controlling my anxiety through a difficult time

hi all , not so happy new year ,

my son has a brain injury, right hemiplegia following a stroke as a baby and autism , I have struggled all his life but he is now 20 and has lived in residential care for four years last year was horrendous the transition to adult placement was a constant battle and we thought wed found a great supported living placement , they sounded brilliant and said they could manage his behaviour , even have a specialist behaviour nurse on the staff . I have been living with him for over week , as when he got upset his carers all hid behind a door and his arm got crushed !!!!we have a great team withing social services and even commisioner was on board this week , and has a mental health nurse on board ( though hes just an observer really , i wouldnt let them section him again , but the brain injury unit wouldnt have him eith er to do a specialist assessment . It crazy , they didnt listen to the best way to care for him and it ended like this .

It was all i could do not to just take him home but I know for him its not the best in the long run, I have chronic fatigue and depression and anxiety and had just got a grant for a break HAHA ...

last week was a round of meetings i met so many people providers whilke being told we were to get out of the flat ..we are still here , and have got a new place fingers crossed he moves again ! next Wednesday .....his anxiety is so high and i feel so sorry for him . apparently i am a sandwich carer as care for my mum as well !!!!

well enough of that just wondered if anyone has any spare hugs going

thankyou vIRGINIA

1 Reply

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  • Hello Virginia. Plenty of hugs available :-) It must be really awful for you seeing your own child suffering as well as looking after your mother. I am not surprised your own health is suffering. Your post did not mention any kind of partner - are you having to deal with this all on your own? Is there any way you can have any kind of break for a week or two? I know that will be asking the almost impossible from a parent - but you need to look after your own health too if you are to keep on looking after your son and your mother. Or is there some way your mother an be found a carer through the local council for example? I am just concerned that you are expecting too much of yourself and maybe damaging your own health.

    But at least I can send you lots of hugs and care :-)

    Karl

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