Hello everyone; I'm new here and I'm a 64 year old woman living in Hampshire. I began losing my eyebrows about 7 years ago and within 3 or 4 years they were totally gone, by which time I was starting to lose my hair at the front. My parting was widening, my hairline receding and there was a small pile of hair on the bathroom floor every day.
I was referred to a Consultant Dermatologist who took biopsies about 18 months ago and diagnosed Systemic Lupus Erythamotosus. Since then I have been taking Hydroxychloroquine and applying Synalar gel to the inflamed and thinning patches of my scalp.
My consultant retired a couple of months ago and today I had my first consultation with my new consultant who studied my biopsy results, examined my non-existent eyebrows and my scalp before telling me that I don't have Systemic Lupus Erythematosus but instead have Frontal Fibrosing Alopecia (FFA). She also recommended that I stop taking the Hydroxychloroquine as it would have no effect on FFA.
Regardless of which diagnosis is correct I have to accept that neither my hair nor my eyebrows will return and that in the forseeable future I will continue to lose my hair, although both consultants suggested that the condition may well 'burn itself out'.
So I'm here to find out more about my newly diagnosed condition of which, until today, I had never heard, to be reminded that there are other people with the same condition and to learn how they are dealing with it.