For female carriers with AMN: what are your pai... - AMN EASIER

AMN EASIER
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For female carriers with AMN: what are your pain levels?

COwithAMN
COwithAMNAdministrator
12 Replies
12 Replies
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COwithAMN
COwithAMNAdministrator

2 likes
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COwithAMN
COwithAMNAdministrator

5 likes
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COwithAMN
COwithAMNAdministrator

8 likes
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COwithAMN
COwithAMNAdministrator

5 likes
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COwithAMN
COwithAMNAdministrator

7 likes
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jdw_law

how many women voted so far

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COwithAMN
COwithAMNAdministrator
in reply to jdw_law

Just keep watching the poll!

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tieaknot

Can i also ask, what pain killers do you find work best? We are going to try Lyrica soon. I have used tramadol with great relief (even at the lowest dose) but docs don't seem to want to keep me on it longer term. No one seems to understand when i try the deep, gnawing, vague pain in my back and legs... So frustrating.

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StevenSims
StevenSims
in reply to tieaknot

Hi, when I was first diagnosed I tried lots of pain meds and the best I found was Amitriptyline.

All the best

Steve

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COwithAMN
COwithAMNAdministrator

If you give me a list of the common painkillers you all use, I can set up a separate poll like this one to show which painkillers you find most effective.

2 likes
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Hillary

I recently went to Pain Clinic, found the experience amazing. At present I am taking Co-dydramol 10/500 four times a day with 20mg Amitriptyline at night. This is a months trial although I take the Amitriptyline normally. I also have the recommended books by Neville Shone, Coping successfully with Pain and the Pain management handbook . The Pain clinic also do a ten week course in Cardiff but the next one is not until September. This is not illness related and is more about pain management, with the correct pain medication, gentle excise and a lot more. I am keeping a diary and so far I have only come to one conclusion, that the tablets aren't working, lol

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CherylK

My doctors have offered gabapentin, etc several times, but so far I always turn them. I work in emergency medicine and patient experience has really turned me off of the idea of using any pain medication that isn't absolutely necessary. My thinking is that I don't want to develop any kind of dependency or tolerance. For instance, if I CAN cope with this level of pain with yoga, tylenol, and a heating pad but instead take more intense types of pain medication, then what happens as I develop a tolerance to the medication but get increasing pain with more progression? Plus, I think I'd probably lose my job if I had to take prescription pain meds (and as hard as I've worked to get here & as much as I love my job, I can stand to be in a little extra pain to be allowed to keep doing it!)

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