Lonely PATH

[princess45]

My name is Marcia and I found out I had alzehemiers in July of this year. I live alone and my chdren have their own busy life. Long lonely hours. It has affected my typing and spelling besides the frustration I fell. I am having some loss of memory every month.

[ChristianElliott Partner]

Hello Marcia, welcome to this community, and thank you for sharing your story. Can I ask what city & state/province you live in? There may be some local Alzheimer's support groups that meet close to you. All the best.

[princess45 in reply to ChristianElliott]

I live in Oshkosh WI. I have done some checking and could not find one for Oshkosh

[ChristianElliott Partner in reply to princess45]

In addition to helpful members in this online community who can provide support and feedback, I did find these local support groups in Oshkosh:

WINNEBAGO COUNTY

2nd Monday of the month at 6:00 pm

Valley VNA, 1535 Lyon Drive, Neenah

Facilitator: Kathleen Albert Ph: 920.727.5541

1st Thursday of the month at 1:30 pm

Elijah’s Place

1551 Southland Ave., Oshkosh

Facilitator: Mallory Mueller, RN Ph: 920.235.5599

1st Wednesday of the month at 2:00 pm

Menasha Public Library,

440 1st Street, Menasha

Facilitator: Carol Fenrich Ph: 920.727.5541

[princess45 in reply to ChristianElliott]

I just saw this. I am so greateful for this information.

[PNIAuthor60]

Welcome to this wonderful and supportive community princess45. Thanks for your post. I am grateful that Christian Elliott has been able to find support in your area as a supportive community can make all the difference.

[Katiebethpdxsea]

Hi Marcia

I'm Kathryn. Just trying to figure my way too. Tentatively diagnosed with mild cognitive impairment. So I am watchful for anything going wrong...you need to find a lifeline for you to hang onto. Most of what I have found so far is help for caregivers and family members. I have an adult son who lives with me who sort of watches out for me. I am very lucky. He, however struggles with bipolar depression. So we make quite the pair. Sort of the blind leading the blind.

As far as help, maybe you could get a counselor or psychiatrist to advise you? If you have a diagnosis of Alzheimer's your doctor should be able to refer you to a connection. For myself, even with my son around it's a very lonely and frightening place to have this sort of trouble.

Some of what I have read is that vitamin B12 deficiency can wreak havoc on your cognitive functions. Be sure to ask you Dr to check your blood levels.

I am seeing a naturopath next week. Hope he has some ideas to slow progression of my impairment.

Meanwhile I have been doing reading on topic and doing research. Joining a blog like this is a great way to find support. I had someone here recommend a book that has been very helpful to me.

The book is "Living with mild cognitive impairment" which I bought and have on my Kindle. It's very well written and has helped me cope.

I sure understand your concern. I was very scared at first...but a bit better now after reading the book and joining this blog.

Ask your family for their support. The first step is to tell them and see what they have to say. Given the chance many people are only too pleased to offer their help. We are not alone, you are not alone. There are many of us. Keep reaching out, try not to isolate. Keep talking.

I am a friend on line who will be here when I can. Best to you.

[princess45 in reply to Katiebethpdxsea]

Thank you I will send more later.

[princess45 in reply to princess45]

I will try but having some problem with the computer. I am farther along than you as far as memory. My husband of 51 years passed away about a year and a half ago. He was in hospice and passed away at home. I have trouble with speech, typing and spelling besides all the things I fort. Lots of sticky notes. I do see a psychiatrist and my doctor. I have medical problems that ca connot be fixed. Controlled by diet and medication. It just gets to be long days and I get lonesome. I do not have a lot of family support and all the friends we had are long gone except for one couple.

[Campkaos7]

There are lots of groups available for you as you are not lone look into what is available in your local community.

[princess45]

Thank you I do have one to contact in the city I live. I will be doing that next week.

[PiSq]

I too am alone, after 35 years of success over the course of a year plus a very trusted ftiend of 15 years essentially accused me on malingering. I hurt like nothong i can remember a sadly will stay wit me forever. i actually wanted to hit him but thought he was kidding at first.

By the time i realized he was serious i simple did not know what to do. Its a terrible disease.

[PNIAuthor60 in reply to PiSq]

PiSq,

I tool, live alone. I've been sicker longer than I have been employable.

I' m sorry for your experience with your friend. Are you still friends?

It's hard for others to comprehend; sometimes I wish people like your friend could live in our bodies for a month

[PiSq]

Exactly my thoughts, I wish he could spend one day in my shoes.

We have not spoken since that day and it is probably best. My anger is far out of proportion and its best left alone from hete on out, sadly.