Vulval biopsy VIN III results

[KTSt]

Vulval "high grade chages/ VIN III"

I received the above results form some biopsies taken in August and have an appt for repeat vulvoscopy in two weeks.

I am so fed up with this, I was first treated (surgery/ laser treatment under general anaesthetic) for cervical changes approx 23 years ago. Since then I have had regular cervical, vaginal and now vulval changes requiring surgery- I've lost count how many times now.

This is the second time I've had stage 3 vulval changes and was operated on this about 6 years ago. I've also had a small basal cell carcinoma removed from my vulva about 2 or 3 years ago.

I'm resigned to it, I am being kept an eye on so figure it will be OK... but I'm just so fed up with this ongoing reoccurring problem. I've never had any idea why it keeps happening and it's so hard to talk about... cervical cancer seems a bit more acceptable, but I can't even share this with those closest to me, when asked is it cervical i either say yes, or that it's a related problem! It's one thing to have pre-cancerous/ cancer of the cervix, it's personal but it's hidden, but to have cancerous changes to my vulva, that's visible and is such a part of my sexuality is just so hard to deal with. i feel embarrassed, ashamed and angry about it and have no-one I can talk to about this!

[AskEveTeam]

Hi there,

We're so sorry to hear that you're having to go through this. You're certainly not alone in feeling like this about vulval cancer/skin conditions - it's an intimate yet exposed part of the body and continuous issues can really make you feel low.

It's really frustrating that in general not many people talk about vulval problems, isn't it? Hopefully other ladies with a similar experience will see your post on here, and offer some personal advice and support. Would you like us to share your message on our Facebook page? We can keep it anonymous and just say that we have had this message from a lady looking to speak to people who have gone through a similar experience, and if people would like to comment on the post with any advice?

If you'd like to let us know, do email us on [e-mail]

Best Wishes,

The Ask Eve Team x

[KTSt in reply to AskEveTeam]

I saw the consultant last Tuesday, he initially said they try and avoid surgery and would probably continue to monitor... senior consultant came in and said I’d need surgery as it was ‘serious pre cancerous changes”