I had so hoped I would get into a UCLA study, where I could have had three months for free. Had also hoped that I could get the FDA-approved form of the drug approved by insurance, but that seems less and less likely.
I'm feeling so bad, and it seemed in some ways a last hope for me, since the meds don't seem to be working. I have the money in my retirement savings, but am really scared at spending around $2600 initially, and then $650 a month for forever. Already spend $480 a month on therapy.
On the other hand, I just don't feel like I can bear this level of pain that much longer. Feel a lot of hopelessness. So I suppose looking at it that way, I may not have any retirement at all if I don't make it through this period. (Don't have enough money to retire anyway, but that's another story).
Any thoughts? What would you do?