Neurostimulator Medtronic. : Has anyone been... - AMN EASIER

AMN EASIER

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 Neurostimulator Medtronic.

Intensor profile image
9 Replies

Has anyone been offered to implant a Medtronic neurostimulator? This is such a system with electrodes that is connected to the spinal cord and it removes spasticity and neuropathic pain. In my city in many clinics it is successfully installed.

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Intensor profile image
Intensor
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9 Replies
Equinney profile image
Equinney

My brother has one, but his was from a back injury. He was fortunate to not get AMN. He has had good results of relieving back pain from it.

Intensor profile image
Intensor in reply to Equinney

Don't you want to restore your motor function and remove problems with the pelvic organs, if any?

monkeybus profile image
monkeybus

I can see how this alleviates pain, but I cannot find any evidence of it helping spasticity. Do you gave further info?

monmon profile image
monmon

My mum - AMN spasticity + neuropathy - had it implanted for a couple of mouths. Sadly it made no difference, but while she was at the clinic I had the chance to talk to other patients (affected by other sources of back pain and NO neuropathy) and some of them were very happy with the results.

deengo profile image
deengo

I've had one installed for over 4 years now and have been planning to get it removed. I'm not happy with it at all. Maybe some day I'll try a different brand. During the initial 5 day trial phase were it is external versus internal, it was like magic and worked wonders. I was very excited to have it implanted. Once i had the procedure done they could never mimic the same settings. I went through numerous customer service reps and settings on the device but it was never the same as the trial.

One rep unlocked the controls so I could do whatever I wanted with it and I was able to get some relief and still be able to walk.

The next rep said that wasn't allowed and locked some of the settings. Stupid guy!

The only way I can get any pain relief now is if I don't plan on walking or standing because I have to have it turned up so high the electrical signal interferes with my motor skills. I haven't used it at all for over a year now.

I talked to my doctor about it and he said there are better units available now from a different company and was going to go that right but am in the Philippines now. I'll probably have it removed next year.

Good luck I hope it helps you.

3WheelWonder profile image
3WheelWonder in reply to deengo

Fuck man, where does the time go? 👷

deengo profile image
deengo in reply to 3WheelWonder

I know its crazy right. You're still in Florida?

3WheelWonder profile image
3WheelWonder in reply to deengo

Yep

monkeybus profile image
monkeybus

My mum, who plainly has AMN, but refuses to acknowledge it. She even keeps asking me "when I'm going to get better?". To be told at 70-ish that you in fact carry a defective gene is plainly a bit too much to take in for her.

Anyway, like a lot of women with AMN that I have talked to, she has chronic lower back pain.

Almost 10 years on Tramadol, liquid Morphine, and then Oxycodone. Respectable opiates, and no mistake. After that, the NHS finally lumbered into action and delivered her long-promised spinal Radiofrequency Ablation. A minimally invasive procedure that only took 90 minutes. Killed the nerves in her spine that carry the pain signal up to her brain.

spine-health.com/treatment/...

That was two weeks ago. She is now off all painkillers and pain free (she says). I'll have to ring her up and interrogate her on this properly, she has a habit of lying about her health. I suppose at the age of 81, she is terrified of appearing to be a burden on the family.

My poor mum.

Anyway, the ablation seems like a decent option to this stimulator, which looks to me to be an internal version of TENS, that's be PENS

spine-health.com/treatment/...

Radiofrequency Ablation for Back Pain