Frontal Fibrosing Alopecia: I have recently... - Alopecia UK

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Frontal Fibrosing Alopecia

Nadia21
Nadia21
5 Replies

I have recently been diagnosed with FFA and was prescribed dermovate but have taken a break from it (on advice of Dr) as I got a breakout of painful acne all over my forehead. What treatments have people found to be useful and any recommendations for shampoo as I have a really itchy scalp all over, not just on my hairline. Thanks

5 Replies
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deejames

Hi Nadia. I went on an agressive treatment course and have only lost about a 1/2 inch disc size lot of hair in 3 years.

i am now starting to reduce the medications. With caution in case it restarts.

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Nadia21
Nadia21
in reply to deejames

Thanks, hope it goes well for you.

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Nadia21
Nadia21
in reply to deejames

I forgot to ask if you get an itchy scalp and if so what helps? Thanks

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Magsmaria

Hi Nadia,I got diagnosed over a year ago after getting a biopsy done and was told it was FFA.

I’ve been on Hydroxychloroquine...one tablet a day and clarelux foam that i apply to the front of my scalp.Ive had no problems on the medication and my dermatologist doesn’t think my hairline has got any worse.Its mostly noticeably at ear area and I can hide it except on windy days.

I’m hoping it won’t get any worse and have been told it can burn itself out so fingers crossed it does.

Regards

Mags

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Nadia21
Nadia21
in reply to Magsmaria

Thanks, that's good to hear and yes, fingers crossed.

Nadia

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