562 members109 posts

Research: Gathering ethnicity statistics

To help us support research into ALD and AMN better, we've started to compile statistics on the different ethnicities and demographics of patients and families affected by the ALD gene. Ethnicity and demographic statistics are also fundamental in supporting families requiring a Bone Marrow Transplant (BMT), as donors for certain ethnicities can be difficult.

If you can spare a few moments, please help us by completing the short survey:

You may also like...