newly diagnosed with ET and on anagrelide
recently diagnosed with ET. I am on aspirin....
Because the various drugs on offer have had rather dire effects on me, following a friend's suggestion after reading a newspaper article abou...
Fascinating drug comparison table
This has been posted on MPN-Net, not seen it before. Since every specialist seems to have a different viewpoint I’m not sure how reliable it ...
Greetings from Canterbury
Hi only just found this forum, I have had et for 16 years was fine for the first ten on hydrea and aspirin but then blood changed and got qui...
Hi everyone i have been on Anagrelide and Asiprin for 8 weeks, but the last week I have had awful palpitations and a racing heart. Does anyon...
Has anybody had..........?
Has anybody had a bowel cancer screening test come back positive? I sent mine back last week and got a letter today to say it was abnormal an...
which drug is best to treat ET, why cytoreduction treatment is put on hold for low risk patients？
I thought initially I am tolerating anagrelide really well.my platelets counts are also getting low. But all of sudden I am again feeling bra...
ET with CALR+ type 2
Hi Fellows, I am 29 years old and I have been diagnosed recently with ET, CALR+....
Ruxolitinib or Interferon
Hi everyone I have PV diagnosed late last year and since then it's been a bit of a roller coaster of weekly Vx s and different cytoreductive ...
Hello I'm new to this, I was diagnosed last month with ET routine blood test, consultant started me on hydroxyamide unfortunately was only on...
Current care at local hospital
Hi been under my local heomotoligist and feel I'm not getting the care or advise I need. I wrote him a letter asking if I could be seen at Gu...
Hello everyone, just need a bitof reassurance I was taken off Anagrelide 2 weeks ago as it didn't agree with me I had terrible palpitations. ...
Does anyone have any info whether Interferon is contraindicated if you have a history of PE or other thrombolytic event ?
Hi I was diagnosed with Pv in September 2016. My platelets have constantly been rising -They are now 1,300,000 My haematologist commenced me ...
Good blood results
I've been back to the hospital today after having my Anagrelide increased 3 weeks ago. Before Christmas my platelets had gone up to 590 from ...
High Blood Pressure
Hi, I have ET and in the last year have changed from Hydrea to Anagrelide as I was having problems taking Hydrea after taking Anagrelide I di...
I've been on HU for two years and my platelets have never really kept stable for more than 6 weeks and when they were stable my wbc count fel...
Today my haematologist has commenced me on anagrelide 500mcgs twice per day as my platelets are between 850,000 and 1.03 million most of the ...
First Day on Anagrelide!
I've seen the haematologist today, managed to get an appointment a week early after I phoned the specialist nurse and told her about my messy...
Anagrelide and side effects
I have PV diagnosed Nov 2016 and was prescribed anagrelide 2 months ago taking 2 capsules each morning and 1 each evening . My platelets are ...
Pleased to say...
I am waiting for news of whether I can have nerve block injections in my knees, I do need both knees replacing but am scared of the operation...
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