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Anxiety Support
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24/7 anxiety Update.

So I've still been struggling with this feeling off constant false motion each and every day.

And I came across this video on YouTube that perfectly described how I feel.

It's something called Persistent postural-perceptual dizziness (PPPD).

I feel a constant swaying all the time.

I also think I have a hyperstimulated nervous system because I'm always in a state of worry and anxiety.

Do you think this could possibly be what I'm suffering with?

The GP is so quick to say it's plain anxiety and low BP without actually going into what TYPE of anxiety.

The doctors also keep going off a blood test I had August last year and saying it's fine.

Surely they'd need to do another one more recently? Or do the old ones still be valid?

Any Opnions on the subject would be great so I can put my mind at rest.

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Hi Lucy I would request full bloods as you should have them done every 6months as things change. There is BPPV (vertigo) and what you have said PPPD (type of vertigo) I found going to a physio has helped mine a lot.

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What you need to know for sure, Lucyjane2305, is whether the unsteadiness is due to anxiety (which is the most likely suspect) or something organic.

If it was me I'd ask my doctor for a tablet thay counteracts the feeling of unsteadiness, I would suggest the best is something called Serc. If the unsteadiness stops then it's an organic thing, something to do with the balancing mechanism in the inner ear.

Then I would ask your doc for a few 5mg diazepam (Valium) and take one when you feel the swaying feeling. If it stops you know it's anxiety for sure.

At least you would then know for sure what it is.

If as you and I suspect it's over sensitised nerves then I recommend the acceptance method as an effective therapy to reduce your levels of fear and the hormones of fear which is what could be keeping your nerves hyper.

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Hi.

I have taken serc before, but it didn't seem to help. This was back last year.

Would trying it again maybe make a difference?

I also have diazepam, and have been told to take it if I'm going out.

I do feel a lot more calm once on it, but I do still feel anxious.

I thought the diazepam may take the anxiety away.

I have had a CT scan that's ruled things out. Also seen an ENT.

I have an appointment with the balance clinic in May. Will they be able to tell me if it's anxiety or a problem in my ear?

Wouldn't the CT scan have showed if there was something wrong with my balance system?

Sorry for all the questions. I just really want to get to the bottom of things.

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That stuff makes me tired & sleepy.

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I suggested trying those two meds for a short period as an experiment to discover whether the dizziness is organic or anxiety based.

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Lucyjane, the fact that the Serc didn't help the unsteadiness would indicate it is anxiety.

You don't say if you noticed less unsteadiness on diazepam, if that reduced it or eliminates it then that says anxiety.

I don't know whether some physical cause for the unsteadiness would show up on a CT scan.

I think you will find out for sure if it's anxiety or organic when you visit the balance clinic. Keep asking them until they give a straight answer.

But all things in your posts considered my money is riding on anxiety.

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Trust your doctor to help you navigate this one.

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Lucyjane, I have anxiety but I had BPPV - displaced crystals in ear canal. Had Epley manouver done a few times, at ENT, which repositioned crystals. I finally managed to access physio with therapists, who specialise in balances problems. I was given exercises to do, purpose of which is to retrain the brain/vestibular system. Physio explained that when the VS is damaged, your balance capabilty drops in function. I was doing well but have had considerable stress over a long period, culminating in the loss of my father in recent weeks. My anxiety level has increased and I feel physical weak, at the moment. This has had a direct effect on my balance. It is a viscious circle, when trying to rehabilitate the vestibular system. Lack of balance, makes us resistant to go out walking (on rough uneven ground) but, in fact, it's good therapy to help retrain the brain. Exercises I was given involved standing with feet close together for a period of time, then with eyes closed, repeated standing on a soft surface, graduating to a cushion. Firstly, though, eliminating other causes of your imbalance is starting point.

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Hi.

I'm sorry to hear your anxiety hasn't been too great recently. I really hope these exercises work! Just stick it it through the tough times.

I have been to see an ENT, but they never did any manouvers or anything. I just had to march on the spot and follow his finger with my eyes.

My GP did mention I should try the epley at home though.

I'm just worried I won't perform it properly.

I guess at the balance clinic appointment they can finally tell me if it is bppv or just anxiety.

I'm surprised the ENT consultant wouldn't have picked it up though.

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Hi,

Doesn't surprise me that they didn't check you thoroughly. I waited years to finally be sent to ENT, then I had to ask to be re-referred because they only did the checks, you mentioned. I had a hearing test, too, but nurse did these tests and I didn't see a consultant for weeks. Even after they did the epleys, i still had to 'beg' GP to send me for Vestibular Rehabilitation, which was overseen by a physio at a health centre (apparently only 2 physios in all of Lanarkshire who are specialised in VRT. Can't believe why GPs don't do epleys, it would have saved me a lot of anxiety and time. Yes best done by someone experienced. They have to check if you have Bppv, firstly, i.e. which ear is affected. This done by using first position of Epley to establish if any spinning occurs. They basically turn you head at an angle and put you in a reclining position. I'm under Scottish NHS, by the way. losing the fear helps, knowing you can do something to improve it, helps, too. Reduced fear, reduced anxiety.

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Would bppv make me feel a sense of motion 24/7 though?

I thought it was just when you move your head or get up quickly?

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I think I had a combination of 2 separate problems. Bppv, which was physically resolved but left balance system functioning at perhaps 80%, but the anxiety/stress impacted on my already compromised vestibular system. At times, I felt my feet sinking into the floor. had feeling of being on a boat. I hated tilting my head to the side, I'm still cautious, but physio says it's best to do these movements. I also think that tension in my neck (whole spine, really) has an impact on the balance sensors in the neck region.

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Hi There. I, too have that exact same feeling. It is constant 24/7.

I have seen so many doctors, in the past 5 years, (I am on my 6th year of this constant motion inside of me, it does not go).

It is anxiety. Because, all the doctors and specialists I have seen cannot allll be wrong.

I have paid thousands of rands on this feeling. My hubby and I have been broke the one year out of the 5 paying nurologists, ENTs, for scans, blood tests, specialists in other fields and they have all come up with one single word.

Anxiety.

so now, I just accept it, it took a long time to accept I must tell you and I still have very bad days.

Good luck

Debs

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Hi Lucy Jane: Anything that affects your balance refers to the inner ear. I think my vertigo, swaying, off balance, etc. came on when I dug into my ear with a bobby pin. I dug so deep that I hurt deep in my ear & thought I punctured my ear drum. Do you remember anything with your ear before your episode? This damage to the middle ear can also affect the optic nerve.???

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