Constantly moving/rocking/swaying in my body - Anxiety Support

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Constantly moving/rocking/swaying in my body

Debby47 profile image
76 Replies

Hi All. I am at wits end. I seriously want to give up. I have been living with a constant moving/rocking/swaying sensation in my whole body (but its all inside my body.. you cant see it happening from the outside). All my doctors and therapist say it is anxiety. I cant get better because I do not believe them. Does anyone else have this and is it just anxiety. Thank you.

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Debby47
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76 Replies
Ill_justice profile image
Ill_justice

Yes. I have generalized anxiety disorder and i do have this symptom. It does freak me out because i am afraid of earthquakes and that feeling is usually constant so it spikes my anxiety. After a while i got somewhat used to it so it doesnt affect like it did before but it does get rather annoying. If you feel fine otherwise, then it is definitely anxiety.

Brahmi profile image
Brahmi

Yes I've had this due to anxiety. I also have TMJD, I grind my teeth at night due to stress and anxiety, and that's also one of the symptoms. What are you doing to relax??

Debby47 profile image
Debby47 in reply to Brahmi

nothing yet to relax.. but I am sleeping alot

gem60 profile image
gem60

It is anxiety. Get some help with a counsellor you will never look back .. I've had it all dizzy spells . Constant dizziness feeling the whole room is moving around me . Lights flashing room spinning muscle cramps muscle pain really bad ear ache head ache you name it I've had it. Go on you tube and. Play some mindfulness meditation help heal your mind

My doc got fed up with me after 20 years of this I was sent to a fantastic councillor he helped me through it with meditation

IrishMonkey1992 profile image
IrishMonkey1992 in reply to gem60

Do you no longer have it now you've dealt with the anxiety?

gem60 profile image
gem60 in reply to IrishMonkey1992

Not really I never been to docs for 2. Years I meditate and that helps 100%

IrishMonkey1992 profile image
IrishMonkey1992 in reply to gem60

But you no longer have the rocking/swaying?

msgenevieve profile image
msgenevieve in reply to gem60

Mediation works the exact opposite for people like me.

It triggers and/or intensifies anxiety and rocking persists!

mentalhealthdaily.com/2015/...

ticc1212 profile image
ticc1212 in reply to gem60

Gem60, hi

Did you take any medicine for the dizziness? For the last 5 years, I’ve had dizziness daily. I wake up dizzy and I’m told it is not vertigo. Of course doctors say anxiety. While I suffer with driving anxiety on highways, I stop driving highways and when I’m not driving, I’m still dizzy.

Curtis33 profile image
Curtis33

I also have this but have you asked about vertigo as this could be a possibility

Debby47 profile image
Debby47 in reply to Curtis33

I have had my ears checked by an ENT specialist and they fine.

IrishMonkey1992 profile image
IrishMonkey1992

OMG! I've struggled so hard to find someone with this. I HAVE THIS! Been suffering with it since January 2016.

What started it all off for you? Did something traumatic happen? What other symptoms do you have?

Debby47 profile image
Debby47 in reply to IrishMonkey1992

yes something terrible. my husband had an awful seizure infront of me two years ago. I was fine but then stopped eating, was petrified he was going to have another one so started not sleeping in case he did.. oh my word so many things.. and poof, it just started, and has never stopped.

Debby47 profile image
Debby47 in reply to IrishMonkey1992

I also sometimes nearly pass out but never seem too (thank the Lord) and get very light headed

IrishMonkey1992 profile image
IrishMonkey1992 in reply to Debby47

Awk Debbie - I recognise you. I have you on FB! :)

Dizzykitty profile image
Dizzykitty in reply to IrishMonkey1992

Irish Monkey, did you have something happen to start it? IF not, did you take any antibiotics before the onset of this? In my case that's what the culprit was.

IrishMonkey1992 profile image
IrishMonkey1992 in reply to Dizzykitty

Wow really? Are you still like this after the antibiotics?

Well, I found blood on the toilet and went to hospital and I took a panic attack. That's when the swaying started...

Dizzykitty profile image
Dizzykitty in reply to IrishMonkey1992

Yes, I took Cipro in May, and I have had this and other symptoms. Some people call it "Internal tremors" and I also have dizziness, (which is why I call myself Dizzy Kitty--and other things. It's best to avoid Cipro and other Fluoroquinolones and take an alternative antibiotic if one is needed. Cipro also causes/or worsens anxiety and panic. It's a known side affect, but doctors never seem to warn the patients of the risks with these drugs, unfortunately.

beeza profile image
beeza in reply to IrishMonkey1992

Mine start when I heard my mom and sister was sick. I was really really scared. That's when the swaying started. How are you dealing with it? Is it anxiety?

gem60 profile image
gem60 in reply to IrishMonkey1992

I have suffered all my life with anxiety my phsycologist told me it is only a thought that triggers us off we must remove the thought immediately and stop the cycle it was hard at first but I did it after a few months of mindfulness and meditation. Go on you tube and listen to some

beeza profile image
beeza in reply to IrishMonkey1992

Hi irrish

I thought I was the only one having this. I'm feeling that swaying sensation like if I'm on boat.. It goes away when have a long sleep.. and come back once I wake up ( when I start doing some work at home) I am also having dizziness. It drives me crazy. But the good thing is that when I am around people I don't feel anything... when I go out or hand out with friends or family nothing goes wrong. But once home in quite place I start feeling these sensation.

Aimeeb123 profile image
Aimeeb123

It's such a horrible thing to live with I've Been doing okay past couple of weeks then Saturday around 3ish it hit me shaky blurry eyes extremely tired but I know I'm over coming it as I carried on my day! Usually I'd go an lie down an do nothing I say lie down I have a 2 year old so try to lie down ha you just think surly all these symptoms can't be anxiety it's crazy what it can do too you !

Debby47 profile image
Debby47 in reply to Aimeeb123

I know.. its terrible. Mine will not stop 24/7

Elap0911 profile image
Elap0911

Hello,

I am no doctor by any means, but I have experienced similar issues since my anxiety kicked up about 2 years ago. Do you have any other symptoms related to pain, numbness, limited mobility, etc. in your arms and/or hands? Just asking, because there is a possibility that there's compression in your Cervical section of your spine. I still have this sought of "vertigo" like feeling today. I notice it more when taking anti-anxiety/ depression medications on an empty stomach and drinking caffeine. Also, it occurs mainly in the morning or afternoon. When I was in a hospital program, they constantly asked about sleep and diet. Make sure you eat (even though we aren't hungry often) quality foods 80% of your daily intake. The doctors also suggested limiting caffeine/sugar intake... soda, coffee, tea, chocolate.

Hope you get something out of this and know that your not delusional or alone. Anxiety is the culprit not you. When you get these feelings, say this mantra to yourself.

"This is just effects of anxiety. I am not going to be harmed, nor does it represent who I am. These symptoms I am experiencing will soon pass as they have before."

Dizzykitty profile image
Dizzykitty in reply to Elap0911

I have all of those things, caused by Cipro. Its very common but doctors seem oblivious. If you took a broad spectrum antibiotic prior to the onset of your symptoms, that could be the culprit. Symptoms can be delayed (mine were)and I only had a short course of the pills, but I was unlucky. So, even if you have not taken Cipro or another fluoroquinolone, I would suggest avoiding them in the future as they can make all of this worse, including the anxiety. Anxiety is a known side affect of these drugs. If you did take one, you might check out floxiehope.com, which is there to help those of us affected (like me) :) I wish you luck.

Dizzykitty profile image
Dizzykitty

I've had that kind of thing and internal tremors, and I know that certain Rx drugs can cause that, sometimes delayed. Before this started, did you happen to take any broad spectrum antibiotics, by any chance? How long have you had this symptom by the way? One thing that can't hurt but might help with things like this is taking a magnesium supplement. Magnesium deficiency won't show up in a blood test, but many are deficient and don't know it. I take a magnesium malate supplement along with food, and it's helped some of my strange symptoms, which in my case were caused by taking Cipro for a UTI. My symptoms were delayed so I didn't connect them until later, but Cipro and many other drugs actually leach magnesium from the body. Anyway, I hope this might help some, and I wish you luck.

IrishMonkey1992 profile image
IrishMonkey1992 in reply to Dizzykitty

What does Rx mean?

Dizzykitty profile image
Dizzykitty in reply to IrishMonkey1992

Prescription drugs.

sooperdc profile image
sooperdc

Tension built up I'm your neck and shoulders could be a big culprit. Our anxiety has a way of slowly and silently tightening Our muscles in these areas as a sort of survival response. The nearly fainting is one of the signs. Look into some neck and back stretching for anxiety. Your neck muscles have so much to do with balance and healthy living. Look into it. It has been a difference maker for me, along with talking to a counselor.

C-K-J profile image
C-K-J in reply to sooperdc

Did you have tension In the front of the neck as well? I have been having s lot of tightness and pain infront if my neck lately and it's freaking me out because I don't see others complaining if having it in the front of their necks and under the chin.

sooperdc profile image
sooperdc

Definitely. I work at a computer a lot, and had bad posture. The sternocleidomastoid (SCM) muscle was contracted in the front of my neck. And it was actually causing chest pain too. These muscles connect the back of your head all the way around to your sternum though. They can cause a variety of symptoms, including dizziness and equilibrium issues. Many are related to anxiety tension as well. Check out some here.... I really believe a lot of my off balance feelings are attributed to years of bad posture, anxiety, and texting. Round-earth.com/HeadPainInro.html.

IrishMonkey1992 profile image
IrishMonkey1992 in reply to sooperdc

Are you now cured?

sooperdc profile image
sooperdc

I've been back to work for almost a year, after being out for almost a full year prior to that. Im not back to 100%, but the neck stretching, massage therapy, and counseling have allowed Me to make a comeback. Haven't got rid of the anxiety, but I know better now How to manage it, and decrease its frequency and intensity. Also, bought an expensive feather pillow, and focused very hard on getting a good night's sleep. I don't have exactly what others have, but I hope to let people know there are ways to attack this head on. This is how I've been doing it.

Mloanddb profile image
Mloanddb

For years, ever since I was younger, I would periodically incur episodes where I would have an intense feeling of Deja Vu, usually triggered by something I hear someone say or something I read. And most often I feel like I heard these words spoken in my dreams I have had in the past, but I couldn't remember because you dream in short term memory. But all of a sudden these "memories" of the dream resurface and I get nausea, dizziness and confused. And then as soon as the episode is over (about 30 seconds), I forget all about the dream again and I can't remember any of it....

Now this doesn't happen to me often. At most it happens like twice per year, lasting usually 1 to 3 days. During the days that I am having these episodes it seems to happen roughly 5 - 10 times during the day.

(I'm currently on day 2 of this happening to me)

I don't have seizures, I don't do any drugs. I've been pretty tired the last couple of days, but I have been sleeping alright. No other known medical issues.

Any ideas? I think it might be a supernatural psychic ability that I just can't harness (joking)

I found this on the web, this happens to me also. Can anyone relate to this?

beeza profile image
beeza

Hi debby47

How are you feeling nowadays?

I'm currently having those sensation like rocking swaying like if on boat. I've been to my gp he said to me I have had panic attack. He gave me some medcine but to no vain it didn't stop. I've tried some relaxing method it did help but it comes back when I think about it. I have a dizziness accompany with my motion. It all happens if I am at home alone, when I am around people or going out I feel nothing wrong with me. But once home in a quite place it then starts.

jackf4 profile image
jackf4 in reply to beeza

hi beeza , the same with me i always feel rocking sensation, even while standing i feel like im in the elevator. i also had episodes of panic attaks last month so i think it is because of anxiety.

beeza profile image
beeza in reply to jackf4

Yeah, I think its anxiety . It's all happened when I was told my mom and sister was sick , and the swaying started since then. I can't get rid of this rocking swaying sensation. What about you?

jackf4 profile image
jackf4 in reply to beeza

For me it was started when our company have annual physical exam, when my bp spikes due to stress.i always think i have hypertension,though all my medical test are normal.i think i also developed white coat syndrome.aftr episodes of panic attacks i always feel the rocking/swaying sensation..

beeza profile image
beeza in reply to jackf4

I hope we get well soon. Did you try some relaxing method? I'm actually doing some at home I feel so good after doing it.. I always keep myself busy.. but still if I've nothing to do it comes . I came across a post Facebook on " herbs and home remedies " a post shows how someone can Contributes to anxiety and panic attacks, its a lack of vitamins B6. I was once told in the past that lack of vitamins can contributes to anxiety. I was put on multi vitamins " sargeform " I quite it for a long time, thinking of taking it again.

beeza profile image
beeza in reply to beeza

Sorry " herbs and natural remedies

jackf4 profile image
jackf4 in reply to beeza

Yes the breathing method it helps me to relax, but sometimes u cant relax when u feel the bad sensations cause of anxiety.its really hard to control your thoughts.everytime i think im dizzy then i will feel dizzy..but when im busy i feel good.

noemikahle profile image
noemikahle in reply to beeza

I have the same symptoms and I call it motion sickness at all times. Working in fluorescent lights makes it even worse. I feel like I kind of have to hold onto things at all times. It also makes me nauseous so it sucks. Some days are better than others and exercising seems to help, I am kind of getting used to this feeling and hope it will eventually fade. Let me know if you find anything that helps with this

jackf4 profile image
jackf4 in reply to noemikahle

Same with me, when i went to the grocery there are florescents and the reflections in the floor makes me feel like im on the boat.i hate those annoying sensations

beeza profile image
beeza in reply to noemikahle

Hi.

Try some multivitamins... vitamins B6 is very important maybe we lack of it in our body. I came across a post on facebook yesterday which shows how " low vitamins B6 contributes to anxiety" I was once told by my gp about this.

noemikahle profile image
noemikahle in reply to beeza

Thanks. I am taking a b vitamin complex. I am suspecting my symptoms could either be anxiety, hormonal based or side effects from celexa as well as visual issues I do have new glasses that I am supposed to wear but right now I just can't wear them because it makes me feel even dizzier and throws off my perceptual skills, I am hoping to try it when I start feeling a little bit less off. I may start taking the pill again in a month or so to watch for improvement. I am also not sleeping great so that could contribute. I did decrease my celexa last week, seemed to help being less sedated but the motion sickness feeling is still with me, I am trying not to get depressed or freaked out about these symptoms because it just makes it worse, I tell everyone I feel fine and I almost believe it sometimes, when this motion sickness feeling is not too bad,

noemikahle profile image
noemikahle in reply to beeza

I will go back to taking multivitamins though, because maybe it's another vitamin, who knows!

beeza profile image
beeza in reply to noemikahle

Exactly. I am taking multivitamins. Drinking milk 2 -3 times per day. I eat carrot every morning. Boiled egg. Broccoli. Avocado. I just hope we get better soon.

Debby47 profile image
Debby47 in reply to beeza

Hi There. Well I was eventually so bad I told my doctor I wanted to die. That was about 2 months ago. She went through all my tablets I was on and decided that it was the cipralex making me have that sensation (anti-depressant). So I have been very slowly weaning off the tablet, from 15mgs now down to 10mgs, now I am doing 5mgs one day and 10mgs one day for a month and then completely down to 5mgs. and guess what.. lets just Pray it stays this way, but the swaying is kindof gone, not that severe anymore and only happens when I am laying down now. I am still off balance a bit but the swaying is nearly gone.

noemikahle profile image
noemikahle in reply to Debby47

I wonder if I am getting side effects from celexa. I did decrease from 40 to 30 and I do feel somewhat better but still dizzy but at this point I rather just be dizzy then anxious at all times, Maybe in the future I may decrease or get off celexa but for now I will explore other options first and try to live with the dizziness since some days are better than others,

IrishMonkey1992 profile image
IrishMonkey1992 in reply to Debby47

Hey Debby. Is it still gone? How are you now?

Debby47 profile image
Debby47 in reply to IrishMonkey1992

No still going on. I have been to many more specialists. It's definitely anxiety and menopause.

beeza profile image
beeza

Guys..

I came across a post on facebook " herbs and natural remedies " which shows anxiety can contributes to the lack of vitamins. I was once told by my gp about this in the past now that the post shows something like this I'm very much sure that its lack of something in our body.

beeza profile image
beeza in reply to beeza

On facebook*

Lunamoon2018 profile image
Lunamoon2018

Hi Debby, just came across this forum. I'm wondering after 2 years ,how are you doing ? I deal with the same thing, it's been about 7 yrs or so. Today has been tough, constant swaying , feels like my brain is swishing back and forth ...my heart starts to race I feel anxious. I sometimes get this horrible pressure in my head , horrible headaches . I've had MRIs, bloodwork ,checked for lyme,lupus,I just had an MRI last Nov. I can't look down or up or side to side at times. My neck always in pain. *Always be joyful . Never stop praying. Be thankful in all circumstances for this is God's will for you who belong to Christ Jesus*

1Thessalonians 5:16-18

Debby47 profile image
Debby47 in reply to Lunamoon2018

Hi Lunamoon2018

I am doing okay. Still very frustrated with the swaying, but it is still there.

My doctor says it will never go and that it is anxiety. I hope she is wrong.. but, Yes, I am a believer and what will be, will be.

I am so sorry you are going through the same thing.

Are you on any tablets that could be contributing to your feeling?

Debs

Picker1956 profile image
Picker1956

MdDS for sure

Fjackson profile image
Fjackson

I have the exact same thing. I can’t believe I found someone with the same thing I got. I have been dealing with this for about 3 years now and all they give me for it is medicine for anxiety too.

Funkyfaerie profile image
Funkyfaerie

Check out Christine Yeong on youtube!

in reply to Funkyfaerie

I’ve watched her videos. Explains a lot of what people go through.

Progrickey profile image
Progrickey in reply to

I haven’t been able to find Christene’s videos recently, did she remove them?

Noam123 profile image
Noam123

Hello yeah I’m like this all the time it’s horrible I feel like giving up my self I also get dizzy and feel of balance every time I walk it never gone away

Fjackson profile image
Fjackson

Hi . I have the exact same thing. Did you ever get any help with your condition? I still fill like my body is moving but to look at me no one can see it moving. Hoping that you you got better and could give me so answers.

Debby47 profile image
Debby47 in reply to Fjackson

Nope, no one seems to know what it is. All my doctors say anxiety, so still have the swaying.

Fjackson profile image
Fjackson

Me too been dealing with this for about 3 years now.Since me and you have the exact same thing I would like to stay in contact with you to see how things are going is that ok with you?

Debby47 profile image
Debby47 in reply to Fjackson

that would be wonderful. Do you have an email address

Fjackson profile image
Fjackson in reply to Debby47

Yes my email address is ffjackson.23@gmail.com .Please keep in touch maybe we can help each other out.

Dizzydame profile image
Dizzydame

Hi, I’ve had many rocking, swaying, dizziness & balance issues since I fell & hit my head 2 times. It also brought on anxiety depression and panic attacks, as brain injury symptoms began to hear with therapies I am still left with loss of balance, dizziness & some rocking & swaying again. You do see my body movevthough. Anyway, I’ve just stumbled across MdDS. Rare disease, Mal de Debarquement Syndrome. Look it up & see if any relates to you & bring it up with your specialist, many people are misdiagnosed & told it’s all in your head- it’s anxiety. Believe in yourself & if you’re like me, knowing it’s not all in my head, be vigilant in pursuing a correct diagnosis! Believe in you! Good luck, dizziness is no fun, no one understands till they’ve walked a day in your shoes:( God Bless, stay strong for you

violet7 profile image
violet7

I've been experiencing this for the past few months as well and was starting to suspect something serious. Sometimes I step forward and the floor feels like it's propelling me forward. It makes me tense up and shake. I also deal with pretty bad head/neck tremors - so much so that I need to hold my head in place when working at a computer. This has led me to believe that it has to do with shoulder and neck tension. I constantly have my shoulders raised and tensed, I think in an unconscious effort to stop the neck twitching. Trying to relax my shoulders when I think about it, and I have a deep tissue massage set for next weekend. I am thinking about going to a chiropractor as well to fix any alignment issues. Would love to get rid of this awful feeling. It's a daily (work) experience and is severely impacting my quality of life. Anxiety sucks.

Paulh132 profile image
Paulh132

I have this problem it's annoying let me tell you.. I've had it 2 half years. When I'm on my motorcycle it stops it goes when I'm asleep it's goes but soon as I'm awake then boom I'm rocking if I move my head to fast I have told on I'm rocking back and forward but standing still.. I when doctors and he said ya look fine to me but I wasn't. He blamed vertigo. Yes I do suffer anxiety but I've had that 15 years and this rocking 2 half years. Stress doesn't help but you can't calm down as your rocking so stress levels go up and I've tried loads of stuff. But like I said when I'm on my bike it goes when I walk it goes it's only there when I stop. Deb ya not alone and wish I could give ya me number so we can talk more.

Fjackson profile image
Fjackson

I still have the rocking and swaying. Do you still have it too or did you get rid of it?

Andrew6666 profile image
Andrew6666

I have now after suffering 13yrs, I am house bound because chronic swaying, rocking and lightheadedness and I'm sick of it, its absolutely driving me crazy as I have no life, Dr's just say it's one these thing with panic disorder.I do suffer from lots of physical symptoms but I can suffer these without the attacks or with them.

I just wish there was away to stop them as I don't always anxious with them

Myspace1 profile image
Myspace1

Yes thats what am experiencing now , sometime is like some force is pulling you down and the legs are constantly wobbly scared to even stand up from the fear of falling or losing my balance . hotness inside the whole body , mostly the legs area and hot flashes and severe cold , tingly and all source of weird feeling can even name all . been battling with this over a yr now and everyday is different , pls stay possible and use breathing techniques its helps

Andrew6619 profile image
Andrew6619

I get this 24/7 now, I have suffered with Panic Disorder for 13yrs, but last 3 yrs has been the worse, had to pack up my job because of the lightheadness, rocking sensation, falling sensation, sudden head rushes, I get this 24/7 now and I am house bound with it, its all very scary as these symptoms bring on severe panic attack symptoms which are out the blue all this leaves me with a headache and feeling exhausted and very anxious, My GP and Psychologist have done nothing for me even meds have done nothing. life is grim.

Babe1213 profile image
Babe1213

Hi Debby47 - I understand totally what you are saying, I too have been in that situation. It is a horrible feeling that leave us feeling so unwell, coupled by the medics who do not fully understand, because it means going out of the box. My main line of defence is prayer. But I fully understand that not everyone feels the same. When I get these feelings just as you describe them I usually find myself with a Urinary infection, the symptoms of which are very debilitating, in fact 3 years ago I had 20 (twenty) courses of anti-biotics, back to back, and still couldn't shift the feelings, eventually I had a 'bladder ablution (washed out). Sometimes the feelings are so intense I have to hold on to something stable quickly - I fear I will fall down otherwise. One question I will ask, 'Do you drink enough watery fluids?'When I was first advised to increase my intake, I thought the adviser was being sarcastic however I tried drinking more fluids and in time began to feel better. Another possible cause could be a build up of ear wax - this can happen without you knowing, worth a look at.

The main thing is to try not to worry, try and develop your own way of coping, sit down for a while, then you cant fall down causing harm. Self meditate, warm summers day, beach of green grass, look at the sky, make patterns. Sounds daft, but can work well. Most important is the knowledge that you will have to live with this for a while, but don't let it take over your life. You take that back for your self.

Babe1213 profile image
Babe1213

Have you pursued the possibility of Urinary Tract Infection yet, as I recommended almost a month ago. You don't always get the usual symptoms, i.e. burning sensation, itching, feeling unwell, but those other symptoms you have given are there as well. It may be as simple as having a stick dipped into your urine to find out - isn't that worth a try?

Babe1213 profile image
Babe1213

why is this post still doing the rounds after six years? If it is being re-posted by the original person, can we have an update of todays conditions

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