When I have been writing to you, I have been considering everyone suffers like me. Then it got me thinking, maybe people don;t suffer as badly as me, so what I say is actually wasted on them. Here is a rundown of my problems and I am interested if you are same, worse or better..
Super heavy legs, feet stuck to the floor, walking resembles an inverse moonwalk, no toes left on my shoes. I went from one stick, to two sticks, to two crutches, to wheelchair over 7 years.
Spasms from buttock down, including thigh, knee, calf, and ankle.
Can;t wiggle toes.
Peeing at least 20 times a day if unmedicated.
Pain in feet, knees and buttock. Whole leg really.
Unresponsive legs when sitting or lying down.
Feeling nauseous, never vomit,
Can;t drink alcohol.
Brain fog.
Falling over. Walking on grass or sand is out of the question. Can;t run or jump
There are more, but these are the worst and what come to mind right now.
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LessThanRich
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My worst is Bladder, urodynamics test showed very high pressures killing my kidneys and I was told if I don't catheterise I will need dyalisis but my kidneys are now good! This was 2011, I've been having Botox in my bladder for the past 4 years but only lasts about 6 to 7months and means I can't go normally now!
Neuropathic pain is very bad especially at night and in winter along with muscle spasms in arms and legs these are now eased with Min102
Addison's disease I currently have a throat infection and I'm taking extra steroids
Constipation is bad also
Foot drop causing trips and falls and sometimes legs giving away also can't lift up my legs
Ok, I use catheters and have done for a couple of years.
It sounds like you suffer something very similar to me. on a scale of 1-10 what would you give your walking. I would give myself a 1 without crutches and maybe a 5 if i'm lucky with.
How often do you fall down? Do spasms make you fall over too?
I don;t even wanna talk about pooping, its not something that happens often in my life.
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