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HOME NOW & ATTACHED TO MY OXYGEN TANK

horseygirl_0103 profile image
37 Replies

Hello everyone I would just like to let you all know that I am now home & now Im attached to my oxygen machine in my lounge with any luck it will put an end to these 2 week episodes of lowering of my oxygen levels

On the advice of my specialist at the hospital the company that my mum & dad are loaning it from who is associated with the NHS have set it to 2 litres & told I have to keep it like that

I also have one in my bedroom . I have to establish some sort of a 16 hour routine but what i want to do is always to wear it at night & all night as this is the time when these episodes tend to take place every fortnight during the night /early hours of the next mprning -to ensure I get a whole nights sleep in my own bed without interruption

37 Replies
sassy59 profile image
sassy59

Wishing you well. Xxx❤️

horseygirl_0103 profile image
horseygirl_0103 in reply to sassy59

cheers

Loopylorre profile image
Loopylorre

Good to hear they have eventually sorted something out for you, good luck, wishing you well for the future 🌻😊🌻

horseygirl_0103 profile image
horseygirl_0103 in reply to Loopylorre

cheers - despite their failed attempts to give me a blood tests - my specialist said because of te frequency of these episodes I can have it anyway

Bevvy profile image
Bevvy

Glad to hear you made it home. Hope last nights sleep went ok. It will take time to get used to things but you are definitely on an upward trend.

Izb1 profile image
Izb1

Good that you are now home Horseygirl, I hope things settle down quickly for you and these night time episodes are ended x

horseygirl_0103 profile image
horseygirl_0103 in reply to Izb1

im relieved im home -got an appointment on 14th september for assessent for long term oxygen which im dreading

helenlw7 profile image
helenlw7

it’s good that you’re home and able to sleep in your own bad. I’m sure you’ll soon work out how to get your 16 hours of oxygen in.

horseygirl_0103 profile image
horseygirl_0103 in reply to helenlw7

cheers - i HAVE to wear it when in bed cos thats when these episodes happen

gingermusic profile image
gingermusic

When I was on 16 hours with my oxygen I use to go on it at 4pm and stay on it until 8am the next day. Hope this may help you

horseygirl_0103 profile image
horseygirl_0103 in reply to gingermusic

cheers- yes it will

ghousrider profile image
ghousrider

Hi good morning do you have to collect your oxgyen from hospital your self or do they deliver my ebuliser does not seem to be strong for me now i think this winter going to hit me look after your self ghoust rider

Davegt profile image
Davegt in reply to ghousrider

i think she is on a machine, not oxygen cylinders.

horseygirl_0103 profile image
horseygirl_0103 in reply to Davegt

its a machine

horseygirl_0103 profile image
horseygirl_0103 in reply to ghousrider

it was delivered to my house by a comapny who supply them for nhs -lookslike a suitcase

'

GintyFerguson profile image
GintyFerguson

Good luck . Hope you get good sleeps. The world is always a better place when we sleep well..

horseygirl_0103 profile image
horseygirl_0103 in reply to GintyFerguson

yes - particularly if youre in your own bed instead of an nhs one

Nettynonails profile image
Nettynonails

i am on oxygen for 16 hr prescription. I have my machine going until i go out. So its on all night and when im walking around home. I have 1 machine in hall and along tube to go upstairs. Which is attached to a switch in hall for upstairs or downstairs. They dont ever determine the 16hrs so dont worry about it. Hope that helps

horseygirl_0103 profile image
horseygirl_0103 in reply to Nettynonails

yes im on a 16 hour prescription too

Alberta56 profile image
Alberta56

Best wishes. I hope this works for you. xxx

horseygirl_0103 profile image
horseygirl_0103 in reply to Alberta56

cheers so far so good

Oshgosh profile image
Oshgosh

I’m glad you’re home.

You’ll have to work out your 16 hours to suit your self x

Chalky2 profile image
Chalky2 in reply to Oshgosh

I am on oxygen 16 hrs per day and I used to stay on for the 16hrs and come off it for the remains time. I went for an oxygen check and they asked me how I did the 16 hrs and they said you should never come off it for hours at a time to spread the hours left after being on it all night.

horseygirl_0103 profile image
horseygirl_0103 in reply to Chalky2

ive got an assessment appointment on 14th september i might have a chat about that & take advice

Chalky2 profile image
Chalky2 in reply to horseygirl_0103

let me know what they have to say would really like to know if you don’t mind

horseygirl_0103 profile image
horseygirl_0103 in reply to Chalky2

ok

horseygirl_0103 profile image
horseygirl_0103 in reply to Oshgosh

yes i ahve done

Oshgosh profile image
Oshgosh in reply to horseygirl_0103

hi,how are you getting on with the oxygen x

horseygirl_0103 profile image
horseygirl_0103 in reply to Oshgosh

not bad -it does concern me that i had a letter from my specialist about many other things but said she didnt thing I need it because I was saturating well in hospital & im worried that when I have this blood test in october & it confirms that I might have it taken off me & then the episodes will restart im doing 8 hours on & 8 hours off- Ive not done too well today because ive moved around a lot today indoors & when Ive cooled down & had a rest & waited for my heartbeat to get back to normal I test it & its getting below my base rate which is 88-92 so it keeps going into the 70s- sometimes it goes to 88 which is ok -every time it went low I put myself on my machine quickly -so its up & down really - I cant tell my mum in case she whisks me off to hospital I have to lie to stay home- Im going to ahve to tell the truth when I have an appointment with my specialist & tell her sometimes it goes down -but not tell her it goes down too low - say just 87 or 86 but not mentiion 70s --one morning id got up & it was in the 60s so i put my machine on quick

Caspiana profile image
Caspiana in reply to horseygirl_0103

Hello. 👋🙂

You must be very honest with your doctor about your situation. There are good things and bad things about having too much oxygen and too little oxygen. If you retain oxygen , meaning your lungs are hyperinflated you could retain carbon dioxide and that could be very bad for you. Having too much oxygen will not be helpful. You may need ambulatory oxygen only instead of oxygen all the time since the doctor said you were saturating well in hospital. Did you do a six minute walk test? I think a proper evaluation (all facts included) is necessary. Sorry to butt in. xx 🐕🙋‍♀️

horseygirl_0103 profile image
horseygirl_0103 in reply to Caspiana

I have an appointment to have the gas test i couldnt have last time in my ear. Ive started recording everything on paper in a table -mornings (activity & at rest) without the machine & afternoons the same & them in the evenings activity & at rest with the machine on -uptoth 4th october (because 5th is the appointment ) & when ive scanned it in with 4th recorded they can have a copy of the original

The people in oldham gave me ambulatory oxygen at the request of my specialist

I have to do 8 hours on it (thats at night when the episodes have happened ) & 8 hours off it during the course of the day & when i go out & about I take it with me should I need it -I dont always need to use it because ive had the night time of oxygen but its always best just to have it there should it suddenly go down

Nicholatracy profile image
Nicholatracy

glad you’re home. Stay strong 🇬🇧🐞

horseygirl_0103 profile image
horseygirl_0103 in reply to Nicholatracy

i ll do my best thanks

wishing you well and glad you are back in familiar surroundings 🤞🤞👍🏼

horseygirl_0103 profile image
horseygirl_0103 in reply to

me too thanks

watergazer profile image
watergazer

I wish you wellx

horseygirl_0103 profile image
horseygirl_0103

thanks

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