Were your family offered genetic counselling when you/your loved one were diagnosed with ALD/AMN?
ALD-Lifea month ago
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If you have any symptoms of ALD or AMN, has this affected your employment?
ALD-Life2 months ago
As a carer of someone with ALD/AMN, has your loved one's condition had an effect on your own mental health?
ALD-Life3 months ago
What ALD Life services do you access to support you/your family with ALD?
ALD-Life4 months ago
How long did it take from when you first saw your primary doctor about you or your son's condition to when you saw a specialist?
ALD-Life4 years ago
How long did it take for a diagnosis of ALD or AMN to be made?
matt8 years ago
Do you have access to hydrotherapy?
matt9 years ago
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