I'm pretty sure someone has posted about this before however I came across it again and this article is from 2016. I can't find a lot of information on the results of studies however they're looking further into the use of cobra venom as a treatment.
I have a contact here in Canada that I dealt with years ago who was fighting to get approval from Health Canada to get the IV version approved for a terminally ill MS patient, however was not able to as there was too much red tape. I'm actually picking up a case of the Nyloxin spray which is similar however not as potent as RPI-78M, which Receptopharm is developing- and is actually now administered orally.
it can be bought across the counter in the USA. I had samples in both forms many years ago and I gave them to certain AMN men in Australia and I put a family in Utah onto it for their son with an incurable brain tumour and it worked brilliantly for him. They thought I was some sort of hero but as mentioned it did little for 2 AMN men I know.
The National Hospital in London organised a trial of cobra toxin (Immunokin) about 15 years ago. About 8-10 patients went on it, I was one. I think the drug was provided by Receptopharm from Florida. Anyway, the results did not show any benefit and it was not pursued any further after the trial.
"According to a 2012 study out of the University of Buffalo, a particular protein found in spider venom could work as a treatment for muscular dystrophy — an umbrella term for a number of diseases that cause loss of muscle mass and eventual inability to walk, move, or swallow. The study found that the protein helped stop muscle cells from deteriorating, and though it wasn’t a cure, it assisted in slowing down the progression of the disease."
Vaguely related to our disease.
That site I posted. Chinese medicine, I keep meaning to check out Chinese medicine and see if any of their treatments could help us.
I'm actually working with a Chinese medicine practitioner. He has consulted some experts and they should have some sort a recommendation for me. I will keep you all posted.
A few years ago I was persuaded against my better judgement to go to a Chinese medicine centre in North London (U.K.) - the Asanté Academy of Chinese Medicine. asante-academy.com/
It has a good reputation.
The doctor I saw claimed that he had seen AMN before in China but I couldn't verify that. Based on some of the observations he made about AMN, I had doubts. Anyway, he prescribed some medicines and we also did acupuncture. The treatment lasted several weeks. It wasn't cheap, but I am afraid it had zero effect. So my advice is to save your money.
There is always a Chinatown wherever I go in the world, plenty of "medicine" in the shop windows. But ours is one hell of a disease. I doubt even English-speaking doctors appreciate what I am trying to tell them.
I'd like to see about any generic Chinese treatments for spasticity (if any do exist).
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Bone marrow trans plant is a go!!!
Now I have an overactive bladder?! Oh my! 