I have seen respiratory consultants for about 30-35 years since breathing in demolition dust while at work in hospital lab causing a lung abscess and when consultant changed he told me I had bronchiectasis not industrial asthma as originally diagnosed. Since joining this group I realised that it is not typical and as I got worse without any more information I eventually asked for second opinion I had echocardiogram. with this con and later he phoned me to ask if I was on bloodthinners . I had been for 2 years and had told him and asked if the got reports from the local hospital that I had been taken to. Answered of course with sweep o arm to indicate the wide areas accessible !
I was given a new appointment which was cancelled and another w days later and then covid intervened and all appointments cancelled and ceased. Never heard any more . Then I got an appointment at whytheshawe for tests and scans, and 6 months later got a face to face appointment , my first there. So before I went I asked my surgery for any info to take with me to appointment. then I found
the the letter which said I had pulmonary hypertension and said he had not arranged to see me furher. i wasn't told this at all .
The con at whythenshawe is dr baldi and he showed me the scan of lungs and explained it . I had bloods taken and there are further tests to be done
I do have atypical bronchiectasis and over the last 2 years my breathing has deteriorated a lot and I can help but wonder if I should have been treated any differently . but I do need more info to understand and be aware. i need to learn more
sorry it is such a long story
Incidentally I was phoned by first hospital who were going through all their listed patients to catch up . so I have an appointment to see first con on may 16 th ,. Difficult ? I know it was covid causing this delay but .......
i shall ask him to send me a report in future well as to surgery.