Do you know what benefits you're enti... - Leukodystrophy Su...

Leukodystrophy Support

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Do you know what benefits you're entitled to?

4 Replies

Are you finding it difficult to get access to disability benefits for yourself or your child? Do you find it hard to understand what benefits you or your son are entitled to?

If you have any experiences about getting access to benefits for yourself or your son, please share your experiences below.

NOTE: If you need any support about getting access to benefits, Marian Gell at Contact A Family has offered to provide support to members;

marian.gell@cafamily.org.uk

Free Phone: 0808 808 3555

Office Line: 0141 427 1772

You can also find her presentation from our Annual Weekend here:

aldlife.org/wp-content/uplo...

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4 Replies
RMA-1 profile image
RMA-1

My son hasnt got any symptoms but he has many appointments to monitor him. I'm a single parent and so one of his doctors mentioned that my son may be entitled to disability allowance due to the fact that he has a lot of appointments and the cost involved in travelling etc... I did send his application off but it failed. I've been told to appeal but I'm not sure whether he should be entitled because although he has ALD, he hasnt any symptoms and can do what any other child can do at 15 months. Could anyone help in answering this? Many thanks

in reply to RMA-1

HI RMA-1

Thank you for getting in touch. I am really sorry to read about your current situation with disability benefits. Please don't hesitate to get in touch with Contact A Family, who can provide more detailed answers to any of your questions regarding benefits and work related legislation.

Contact details:

marian.gell@cafamily.org.uk

Free Phone: 0808 808 3555

Office Line: 0141 427 1772

RMA-1 profile image
RMA-1 in reply to

Thank you Sara

in reply to RMA-1

Thats OK

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