Anagrelide and heart issues
Three or four months into taking Anagrelide I developed heart failure symptoms. Has anyone else experienced or heard of this and should the s...
I sat for 2 hours before I went into see the doctor. Again he got me mixed up with someone else....
ET and treatmeant choices
Hi All, Was diagnosed with ET about 10 years ago and platelet count averages around 700 and have been on low dose aspirin ever since. My thou...
My oncologist wants me to start anagrilide ASAP but I’m scared of the side effects I’m 35 with high platelets and doctors still haven’t diagn...
Does anyone taken cough medicines on hydroxy, Anagrelide and aspirin. I am on all 3 meds and my cough is now getting on my nerves....
Treatment not working
Hello everyone, I was on Hydroxyurea for a couple of months after my platelets reached 900 and it helped at first but after a while my platel...
I was on HU for many years and had it stop working. Switched to Anagrelide but having nasty side effects....
Itchy Scalp with Anagrelide
Wonder if anyone is having similar problems.... my scalp is so itchy it keeps me awake at night......
Iron infusion with MF and on Anagrelide and Hydroxy.
Hi all. My lovely wife, has been suffering with an upper GI bleed these past few days....
One year on. and still happy🌞
A whole year has passed since my lovely wife had her operation to remove her ruptured spleen during the night, in France. In the year she has...
PegInterferon A or Anagrelide.
Diagnosed 2 years ago and have been on Hydroxycarbamide 1g a day and 75 mg of dispersible aspirin....
It’s been a long year since I was diagnosed with ET + Jak 2 positive and already fought and battled my way through the side effects of Hydrox...
I recently wrote about the side effects I am having to Hydroxycarbamide and had numerous replies stating they were experiencing the same symp...
Established Diagnosis of Myelofibrosis
Well, after months of not really knowing, my beautiful wife Joyce has a confirmed diagnosis. Her BMB taken 24 days ago quote " shows early ch...
I take anagrelide daily to manage platelet count but most of the info I get is from the internet.......
Circus career over 😄
The new haem wanted to investigate why I had been anaemic for nearly a year despite the iron tablets I'd been on for ages. So on Sunday I had...
Hi. Just wanted to give an update....
Is it just me, or has this disease taken over my life? Problems since being diagnosed.
Since I was diagnosed in early 2014 so many things have changed for me personally. I never had any health issues prior to having ET....
I would like some advise please
Hello, I have been to see my doctor today. He wants me to think about changing my medication from Hydroxyurea to Anagrelide....
Interferon or not???
I have read lots of articles including MPN Voice but I'd appreciate real feedback of peoples experience and management of using Interferon....
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