To say I'm gutted is an understatement. After waiting sooo long for some answers I've had to cancel my appointment next week for a Full Lung Function Test & 6 minute walk test (never had this before) as I have a chest infection & currently taking Doxycycline. When I called the hospital they said they don't know when they will be able to fit me in again so just have to wait.
Some of you may remember I was diagnosed with lung nodules in 2017 & monitored for 3 years with CT's then the last CT in 2020 showed mild Bronchiectasis. As lockdown then happened I have not yet been seen but was prescribed Carbocystine after my GP contacted them about the amount of stuff I was coughing up. I've had a few phone calls during lockdown & the various consultants have said no I don't have Bronchiectasis as I dot have symptoms ? Yes I do then they said yes you do have it but its mild so we will discharge you to GP care. This has gone on till last year when I had Covid then a nasty infection last November since then I've been breathless. My Rhuematologist did a full body CT in July before referring me to the long Covid clinic which showed Atelectasis in both lungs which is why my Respiratory consultant has asked for new Lung function tests. (abbreviated version)
So now more waiting for answers. My hubby has been telling me for weeks he thought I had a chest infection but I didn't have a temperature so didn't agree. I actually now think he's been right all along. Feeling annoyed & sorry for myself & just needed to rant.
Lung transplant clinic appointment 
institual lung disease
Hi All, New here... Restrictive Lung issue?
Intense, short term pain in lungs on breathing in with Bronchiectasis
Lung cysts and nodules
So sorry to hear that hope you are better soon. I hope you won't have to wait to long for another appointment. Have a lovely day and take care 😊 Bernadette and Jack 🐕 xxxxxxx 🌻🌻
The problem is that they are unable to carry out any tests whilst your taking antibiotics
That's correct .If you are on antibiotics the test wont be accurate. Have to be off antibiotics and steroids for at least a month before test.xxSheila💕
Thanks. Im not even sure I need the antibiotics. I havnt been seen by GP they just order antibiotics & dont let you through the door if you mention chests. I did a lateral flow test which was negative. So frustrated knowing it will be next year then who knows when for the actual follow up. ☹️ x
I do understand but its just so frustrating after waiting so long.
Thank you. x