Hi all
Just a quick update from my last post when I had to cancel my Lung Function test due to a chest infection. I got another appointment for this Friday (16th) but also kept calling in case they had a cancellation & managed to get one for last Wednesday however I started with Covid symptoms last Monday & test confirmed it as positive. I called the hospital to inform them & apologise but they said as I had cancelled 3 times then they would have to discharge me! What? I had only cancelled once due to chest infection which their paperwork asked me to do, then they cancelled this Friday & changed it. I told her so & she said she would speak to her manager & get her to call me. A Manager called me back & she said I would have to attend as this was requested by consultant months ago (not my fault) & I said but I have Covid she said she had spoken with the physiologists who would be doing the tests & they were ok with this as they would be wearing masks. Really? I said look i'm happy to come but surly you wont want me to. She said yes I was to attend. So i've had my tests & now awaiting results & follow up. Is it just me or does this seem crazy? I cant attend with a chest infection but I can attend with Covid It dosnt make sense after all the guidelines etc.
Any thoughts on this?
Daughter’s lung biopsy
Cancer and COVID and COPD.
Post Covid/Long Covid with Bronchiectasis
Covid testing PCR or LFT tests
Aspergillosis and Hyperinflated lungs. 
The first lines of your post really pleased me because I’d been wondering about you, knowing how upset you were at the delay. But then I read on… can’t believe it to be honest! Apart from anything else, how useful will the tests be, given your lungs won’t be at their best if you’ve got covid? And why are they so casual about exposing other lung patients to someone they know has tested positive? It’s madness!
I’ve fallen foul of that nonsense about rearranging appointments too, at my local hospital. They seem to be actively looking for reasons to cross people off the list! And they frequently postpone them 2 or even 3 times, for months at a time, but patients who did that would rapidly be referred back to their gp 😠 But guess what, in over 20 years the Brompton has NEVER, not once, either cancelled, changed the time, or made any difficulties whatsoever about my appointments!
Bless you thanks for answering. Like you I can’t believe they actually told me to attend. There was no one else (patients) there the whole time I was there but still it’s madness. I really can’t get my head round it tbh. Believe it or not I think I did well. Much better than I would have managed with the chest infection. The Doxycycline cleared that up & I’ve been less breathless since.
I’ve had the same regarding cancellations at Orthopaedics. I’ve been on their waiting list for 5 years for toe surgery. I was on Rituximab at the time ( I have RA) & they kept sending appointments for 2 weeks after infusions even though I had given them my infusion dates. It continued for 2 years like this. Then I was diagnosed with Epilepsy so had to start all over again. I’ve had so many pre op assessments I’ve lost count. Anyway I so pleased you are getting looked after at your hospital. It sounds amazing. X
5 years?! Beyond belief. It just needs one person with the wit & motivation to look at your particular circumstances, input the right information, and get you a date that works around your mab. Imagine the money it’s costed in wasted admin hours!
Yes the Brompton is an amazing hospital but my local, which I need for emergencies & non lung stuff, is as bad as any other district general.
I know 2 years plus are because of Covid so what can you do. They got me in last August for pre op & said they would have me in for surgery after my holidays in September. So basically October 21. Heard nothing till October this year when hubby says it’s waiting lists on the phone so I got a pen & & paper to be told we’re just ringing to say we havnt forgotten about you. We will have you in before Xmas. Then about 3 weeks ago had another call to say the same & hopefully it would be January. 🤷🏻♀️ Who knows 🤷🏻♀️ Tbh I’ve got a broken pin in another toe on the other foot which is giving me more bother than the one they are going to operate on. Let’s see what the new year brings. Take care & hope you have a good Xmas x
Omg you really couldnt make it up could you. Its really shocking the way the nhs is running now. I do hope you get sorted soon x
Thanks. Its just goes against everything we've been told to do for the last 3 years! x