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Rates during episodes

Kellyjelly profile image
66 Replies

I noticed yesterday that when I posted my rates when in SVT a few people were shocked/ surprised how high they were. This is normal for me and It had never occurred to me that the rates can vary so much. Can you have SVT and Afib with low rates too, is it more common to have fast or slow rates?

My SVT rates have been over 280 at their worst but usually stick at 240 and normal duration is 6 hours minimum and can go over 20 hours.

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Kellyjelly
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66 Replies
Paulbounce profile image
Paulbounce

Hi Kelly.

I guess we are all different. However that`s far to high IMO. Sorry but you really need to get it sorted out - don`t worry or panic - I`m sure you`ll be fine.

However Kelly it`s far to high. 240 for 6 - 20 hours needs attention asap. If it happens again go to A@E right away sweetheart. I would talk to your doctor now to try and find a treatment to deal with it before it starts.

Just saying.

Best,

Paul

BobD profile image
BobDVolunteer

My highest AF rate was 220 or so. My atrial tachycardia normally presents around 140 which is typical. If your rate really is that high confirmed by ECG then you must really feel quite awful. I think most people would have fainted by then.

Yes you can have slow AF but it is really quite rare and most people present with rates between 150 and 220 I guess. Of course there are thousand of people who have AF and. being quite asymptomatic have no idea they have it until they are struck down by the stroke. A very good reason to be pulse aware! For those asymptomatic people rate cntrol to ease the load on the heart is the normal treatment.

Finvola profile image
Finvola

Good grief, how can you function at those speeds and for that duration? SVT for me was typically around 160 but as low as 120 and once reached 200 for a short burst, but it never lasted long - certainly nothing like hours and hours. I couldn’t cope with the speeds you have endured, kelly. AF was generally around 120 and I found it to be worse than SVT because of the lack of rhythm.

I truly hope that your ablation will have knocked it on the head and that such misery is a thing of the past.

Kellyjelly profile image
Kellyjelly in reply to Finvola

Thank you 😊

I can’t function at all, having to pee every 20 mins or so is really traumatic. I really had no idea until now how unusual it is to have rates that high. Not that it makes much difference because that’s always been how it is for me but you learn something new everyday 😊

Fingers crossed the ablation has worked, I’m still struggling with runs of SVT but not at those rates. It makes me think that maybe I’m not such a wimp after all and no wonder I am so debilitated by it.

Finvola profile image
Finvola in reply to Kellyjelly

You’re no wimp and I think most people would be floored by that type of arrhythmia. Hope it is on its way out.

Kellyjelly profile image
Kellyjelly in reply to Finvola

Me too 🤞

Kellyjelly profile image
Kellyjelly

Thank you Paul, that’s really kind of you but these are the rates I’ve had for the last 30 years when I’ve had episodes. Sorry I might not have made that clear.

Paulbounce profile image
Paulbounce in reply to Kellyjelly

Got you Kelly. If you have had the problem for 30 years your doc will be aware of it and be able to help.

That rate would scare me for sure. Well done for not panicking to much ! I know I would. What`s your secret ?

Keep up the good work and best of luck with it Kelly ;-)

Best,

Paul

Kellyjelly profile image
Kellyjelly in reply to Paulbounce

I panic every single time even after all these years. Thanks Paul 😊

Kellyjelly profile image
Kellyjelly

Thanks BobD, yes my rate really is that high. Confirmed by ECG numerous times and most recently with the holter monitor I had in February. I have fainted countless times. During my ablation my rates were very high too.

Mine goes up to 197, adenisone does not bring it down, amoriadone did the last attack in January.

Kellyjelly profile image
Kellyjelly in reply to

That’s really fast too, do you find it debilitating? Adenosine has never worked for me and I hate it!

in reply to Kellyjelly

For nearly a week after I,m a wreck and feel so weak. They always give me adenisone, in January after 2 attempts I refused the third one because it does not bring it down,it makes me feel as if I,m dying, I,m 72 on Saturday and apart from a few aches and pains and a statin for cholesterol I,m good except for this damn Svt and ectopics.

Kellyjelly profile image
Kellyjelly in reply to

You poor thing. I refused the second dose because it was so awful and made me feel like I was dying too.

Can you have an ablation? I’ve just had one for SVT on 25th March.

in reply to Kellyjelly

I saw the electrophysiologist last year, I wanted to wait and see if my attacks got worse before I decided. I have had 6 bad attacks in 2 years and many short little ones. At my age I don,t want to compromise my life because I live alone, my family work long hours, I don,t want to be a burden.

Kellyjelly profile image
Kellyjelly in reply to

It’s good you have been seen by an EP and have discussed your options. the only thing I can say is that SVT ablations have a high success rate and are one of the easier ones to treat. I’ve just had my ablation because I was so tired of living with the threat and how poorly the episodes made me and they were getting worse. The tipping point came for me in December after a very bad attack with the highest rates I’ve had and ending up in resus.

I wish you all the best 😊

in reply to Kellyjelly

Thankyou for your wishes. I trust you will not experience any more of these awful attacks. I,m on here daily and shadow everyones posts. Good luck

Kellyjelly profile image
Kellyjelly in reply to

I had one episode two days after my ablation that lasted 4 hours, it was much slower though and I’m hoping it was a one off 🤞

Thank you for your kind wishes 😊

Take care.

pottypete1 profile image
pottypete1

I have regularly had AF at around 70 - 80bpm but it has also been as high as 120.

Pete

Shcldavies profile image
Shcldavies

Your rates were high but not exceptionally high but they should not have lasted for so long, after 30 mins you should have gone to A&E. Poor you. Anyway all that's behind you now, hope your last few days have seen an improvement, what did the Doc say yesterday?

I used to have rates that high before I started taking Bisoprolol 2.5 then the rates dropped to around 180, when I took 5mg the rates dropped to around 150 but they then sometimes morphed into Aflutter at around 120, this was much worst as I could not get up without collapsing. When in SVT only I could normally revert to NSR after 30 to 60 mins through breathing excercise, when in Aflutter it was much more difficult to revert to NSR. When I was on 7.5 Bisoprolol and 2.5 Flecainide I was great for 3 months but when I did then go into Aflutter it was bad and could not revert, had to have a Cardioversion and stop the Flecainide and reduction the Bisoprolol. What you should take from this is that no one knows what the best medication is, it is trial and error and may take a little time to get it right for you.

Kellyjelly profile image
Kellyjelly in reply to Shcldavies

Thank you, that’s so interesting.

The last time I went to a&e after 6 hours of SVT at those rates they still asked me what made me come to hospital 🙄 and my longest episode I had actually happened in hospital about 13 years ago, they let it run for over 20 hours. When the consultant came round in the morning he immediately said “we need to get you out of this rhythm” he started me on an IV flecainide and the episode reverted in less than 3 minutes.

I’m still having runs of SVT but they are short and not amounting to anything, I have been having ectopics which is new for me but I’m hoping they will stop eventually. The hospital haven’t gotten back to me, I know that the arrhythmia nurse was meeting with the EP today so I will chase it tomorrow. I’m feeling ok but like you I’m feeling like I wish I felt better at this stage, I have to keep reminding myself it’s just over a week.

Your experience with flutter sounds very similar to mine, I absolutely hated it. It made the other arrhythmias feel like a walk in the park. I know what you mean about meds, I couldn’t tolerate even the lowest dose of bisoprolol, it made everything so much worse.

How are you feeling now? I hope you are recovering really well 😊

Kaz747 profile image
Kaz747 in reply to Kellyjelly

I was watching an episode of 24 Hours in Emergency last week and they had an old man with a HR was around 270 and they said it was dangerously high and needed to be brought down quickly. I’ve been hospitalised a number of times when my HR was 150+. The highest I’ve had was around 180.

Kellyjelly profile image
Kellyjelly in reply to Kaz747

When I went to 280 I ended up in resus. My episodes are always between 220 and 240.

2468abcmuk profile image
2468abcmuk

When my svt was not controlled I was the same as you : till I walked into A&E and they rushed me to emergency room to bring down rate told me I could have gone into cardiac arrest at such rates that was

40 years ago meds controlled svt ever since I could hardly breathe when it happened and my whole body would

Pulse & totally wiped out next day

Hope you have got it under control now

As they are not pleasant xx

Kellyjelly profile image
Kellyjelly in reply to 2468abcmuk

Thank you 😊 I know exactly what you mean about whole body pulsing, my husband hates it because my vein in my neck pulses and he can see how fast it’s moving. Whatever I’m wearing on top will quiver when I’m lying down, awful feeling.

I’m so pleased yours is controlled with meds, I’ve just had an ablation and hoping that will be the last of it 🤞🤞🤞

momist profile image
momist

Two things about heart rates when in AF:

1. Most heart rates are measured by pulse rate, and this is not relevant. Only an ECG (EKG) can measure the actual rate your heart is going at, because when in AF not all beats are generating a measurable pulse.

2. Other factors than the AF itself will still affect the heart rate.

When I had my first 'event', the ambulance crew measured a rate of 280 bpm. By the time I got to be on the regular ECG at the hospital, that had come down to below 200. I now believe that the fear of dying from some strange heart condition I knew nothing about, contributed greatly to the extreme rate.

Now that I have 'come to terms' with my AF, and am no longer afraid that it will kill me, together with the 1.25mg Bisoprolol daily, my AF rate as shown by my Kardia is usually about 176bpm, while lying down resting. This doesn't make me feel too bad, I can still think and still function (even drive), but know I need to rest until it stops. It lasts about 8 hours, and stops in the small hours of the morning while I'm asleep (it stopping wakes me up).

Kellyjelly profile image
Kellyjelly in reply to momist

Thank you for that, in my original post I was talking about SVT rates and of course at the speeds I suffer with the most accurate way to measure the rate is with an ECG however you can get a good idea that my rate is incredibly fast by trying to take my pulse. Although I can easily tell you by feeling roughly what my rate is. Afib is totally different as you say, the rate is chaotic and I can’t tell from my pulse the maximum and minimum rate during an episode but I can tell you if the maximum rate goes over 200 just by how I feel.

Also as you say the heart rate is still affected by other things like movement and fear hence why I can’t move or I tend to pass out or feel incredibly unwell.

However I’m afraid for me that coming to terms with it has had little impact on the rate, my SVT starts off at that rate from the second it begins. Of course I try and keep calm and move as little as possible but my heart tends to stay at between 220-240 it usually stops spontaneously or after a few doses of flecainide and I have never been able to sleep whilst it’s happening.

It’s funny how differently our bodies respond isn’t it 😊

KMRobbo profile image
KMRobbo

My max afib rate was 243 but I was running at the time. I was asymptomatic at that rate.

However when my AF progressed I was 130 to 195 for most of 8 days (resting) I was knackered. Although I am not aware that did me serious harm, I am sure it did not do me any good either! At which point does it cause harm?

Also to note, my local hospital tell me that if the AF is above 130 for a significant period go to A&E. This is hours not weeks. Also to bear on mind is that unless you are anticoagulated the hospital will not cardiovert you after 48 hours of afib. It takes a lot of organising at my local to do a cardioversion which usually seems to revolve around anaesthatists availability, so really if I could not get rid of AF after 8 hours I went to A&E. You will spend 4 hours in A&E before they think of cardioversion . At my local hospital then will then take you to MAU which will take another 4 or more hours before they decide what do do, and then they need to fit in the team to do it, so the 48 hours gets eaten up really quickly. My local also want 12 hours nil by mouth in there also so I don't drink or eat once I decide to go. (Second time I went they fed me a meal and an hour later came to cardiovert me but could not because they had fed me..... )

Kellyjelly profile image
Kellyjelly in reply to KMRobbo

Thank you for such an interesting reply 😊

Your rates tend to be high too, it’s mad that at 243 you were asymptomatic isn’t it and then at the lower rates as it progressed you felt awful. I’ve got no idea at what point it would cause harm.

It’s also so good to hear you have a very definite plan with your hospital, I have been told so many different things over the years from ring 999 immediately to stay at home and if it’s still going after 12 hours then get someone to take you to a&e. Incidentally every single time my husband has taken me by car to a&e I have ended up collapsing with 30 mins of arrival. Sitting up when my heart is at that rate always results in passing out.

KMRobbo profile image
KMRobbo in reply to Kellyjelly

No i did not feel awful immediately, but as I went on through the week I began to feel more and more tired. if you think about it when i am running i average 145 - 148 BPM for an hour or max two. Even a marathon is only 4.5 hours. 8 days is 192 hours! - 43 marathons? I assumed that was why I was so tired! It took me a few weeks to feel right again after I was cardioverted. (Actually i was put on flecainide and diltiazem and I never felt completely right again until after i stopped the ditialzem post ablation 10 months later!).

Best wishes

Kellyjelly profile image
Kellyjelly in reply to KMRobbo

Yes, makes perfect sense. I can’t imagine how tiring it would be to have rates like that for 8 days.

sjanee11 profile image
sjanee11

My first episode was 246 and I also had afib with it because I was in it for so long - I didn't realize what was going on - thought it was an asthma attack. My second episode was around 190 - jumped up to 250 in the ambulance with adenosine and was down to 160 by the time I got to the hospital. Third episode stayed around 160-170. I did take flecanide with the second and third episodes and went to the hospital within an hour of it starting.

Kellyjelly profile image
Kellyjelly in reply to sjanee11

Thank you for your reply, those are high rates too, how did you feel at those rates?

sjanee11 profile image
sjanee11 in reply to Kellyjelly

The first time, I just had tightness in my chest and felt like I was having weird hiccups and I was on edge. But didn't feel faint or anything like that. The other times, I could feel my heart racing and got very jittery and panicky but still no lightheadedness or pain or anything. The next day however...ugh! I always felt like I had run a marathon and my whole body would feel heavy and sore.

sjanee11 profile image
sjanee11 in reply to sjanee11

I was on preventative medicine the last time it happened and that is what made me choose an ablation.

Kellyjelly profile image
Kellyjelly in reply to sjanee11

That’s so interesting, before an episode, sometimes for a couple of days I feel off and lethargic, I only realise with hindsight, then after an episode ends I feel really well almost instantly, partly relief I suppose but also something else, I have more energy and feel really clear minded.

Kellyjelly profile image
Kellyjelly

Really??? I’m pretty sure I’m not the first person to mention SVT on this forum. SVT is supra ventricular tachycardia.

Eastwick profile image
Eastwick

Hi again, my heart rates were very similar to yours and completely debilitating. In the end after a good few years and two ablations , the next collapse was pretty severe and I was stuck in flutter around 180 and very unwell. In the end they decided pace and ablate was the way to go. Has seemed to be a good solution. I have needed one cardioversion since the op. But it’s such a relief not to have the Afib like I did before.

Kellyjelly profile image
Kellyjelly in reply to Eastwick

I bet it is, that sounds awful. I’m so glad that you have found a solution and are feeling so much better 😊

Eastwick profile image
Eastwick in reply to Kellyjelly

Forgot to say it was done at Northern General!

Kellyjelly profile image
Kellyjelly in reply to Eastwick

Oh Really, by Dr Kelland?

Eastwick profile image
Eastwick

Not sure who did the op. Was not in a very good state. Dr Zahu was my specialist and he did the av node ablation

inezelsie profile image
inezelsie

I have AF and last year in April, I think after receiving lidocaine with epinephrine for a biopsy, I started having rates around 135. I'm usually asymptomatic, and I just ignored it. I didn't feel bad, could do what I wanted so I just went with it until late August, when I couldn't get enough breath when lying down. It was becoming impossible to sleep, so I finally went to the ER. They did a cardioversion the next morning, but I was back in AF at midnight, so I was started on amiodarone. I went back to NSR after 2 days, but echo showed my ejection fraction was below normal, 25% instead of 65%. The EF became normal within two weeks. I was discharged with amiodarone, and took it till mid- December when I realized how dangerous it is. My thyroid is still not normal. I was given flecainide to take after I'd been off amiodarone for a few weeks, but my AF stayed away so I didn't take it. I had an AF episode last month, and took a flecainide then. It made me so sick I only took two halves, and then stopped. I've had a few AF episodes but they've only lasted a few hours so I'm not taking anything. I was told that if I had AF for 48 hours or was short of breath I should go to the ER. I take magnesium when I become aware of the AF and it usually helps. Has anyone else here been made ill by flecainide? My doctor said it's usually well tolerated.

Kellyjelly profile image
Kellyjelly

The success rate for SVT ablation is very good

Kellyjelly profile image
Kellyjelly

Because it’s not AF?!?!

Kellyjelly profile image
Kellyjelly

Not as confused as me 😂

SVT and Afib are two different arrhythmias. SVT can be treated with ablation. My original post was asking about how fast people’s hearts beat when they are having an episode of SVT or AFib. Does that clear it up in any way?

Kellyjelly profile image
Kellyjelly

Glad we figured it out 🤪

How did you feel at those rates?

Has the rhythm always been irregular, I meant to say the difference between AFib and SVT is that SVT is a regular fast rate and Afib is an irregular fast rate.

Kellyjelly profile image
Kellyjelly

I had mine 10 days ago.

AmbieBambie profile image
AmbieBambie

Wow that is high. But I’m new to this area so don’t know much. I just was told after my heart monitor that I had 7 SVT episodes (up to 203 bpm & lasting as long as 17min) and 2 episodes of VTach. Are you taking medication? I was fearful to take medicine since I’ve had reactions to other class drugs and indeed had a reaction to the beta blocker. Now looking to get Ablation, but the docs are acting like I need medicine or something bad can happen, so scared till I get my Ablation.

Kellyjelly profile image
Kellyjelly in reply to AmbieBambie

I took flecainide for 12 years and it really helped but started having more breakthroughs so decided to have an ablation, I had it on the 25th march. I had a bad reaction to beta blockers too and am very sensitive to drugs. I was really afraid when I started flecainide but it was a good drug for me. I spent years unmedicated and nothing bad ever happened, it might be a good idea to ask what the risks are of just waiting for the ablation and then making your decision based on that.

Gowers profile image
Gowers

How are you doing and feeling after the ablation you had few weeks ago Kelly?

Have been reading your postings about af etc - always interesting to read about other folks experiences with treatments and meds etc

Kellyjelly profile image
Kellyjelly in reply to Gowers

Hi Gowers, thank you for asking 😊 I’m doing ok, it’s not been easy if I’m honest. Some days I’ve wondered if I made the right decision but it’s more than two weeks ago now and I am starting to see the light at the end of the tunnel. I’ve had some really good days over the last week and some not so good. My husband keeps reminding me it’s really not been long and I know he is right but the EP and arrhythmia nurse have said that with an SVT ablation the recovery should be quick and easy so I’m not sure why Ive found it quite hard going. I have lots of thumps and bumps still and I’m having short runs of SVT much more frequently than before. I’ve got an appointment in 6 weeks and a Kardia from the hospital to catch anything in the meantime. Hopefully it will all settle soon🤞

Gowers profile image
Gowers

It's good you have the Kardia - I don't know much about them - I have a heart reveal device which has pin pointed my af exactly which, cardiologist says makes me an excellent candidate for ablation as he can already see where and how the af starts from & how often. He prefers doing ablation under ga though as some patients find keeping still difficult despite sedation and a lot of the time patients for various reasons can't cope with sedation and having to be topped up (did that happen to you?)

One thing I don't like the sound of is lying flat for a few hours afterward - was it difficult?

I'm sure you will be pleased with the result and seeing a difference soon.

Thanks for letting us know how you are getting on

Paula27 profile image
Paula27

Hi Kelly.

Your svt attacks sound a lot like mine.

As soon as I know one is happening and I check my heart rate I'm always between 213 the highest being 236bpm. There's only been once where I didn't need to go to the hospital because it went back to normal after 20 minutes. But I had one 2 weeks less a day after that one and was always told if it continues to go straight to the hospital.

I bagged the doctor to not give me the Adenosine and instead he gave me 15 mg of cardizem and it I reverted quickly to normal rhythm without the horrible feeling that Adenoisen gives you.

I just got put on 2.5 mg of bisoprolol until I can get in for my ablation that I am very nervous about as they told me they have to keep you awake while they put you into an svt attack.

How are you feeling now after your ablation and have you had any more svt attacks since?

Chameleons profile image
Chameleons in reply to Paula27

I have had svt episodes for 30 years, the first one when I was 18. I put up with them because they only lasted 10 minutes or so and happened maybe three times a year, as I've got older the episodes have become more frequent and lasting longer, over an hour, I had a very severe one at work and a colleague phoned an ambulance, the paramedic put an ECG monitor on me and my heart rate was 290. I spent 3 days on the cardiology ward and was diagnosed with AVNRT, a very common form of svt in women apparently. I was referred for an ablation, which I had last Monday. Let me reassure anyone thinking of ablation, do it, the procedure is nothing to worry about. If you've had years of svt like I have, that feeling of your heart racing, thinking it'll never stop, and the impact it has on day to day life, the ablation is nothing compared to that. Paula27, if you want me to go into more detail about the ablation and how I've been feeling the past week since, I will. I just wanted to reassure you that it's nothing at all to worry about.

Kellyjelly profile image
Kellyjelly in reply to Chameleons

Your svt sounds very similar, in terms of rates, to mine. So glad you are feeling good after your ablation, take it steady and best wishes. 😊

Chameleons profile image
Chameleons in reply to Kellyjelly

Hi Kelly

Did they say yours was AVNRT? I've been lurking on this site for a few months but never posted, it's so good to read stories about people with the same symptoms as I don't think anyone appreciates how horrible an svt episode is when your heart's going that fast!

I've had a few missed beats since ablation, but no fast ones. I feel good but after reading on here about taking it steady I've decided to take a second week off work to make sure I don't do too much.

I just want to say thanks for your posts over the last few months, I've been reading them and you really helped me while waiting (and panicking) for my ablation.

Kellyjelly profile image
Kellyjelly in reply to Chameleons

Yes I have AVNRT, I never call it that because I have always just used the various arrhythmia names that I’ve suffered with. I started this post because I was questioned about wether the rates I was claiming to have experienced were accurate. I think that rate really does impact how symptomatic you feel and at rates as high as we have experienced the symptoms are utterly debilitating. Absolutely no chance of exercising my way out of it or just carrying on at a slower pace!

I think it’s a good idea to take a bit of time to recover, everyone is different and some people bounce back immediately with no further problems but that wasn’t my experience and I’ve been very honest about that. It’s so nice if you to say that my posts have helped 🥰

Take good care and look after yourself. 😊

Paula27 profile image
Paula27 in reply to Chameleons

Hi Chameleons,

Haven't been on in quite some time.

I've got off the beta blockers because I felt horrible on them and have had a few SVT attacks since with them all being between 212-226bm. I'm finally going in for my ablation on Monday July 22nd. I am very nervous.

We're you under general anesthesia associates or just local anesthetic? I had one doctor tell me that I can only be under local because they have to put me in a SVT attack but the anesthesiologist told me he can put me under general, I just don't know what to do. I just want to live a normal life, travel without worrying if I'm going to have a SVT attack. Mine don't stop until I get the adenosine

Chameleons profile image
Chameleons in reply to Paula27

Hi Paula. First of all try not to worry about the ablation, they make sure you're comfortable throughout, they give you sedation and will top it up if you need more.

First of all they'll numb your groin area and then put the catheter in, you don't really feel this, just some pushing on your groin area. They then have to induce the svt, mine went off as soon as the catheter went to my heart, just think to yourself, this might be the last time I feel my heart in svt! They then tell you they know which area needs ablation and they'll give you sedation. There will be a nurse right next to you checking you're not in any discomfort, they really look out for you. Once the area of the heart has been burned they try to induce an svt, it felt like they gave me adrenaline or something, my heart did the usual big thump before svt starts, but no svt, my heart rate stayed steady. They did this 3 times, upping the dose of adrenaline? to make sure they couldn't induce svt.

The cardiologist then told me that he's confident it was successful. You have to then take a deep breathe in and hold it while they take the catheter out. You have to lie flat for a couple of hours afterwards to make sure the groin heals.

I had a small purple mark on my groin that healed after a week.

I took 2 weeks off work, but was doing normal things, like walking the dog, cooking tea etc after 2 days. From reading here, everyone's recovery is different, just listen to your body, you know it best!

What's weird now, though, is I haven't had svt, my heart will still thump, but doesn't start to race, but at night I get other arrythmias, what feel like missed beats, and a funny flutter at the top of my heart but my pulse is steady. My cardiologist assured me this is normal, and as long as I don't go into svt, nothing to worry about.

It has changed my life, no medication, and no fear of traveling, or worry about it happening at work, and those other funny beats I feel at night are nothing compared to that 200+ heart rate!

Hope this has reassured you a little x

Chameleons profile image
Chameleons in reply to Paula27

Hi Paula27

Just wondering how your ablation went? Hope it was successful and you're recovering well x

Kellyjelly profile image
Kellyjelly in reply to Paula27

Hi Paula, yes your experience sounds very similar to mine. Over the years my SVT started to trigger AFib and then eventually atrial flutter, the atrial flutter was the absolute worst thing that’s ever happened to me and it was from that experience in December I made the decision to finally have the ablation.

Like you I was really scared of being awake under light sedation and having the SVT set off, I had no idea until I met my EP that the SVT was the cause of the other arrhythmias. My EP was really happy to hear that I had never had the other arrhythmias without the precursor of SVT, he said that the SVT ablation has a very high success rate and is less complicated than an AFib ablation.

For me Paula it was a case of I couldn’t function any longer the way that I had been, after the episode of flutter in December I just didn’t recover. My heart was all over the place and I was so unwell. I had tried to manage all this for years and finally my body just gave in.

Nothing can take away the fear of facing an ablation but I promise you it is worth a shot. My daughter asked me if the ablation experience was worse than being in SVT or flutter for 4 hours and the answer is a massive NO, I would have 10 ablations rather than experiencing flutter ever again, even for 10 minutes . If you read my posts from before and after you will get a good idea of how it was for me, I’ve been very honest.

Since the ablation it’s taken me a while to feel better, I had a 4 hour episode of SVT two days after the procedure that really freaked me out and knocked my confidence completely but the episode was very very different from anything I’d experienced before. The rate never went above 150 and more importantly it didn’t descend into the other arrhythmias. Also whilst it was unpleasant it wasn’t utterly debilitating like it was before. Since that night I have had short runs of SVT that last seconds and stop. My heart is still very sensitive and the triggers that I had before, menstrual cycle, god etc still seem to irritate my heart. I took flecainide for 12 years and my EP stopped it a month before the ablation, sometimes I think my heart doesn’t know how to behave without it.

The recovery from ablation for me was more than physical, it has been a real journey and I am happy to say that I’m 8 weeks post ablation now and I’m feeling so much better in so many ways.

I wish you all the very best Paula and have a read of my posts, they might help. I’m here if you want to ask anything at all.

Take good care 😊

LMor profile image
LMor

Hi...mine are the same as yours...they were up to nearly 300 and lasted for hours...was rushed in twice last year and given adenosine. I had my ablation in February and none since apart from two which lasted for seconds. It made me collapse (not, pass out) and unable to function. It’s very frightening so I’m glad I’ve had the ablation (although I was forced to by work) as I would of been sacked if I was off work again if I didn’t show I was doing something to help myself (appalling statement from a very large company). Anyway, I really hope you continue to get better and neither of us have any more episodes of svt 😬

Kellyjelly profile image
Kellyjelly in reply to LMor

So pleased to hear that you have been so much better since your ablation. I think that if you have never experienced rates as high as we have people find it hard to believe!! Like you I honestly couldn’t function, the constant need to go for a wee every 20 minutes was so traumatic because any movement would send the rate even higher.

Long may we both/all remain SVT free 🤞🤞🤞😊

Paula27 profile image
Paula27

So glad you are feeling better Kelly. I go for my ablation this Monday. I am very nervous. I just hope it works and I can get back to living a worry free life. I met someone that also has SVT and she was saying hers only got to 180s and they normally stop after 20 minutes and she couldn't believe when I told her that mine gets as high as 240 and it doesn't stop until I have to go to the hospital. So it's very surprising for people who don't get as high as us

Paula27 profile image
Paula27

Hi guys. It's been a while since I've been on.

So just a little update, had the ablation back in July, doctor said it was successful. Moving forward 5 months after my ablation I had another SVT attack in December with 210 BPM and again had to have the adenosine. I was more dissapointed than anything because I didn't think I would ever have to deal with this again. I'm booked in for a second ablation on Apr 16th.

Has anyone else had to have a second ablation and was it successful the second time around.

Hope you are all doing well!

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