I have endometriosis, 8 months ago I was heavily bleeding and was referred to a gynaecologist.
They did a hysteroscopy and diagnosed me with complex hyperplasia without atypia. They said the best treatment for this would be the marina coil, so they put it in.
They said I had a lot of scarring and my womb and bladder were stuck together, however it was so bad the doctor couldn’t separate it. They referred me to Professor Ahmed Who specialices in this, 6 months later he did another hysteroscopy, he told me he was confident the coil would have worked, however when I came round from theatre he told me my womb lining was still very thick and everything was stuck together so bad, they had to do this by feel rather than see? I also had a big blood clot removed. They took the coil out and put a new one in.
I am now awaiting another lot of biopsy results, however, what is likely to happen? He did the second hysteroscopy in the hope my womb lining would be thinner and I would be able to avoid a hysterectomy.
Now that has not been the case, I am worried about having a hysterectomy because my bladder and womb are attached. I am under a professor for urology as I have kidney disease , my gynaecologist professor said if they do the hysterectomy it will have to be done with both teams present.
Sorry for the long post, but I am worried I don’t know what will happen next.
Has anyone had the coil fail? Any advice? Attached is a report from my last op.