Anything New for afib: I note from my... - Atrial Fibrillati...

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Anything New for afib

Coeurdelion profile image
15 Replies

I note from my own research that various studies are underway for treating afib with tVNS. As clinicians don't seem to know the cause of afib, I wondered if anyone in the UK ever receives information on possible treatments other than drugs? Is there any progress being made with alternative treatments. I am particularly interested in the link between Afib and the vagus nerve.

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Coeurdelion profile image
Coeurdelion
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15 Replies
jeanjeannie50 profile image
jeanjeannie50

Have you seen this. I put it on the forum a short while ago:

dicardiology.com/content/no...

Coeurdelion profile image
Coeurdelion in reply to jeanjeannie50

Yes JJ This is what led to my posting. What I would like to know is whether any of these new ideas are feeding through to the medical profession. All I get offered is tablets and ablation!

jeanjeannie50 profile image
jeanjeannie50 in reply to Coeurdelion

Yes, I certainly know what you mean! I guess new ideas for helping with AF have to be trialled for years before issue. If a natural and easy to use cure was found it would also put a lot of EP's and those who supply medication out of a job! 🤔

Coeurdelion profile image
Coeurdelion in reply to jeanjeannie50

I feel sure there is something in the link between ailments and the vagus nerve. It makes sense. I believe the devices to deliver the tVNS can be purchased.

jeanjeannie50 profile image
jeanjeannie50 in reply to Coeurdelion

I don't know how long you've been on this forum, but it's been said that humming helps tone the vagus nerve.

Sorry to be so thick, but I've just realised what your tVNS stands for. I guess the reason no one else has answered is because they didn't know either.

Coeurdelion profile image
Coeurdelion in reply to jeanjeannie50

I've tried many things including the massaging.

My Afib is paroxismal and currently returns every 3 weeks or so. It always starts at night while asleep, lasts approximately 12 hours then goes back into rhythm. when it'sp gone I feel really well, good heart rate and b/p. Trying to recognise the trigger continues to be difficult. I have had one ablation for flutter. Everyone I know has needed more than one ablation, mostly 3+. It is very hit and miss and I really wish to avoid. I really think there is something in the link between stomach and heart via Vagus nerve. I take probiotics in order to aid digestion. To a degree, I think it helps.

I have not been on this forum for long, previously used the Patient forum. Much the same as this one. I shall continue to follow this forum in case there is more knowledge out there.

TGNS one achronyme too many!

Bagrat profile image
Bagrat in reply to jeanjeannie50

Ooh I do hope humming helps. I hum tonelessly with the occasional tune as well most of the time drives my friends and rels to distraction. I also read that a marked difference in heart rate on inhalation and exhalation is a sign of good vagal tone ( originally put expiration but decided that was ambiguous)

jeanjeannie50 profile image
jeanjeannie50 in reply to Bagrat

It would be a good idea to keep it up then. I'm more of a singer, but do hum sometimes, especially when I think about it helping the vagal nerve. Going to do some now. Lol.

Bagrat profile image
Bagrat in reply to jeanjeannie50

We should form a virtual choir and all hum at the same time each day!!!

secondtry profile image
secondtry in reply to jeanjeannie50

Hi Jean, slightly 'off piste' but Fire Choir was on my Twitter feed yesterday firechoir.org.uk/elizabeth-...

jeanjeannie50 profile image
jeanjeannie50 in reply to secondtry

Wow, I would love that! Looks good.

secondtry profile image
secondtry

Hi, I share your interest. I am pretty sure my Lone PAF is vagally mediated and for some time now I have 1) practised deep breathing 2) avoided all stress 3)am &pm splashed my face with cold water

Staffsgirl profile image
Staffsgirl in reply to secondtry

Me too. I also sing with others as often as possible...even though I’m no singer.

Staffsgirl profile image
Staffsgirl

I, too, am interested in link with vagus nerve...some good books available re the vagus nerve. Look on Amazon.

Bambi65 profile image
Bambi65

Hey there.... You are exactly correct. There is a direct correlation ship between vagal nerve and afib. Dr. Wolf, the founder of the Wolf Mini Maze(WMM) over 17 years ago, ablates certain areas of the vagal nerve to stop afib. He sais "Afib is not a heart problem, it is a nerve problem" Check him out, you are going to be amazed!!! BTW.... I had the WMM last year and take no meds, no anti-coagulants, and have no, none, zip, nada AFIB.

wolfminimaze.com/about-dr-w...

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