Xxx
How awful for you. I don't see any reason why they will not give you something to help with the pain. Hope you get some relief soon. Best wishes JJ_7
gabapentin and paracetamol which don’t touch the sides….
I hope that you get some adequate pain relief. Moan away, you are definitely not a wimp.
So sorry that you are in so much pain. Push for morphine. All the best and tell how it progresses. Have a moan it is what we are here for.
Kate xxx
doesn’t help when Liverpool are having such a dismal year…😡😡😡
Liverpool are playing Spurs this weekend. It will be Spurs that will need morphine.
I thought the entire Spurs team were already on sleeping tablets.
Such major surgery involving ribs/nerves as well as all the other bits!….the severity of the pain sounds like it could be nerve type? What a journey, but your on the right track….. rest up x
Ouch, truly sympathise MrB, have you contacted Papworth to make sure it's normal to feel so much pain. Thinking of you and hoping you get some relief asap. P
Oh dear me Mr B what a price you are having to pay for your lovely new lungs. I hope by now they have supplied you with some relief for the sake of you wife, your cat and the postman. 🙏
they’ve dodged it as now back in hospital as the pain was causing breathing problems.
Thank goodness for that! I hope it’s soon got you back on track and comfortable. 👍
I'd ring hospital just to get it checked out,rule out any infection x
back in hospital now, thanks.
👍👍
Good.need looking at xxx
Most definitely not a moan, pain such as your must b hard to bare.
Take notes from a scale 1 to 10 (or whatever figure u decide) as to how u are today and then look back in two or three weeks time to see how things have improved.
You were very courageous to have the operation in the first place, so give yourself (not a clap on the back 🤣😂) but 5 stars.
Best wishes Bernardine.
Thinking of you.Do hope that the hospital get on top of your pain.
We are all cheering you on -and remember you are quite entitled to have a good old moan.
You're very brave! Keep smiling. Hope you get decent pain relief asap! 🤞
Sod the postman. When I get toothache I have a special scale to tell the dentist. O.O01 is unnoticed. 1.445 is a nuisance. 2. 345 is the beginnings of pain and 3.750 is pain. So a 6 or a 7 is head banging. I'm going to award you 8.890. Anything more is unthinkable. I think you should be awarded the George Cross but not to be pinned to your body. That would be a 9.
MrBojangles, I will never forget your humour through adversity. That is another level indeed.
I'm so truly sorry you are in so much pain, however, I'm sure it'll all be worth it in the end. Take care, I hope they get the pain under control for you pretty soon 🙏 🤞xx
I hope your pain is now under control now you are back in hospital. Get better soon
Thinking of you and I hope they will give you some pain relief
I hope you get better real soon!
Hope the hospital is able to relieve your pain
Hope you had a better night, Mr B, a lot of people are rooting for you. 👍
I'm a double lung recipient, and I was cut straight down the middle so not the same as you, however I didn't have pain like you mention 6 weeks post. Speak to your team and just make sure there is no infection. Best wishes.
I do hope the pain is under control now Mr B and you have a better day.
Blue lighted into hospital yesterday on the orders of my transplant team due to off the scale pain during the night.
They feared infection et all .
Given loads of morphine and thankfully following blood tests and scans no signs of anything sinister.
Back home now with Gabapentin and co codimol which is kicking in and pain is now manageable.
As someone once told me when you have transplant you are swapping one health problem with another given i will be at high risk forever now and on a strict drug regime for life.
Hey ho, we all love a challenge!
😜😜😜😜
We are all following you - ups and downs. Evenings and mornings.
I'm glad yr sorted and infection ruled out.dont hesitate to call the team again,if u need them x
well done Mr B, home already! So glad you are managing the pain. Your positive attitudes does you credit.xxx
Sounds horrendous, hope the new pain meds are giving you some relief. You take care x
You've just cheered everyone up on this site because sounds like you haven't lost your sense of humour by mentioning the cat and the postman 🤣🤣🤣🤣🤣🤣 good luck chook. Baby steps
Glad they've given you something more effective and that your'e home again. Take care and hope you'll be feeling much better soon x
You are amazing 🤩 I'm following your progress. Did you get offered lung reduction before transplant?
Thank you..
No reduction ever discussed.
I had IPF and believe the lungs were beyond help and a full transplant was the only treatment.
Stay safe.
👍👍
So pleased they didnt leave you to manage the pain and it is now under control and you are back home a little more comfortable. At least the wife and cat are safe for the moment lol. Keep your chin up Mr B x
What a journey you have been on so far and still you can joke. You have been a brave soldier. I hope the stay in hospital has helped to get your pain levels down. Take care dear friend. X
That sounds dreadful. I hope it will all have been worthwhile in the end. I wish they had got a mechanism for quick pain relief ready before you had the op. You can't be the only one suffering. Very best wishes and fingers crossed that it will start to heal up soon, you very unwimpish person. xxxx
aah bless you I hope you get some relief very soon 🥰
you are entitled to moan mrbojangles (oh how I remember that song). Your wife will understand and the cat will run a mile and you won’t get any post for a while. All the best and it can only get better
Oh Mr Bo you moan here all you like. We will offer sympathy and understanding. Fingers crossed you will improve 🤞🏼 And Liverpool’s performance 😖
I had my Double Lung Transplant in the USA on Nov. 28th. 2020. I also had a small stroke afterwards -- about a week. It took me six months to really start to feel good. The nerve cutting caused issues for over a year; I can still feel the difference.
HOWEVER my life now is great. Some issues with the meds. every now and then, but my life is better than it's been in 30 years ( I'm 68 ! )
Hang in there it gets better. I exercise a lot and feel great!
All the Best,
JCL
Great to hear a positive outcome, thank you!
These strokes are a nuisance, i have 2 recently within 15 months, both following sedation.
Back in hospital next week for another which, I must admit is causing me some concern but hey ho it’s vital I have it done.
Stay safe…
👍👍
You also -- stay well. With hard work and a bit of luck/prayer-- your life will be so much better soon!
JCL
I hope you feel better soon. Sounds like your team are looking after you.
looks like you have a type of "Radiculopathy " referred pain and or pinched nerves, very painful for which I take liquid morphine.. I hope you get some as it should help X
You may well be right….
They pumped the morphine into me in the ambulance which kicked in quickly much to my relief.
The transplant doctors for whatever reason don’t want me on regular morphine i think due to the immune suppression drugs.
They have me on 600mg of Gabapentin and 4 hour co-codomol which i must say is easing the pain.
Hopefully it is just the nerves playing around and won’t be long term.
Thanks…
👍
"600mg of Gabapentin and 4 hour co-codomol" - I have gabapentin also, just 300mg - I had to have Morphine as others did not work anymore.
Codeine is from the poppy plant same as morphine and is a decent pain killer,
If codeine does work for ,better for you than morphine.
can i ask what you are suffering from?
Yes: COPD/Cancer/Heart Problems and OA Cervical Degeneration which has caused problems with shoulder and pain radiated down arm.. I used to take "Dihydrocodeine" but as the neck/shoulder arms problems progressed, that's when I got Morphine..
Sounds a lot but I get by.
I can take 5-10 mg liquid morphine every 4 to 6 hours if needed - I take twice a day and three a day if needed.
I chose to keep on 'Dihydrocodeine' at night - 30 mg Dihydrocodeine = 30mg Codeine - Co-codamol as you know has it's own paracetamol. Morphine or Dihydrocodeine does not.
To go to your thread-start post, I don't think you are a "whimp" who has a ' transplant.' is brave,
wow….!
You’ve been through the wars.
I can relate to your pain as i had 8 titanium rods fitted in my lower back in 2009 and to this day if i make a wrong move they punish me.
Stay safe…
👍👍👍
I'm sorry you have so much pain. I hope they quickly give you something for the pain.
I am so sorry to read this Mr. Bojangles but not surprised. The pain is bad and mine was quite uncomfortable for almost a year. I found gentle stretches helped. I'd imagine because part of the ribs are removed and replaced during the operation that REALLY makes things much more painful. Now almost four years later I still have rib and scar tissue pain especially on cold and rainy days. I am so glad your team are taking your pain seriously and seeing you promptly. Just take it easy and take your time. xx 💐
I really feel for you Mr B. Hopefully they’ll prescribe morphine and that’ll do the trick!
Me and morphine fell out years ago…
Severe sickness and unbearable itching on torso and legs.
Weird!
transplant with no social support?
double lungs transplant 
Removed from Transplant
Heart and double lung transplant 
I feel for you Mr. B! It must be so sore. I hope you get your morphine double quick xx