Just joined this community and wondering if there are any others with this form of alopecia.
Frontal fibrosing alopecia: Just joined this... - Alopecia UK
Frontal fibrosing alopecia
Written by
deejames
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5 Replies
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I have FFA and have had it for nearly 10 years although I wasn't diagnosed until 6 years ago. I have now very noticeable hair loss at the front and behind my ears and now wear a wig when I go out . I am in dundee Scotland
Hi
Yes. I have had the same problem for nearly 2 years
It's really getting me down now as well x
Yes, I have also been recently diagnosed, I am struggling to come to terms with this and how I will cope.
4 years down the line, as a result of quite extreme treatment, I have only lost about a 10p size area of hair. I didnt realise at the time that I would be taking medication all that time. Medication that does have side effects.
Deemilneto
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