Would you like to share your care exp... - Atrial Fibrillati...

Atrial Fibrillation Support

31,273 members36,922 posts

Would you like to share your care experience?

9 Replies

We often receive patient stories where people talk about their diagnosis, treatment and where they are in their journey. These are great, and perfect for helping others understand that they are not alone.

However, we also want to hear about your care experiences. Good and bad!

You might be example one:Your diagnosis may have been delayed or taken some time, perhaps you had no offer of suitable treatments options, or were given aspirin rather DOACs. Were you disappointed with the support you were offered?

Or you might be example two: Where you received excellent care, with ongoing support. Perhaps your GP and specialist worked together to ensure you were receiving optimum treatment, and kept you up to date with your treatment and gave you a say in your care too.

We want to hear from you either way! Please email me r.harris@heartrhythmalliance.org

Thanks

Rachel - AF Association Patient Services Coordinator

Read more about...
9 Replies
wilsond profile image
wilsond

Will do

Done. You may need a drink.

in reply to jedimasterlincoln

Thank you! Although as yet, I do not appear to have received it?

Rachel

jedimasterlincoln profile image
jedimasterlincoln in reply to

Hopefully won't be long not had an error message

in reply to jedimasterlincoln

I still have nor received anything yet. Can I confirm that you sent it to r.harris@heartrhythmalliance.org

jedimasterlincoln profile image
jedimasterlincoln in reply to

Yes have just cut and paste your address and forwarded again

Hello Jo, We are seeking these experiences at the moment to share anonymously. We will not share your name or location, just your experience.

Thank you, Rachel

Dawsonmackay profile image
Dawsonmackay

I'll pass for the time being.

Will get something together as it is anonymous !

You may also like...

Would you like to share your views about AF?

questions in this anonymous survey about diagnosis and treatment:...

Things about AF you would like GPs to know

AF treatment, diagnosis, and what our support group tries to do. If there is any part of your...

Interested in Sharing your AF Journey?

love to hear about your AF journey. Whether it is your diagnosis story, the experience caring and...

Will you share your AF story?

requests. Of course, you are at liberty to instruct where you would like your story to be included.

Would you like to participate in a Study?

Do you have Atrial Fibrillation? Or are you a Caregiver of someone with Atrial Fibrillation? Do you...