I sat for 2 hours before I went into see the doctor. Again he got me mixed up with someone else....
Treatment not working
Hello everyone, I was on Hydroxyurea for a couple of months after my platelets reached 900 and it helped at first but after a while my platel...
Itchy Scalp with Anagrelide
Wonder if anyone is having similar problems.... my scalp is so itchy it keeps me awake at night......
Is it just me, or has this disease taken over my life? Problems since being diagnosed.
Since I was diagnosed in early 2014 so many things have changed for me personally. I never had any health issues prior to having ET....
I would like some advise please
Hello, I have been to see my doctor today. He wants me to think about changing my medication from Hydroxyurea to Anagrelide....
It’s been a long year since I was diagnosed with ET + Jak 2 positive and already fought and battled my way through the side effects of Hydrox...
PegInterferon A or Anagrelide.
Diagnosed 2 years ago and have been on Hydroxycarbamide 1g a day and 75 mg of dispersible aspirin....
Hi, my name is salma 21 years old, recently diagnosed with ET, platelet count 1200000 Negative jak2, CALR , PCR for BCR/ABL Still waiting for...
Circus career over 😄
The new haem wanted to investigate why I had been anaemic for nearly a year despite the iron tablets I'd been on for ages. So on Sunday I had...
Established Diagnosis of Myelofibrosis
Well, after months of not really knowing, my beautiful wife Joyce has a confirmed diagnosis. Her BMB taken 24 days ago quote " shows early ch...
Hydroxyurea or anagrelide
Hi. Long time since my wife was having her ruptured spleen removed in France....
Links to latest research
I thought it would be easier if I grouped all the links I’ve posted into one thread. Imo it’s all encouraging and uplifting....
I recently wrote about the side effects I am having to Hydroxycarbamide and had numerous replies stating they were experiencing the same symp...
Interferon or not???
I have read lots of articles including MPN Voice but I'd appreciate real feedback of peoples experience and management of using Interferon....
newly diagnosed with ET and on anagrelide
recently diagnosed with ET. I am on aspirin....
I take 1gm per day but my platelets are still rising, increased dose is not an option as I am anaemic....
I have had ET for 28 years and am absolutely fed up with it now....
My hubby has a MP disorder and is on Hydroxycarbamide + Anagrelide plus other meds for diabetes....
Because the various drugs on offer have had rather dire effects on me, following a friend's suggestion after reading a newspaper article abou...
I take anagrelide daily to manage platelet count but most of the info I get is from the internet.......
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