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Shock diagnosis
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Fannyphasbees
in
Atrial Fibrillation Support
1 month ago
Diagnosed last Friday AF
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Hi. I was admitted to hospital last Friday with heart rate of 144 and told I have AF. Told without anticoagulants I was risking major stroke, heart attack or pulmonary embolism. Now on beta blocker, Warfarin and Fragmin. Worried 😟. Was working on day I was admitted and feeling very anxious. Don’t know
Fannyphasbees
in
Anticoagulation Support
1 month ago
Niraparib
I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125
I was diagnosed with Stage 3c high grade serous ovarian cancer in June 2023 which had spread to omentum and peritoneal lining. I had ascites which was drained twice and have developed a pleural effusion. I had the 3xchemo and debulking surgery then 3 more chemo. Finished treatment on Dec 23. ca-125
Berryporridgr
in
My Ovacome
2 months ago
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Any insight into # platinum chemo cycles?
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
skiingfiend
in
Advanced Prostate Cancer
2 months ago
clotting whilst on warfarin for clots in lungs.
I’ve been trying to find out why I’ve had breathlessness for 3 years. In 2021 NHS pulmonary consultant arranged Ct scan abd lung function tests. Lung function tests results said good. Ct scan revealed very mild dry bronchiectasis and very mild emphysema - both too mild to be classed as COPD. Was discharged
I’ve been trying to find out why I’ve had breathlessness for 3 years. In 2021 NHS pulmonary consultant arranged Ct scan abd lung function tests. Lung function tests results said good. Ct scan revealed very mild dry bronchiectasis and very mild emphysema - both too mild to be classed as COPD. Was discharged
130396
in
MPN Voice
2 months ago
8 hour flight
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
Footballwidow66
in
MPN Voice
3 months ago
A simple life with Acalabrutinib?
Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what
Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what
Fogey
in
CLL Support
3 months ago
Taking Rivaroxaban to prevent DVT.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
Pomelokhaoyai
in
AF Association
3 months ago
New to Peginterferon - Any suggestions to help with bowel cramps?
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
Lyndjs
in
MPN Voice
5 months ago
Coming home
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
GillyA
in
Hughes Syndrome APS Forum
5 months ago
Does tibilone get better?
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Womble84
in
Endometriosis UK
5 months ago
Anticoagulation Therapy
Are you currently taking anticoagulants? Perhaps you are taking a Direct Oral Anticoagulant (DOAC) such as; Apixaban, Edoxaban, Dabigatran, Heparin, Rivaroxaban or even Warfarin? Have you have recently been approached or had your medication changed to an alternative? If so, have you experienced any
Are you currently taking anticoagulants? Perhaps you are taking a Direct Oral Anticoagulant (DOAC) such as; Apixaban, Edoxaban, Dabigatran, Heparin, Rivaroxaban or even Warfarin? Have you have recently been approached or had your medication changed to an alternative? If so, have you experienced any
TracyAdmin
Partner
in
AF Association
6 months ago
stopping warfarin
Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation clinic in London. They told me the person performing the steroid injection must make a “ bridging plan “, that may or may not involve heparin
Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation clinic in London. They told me the person performing the steroid injection must make a “ bridging plan “, that may or may not involve heparin
Kev667
in
Hughes Syndrome APS Forum
7 months ago
heparin innohep Uk
hi all, I’m in the U.K. I don’t have a specialist just GP and a nurse anticoagulant clinic I visit. Are U.K. APS patients on warfarin suppose to have a heparin injections supply at home for emergencies when inr too low. The nurse said it’s a good idea since pharmacies don’t usually have in in stock
hi all, I’m in the U.K. I don’t have a specialist just GP and a nurse anticoagulant clinic I visit. Are U.K. APS patients on warfarin suppose to have a heparin injections supply at home for emergencies when inr too low. The nurse said it’s a good idea since pharmacies don’t usually have in in stock
Kev667
in
Hughes Syndrome APS Forum
8 months ago
Lupron Injection Site Pain
Hi all - curious if any of you have had this weirdness. I got my first Lupron injection Aug 17th (3mth 22.5mg i believe) - had the initial soreness at injection site on shoulder that is typical of even say a flu shot. That pain did go away in couple days but came back on the 10th day and still is
Hi all - curious if any of you have had this weirdness. I got my first Lupron injection Aug 17th (3mth 22.5mg i believe) - had the initial soreness at injection site on shoulder that is typical of even say a flu shot. That pain did go away in couple days but came back on the 10th day and still is
Yzinger
in
Advanced Prostate Cancer
8 months ago
low grade ovarian cancer in the lungs
I had pleural effusion for 2 years. My doctor didn't say that the cancer could get into the lungs but it did. I received 6 rounds of weekly taxol and carbo platin but it didn't work. Now my doctor wants to stop all treatment and send me to hospice care. please let me know if you have had that experience
I had pleural effusion for 2 years. My doctor didn't say that the cancer could get into the lungs but it did. I received 6 rounds of weekly taxol and carbo platin but it didn't work. Now my doctor wants to stop all treatment and send me to hospice care. please let me know if you have had that experience
Alex29
in
My Ovacome
10 months ago
scooter
So I got my results of the echocardiogram a couple of weeks ago. Then we went away in the caravan so I could ignore the results. Got back, read my results and I felt my shoulders flump.. I have signs, they reckon, that I have a high possibility of Pulmonary hypertension. Something new for hubby to research
So I got my results of the echocardiogram a couple of weeks ago. Then we went away in the caravan so I could ignore the results. Got back, read my results and I felt my shoulders flump.. I have signs, they reckon, that I have a high possibility of Pulmonary hypertension. Something new for hubby to research
Zand60
in
Lung Conditions Community Forum
10 months ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
3 hours ago
Buprenorphine patch and swimming
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
RiversW
in
Restless Legs Syndrome
2 days ago
sleep aid
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
RCHD
in
Restless Legs Syndrome
13 days ago
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