Alright, it isn't our disease, but like a lot of stuff I post this is tangentially related.
theguardian.com/science/201...
It all goes to show the power of a high profile acknowledgement. Akin to when Princess Diana held the hand of an AIDS patient. Look a HIV research right now. Billions thrown at that disease.
Off the top of my head, Terri Garr has MS; Roger Daltry, Teenage Cancer Trust; Angelena Jolie, double mastectomy; Mohammed Ali, of course, and Michael J Fox.
You get what I am driving at.
Remember the Ice Bucket Challenge?
youtube.com/watch?v=cgWN3PD...
But read this..
edition.cnn.com/2017/05/25/...
So it isn't guaranteed.
Regardless, who has celebrity friends?