Vulva cancer

[clareB43]

Hi, just joined and looking for others with/had Vulva cancer, especially if now have lymphedema

[Julia-25]

Hi Clare,I have.

Diagnosed 2013 with stage 2,had PV and Lymphodenectomy followed by Radiotherapy was lucky enough to be referred to Lymphoedema Clinic to ask for advice on how to prevent Lymphoedema. Only have mild Lymphoedema and I manage it very well with class 1 tights.

There is a Lymphoedema group on here that is linked to the LSN. I recognise your name from the Macmillan Vulva Group.

Hope this helps.

[clareB43 in reply to Julia-25]

Hi Julia,

Thanks for replying.

I have been referred but appt will be at least 3 months. Was told to get support tights myself meanwhile. Not sure what to get and where from. Mine is mild as well, the top of my left leg is swollen.

Yes the Macmillan group has been great.