Feelings post Cryo/RF ablation in May... - Atrial Fibrillati...

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Feelings post Cryo/RF ablation in May but now have been diagnosed with cancer.

Dangerousdriver profile image
17 Replies

Hey all,

So as some of you may remember I had a Cryo/RF ablation in May this year to treat my Afib, Aflutter and SVT which has come out of nowhere and had a severe impact on my day to day functioning.

My cardiologist was fantastic and recommended I had both forms of ablation at the same time. Further visits to A&E meant the procedures were brought forward from Dec this year to May.

So post ablation I felt great! Sore, but great in myself. I had lost the lethargy that I had for years. And although I couldn’t do too much for the first week, I was amazed how well I felt. I stopped taking the Flec and remained on Rivoroxaban and Bisoprolol 1.25mg. I personally didn’t like the Flec, it made me feel awful.

A week after the ablation and fed up of being housebound I took my 2 young boys bowling and after ten mins ended up in AF albeit for a minute. But after that I felt like I did pre-op. The tiredness and lethargy returned and I felt no different aside from other having AF daily.

I went back to work 3 weeks after the procedure and my boss who was sent by Satan himself was appealing to me. Her treatment of me when I went back was worse than ever and it led me to have a couple more episodes of AF and ectopics. I then had to take a grievance out against her as she was trying to use the sickness policy reserved for those who take advantage of it against me.

Even HR were surprised to hear that she had begun to instigate this action against me.

Then the next thing I know one morning I woke and blood in my urine. Went to the GP that day and sent for an urgent scan and they found a testicular tumour. So I was rushed in the following week to have it out and then whilst carrying out the admission risks etc they failed to realise I was Rivaroxaban and refused to operate that day. So I was sent away and told not to take it after the following Sunday night, and stupidly I took it inadvertently with the rest of my pills on the Sunday evening and didn’t realise until the following morning. I called the admissions team who spoke with the general surgeon who refused to carry out the operation, so once again this time my fault but cancelled nonetheless. By now I was in a lot of pain as the tumour was growing quickly.

So I was finally admitted and had the procedure. And wow I couldn’t have imagined how painful it was. I’m off work again recovering and have been told it was cancerous so I am awaiting the prognosis.

All in all health wise it’s been a year to forget for sure!!

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Dangerousdriver
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17 Replies
BobD profile image
BobDVolunteer

So Sorry to hear that DD. I had three ablations which stopped my AF and then was diagnosed with prostate cancer so understand how it feels that life is against you. Major operation. 33 days of radiotherapy and three years of hormone treatment and now seven years down the line I am still here so there is ongoing life with cancer and it is good. Try to remain positive as believe me it is so important and look for any small victories each day.

What an awful year, hopefully you will have turned a corner now and can start getting your life back

jennydog profile image
jennydog

I am so sorry that you are having so much trouble.

30 years ago I had cancer - malignant melanoma and I had never sunbathed in my life! I was told that I was going to die and I had 2 young sons aged 8 & 6.

You need to aware of the following :-

There is life after a cancer diagnosis.

You need to face it head - on.

It is nothing to be ashamed of.

It is not contagious so nobody should be afraid of catching anything.

You did not do anything to cause it.

You will be having treatment while your carers watch and can do nothing. It is harder for them.

There were people who walked on the other side of the road to avoid speaking to me because they didn't know what to say. One woman said " I hear that you have cancer. Does it worry you?"

I wish you well with your treatment. Try to stay calm to help your heart avoid going into AF.

jeanjeannie50 profile image
jeanjeannie50

Sorry to hear your news, what an awful year you've had! Lets hope it's all behind you now and you can start enjoying life again.

Big healing hug and wishing you a speedy recovery.

Jean

Dangerousdriver profile image
Dangerousdriver in reply to jeanjeannie50

Thanks Jean, yes it’s certainly been a challenging year. But what choice do we have but to face these things head on and get on with it. It’s certainly opened my eyes this year and made me reprioritise aspects of my life. X

meadfoot profile image
meadfoot

So sorry to hear of your awful health journey. Yes I recall your journey from earlier posts and hoped things were much improved. What a double whammy, well triple counting your horrendous boss. I so hope you get good news post your surgery and wish you a speedy recovery.

Life takes some awful twists and turns and I hope you are through the worst and can regain health and strength as a priority.

Regarding your boss, well here's hoping karma catches up with her which it surely will. It's the last thing you need in the midst of health issues. Some people are beyond comprehension. Dig in look to your family and friends for support. Wishing you all the best. X

Dangerousdriver profile image
Dangerousdriver in reply to meadfoot

Hey Mead,

There is pain at the moment at which is actually doing me a favour and keeping my mind occupied. But as for everything else, I am certainly not going give in and my boss whilst on my list of to-do’s is certainly not high up on my list right now.

I’m going to concentrate on getting better first and foremost.

Finvola profile image
Finvola

What a traumatic time you have had but it's behind you now and I hope you can look forward to a better future.

Regarding that boss, she is nothing - nada - nix. The most important thing is your health and wellbeing. Do what you need to do and hold your loved ones close - they matter as do you. Best wishes. xx

It can be quite hard to ignore the worst to start with but see if you can, for cancer is something than so many can put behind them and the sense of triumph can make the years ahead feel a little bit sweeter.

Dangerousdriver profile image
Dangerousdriver

Thanks all for your kind words as always, it’s been a difficult time in more ways than one, but I’ll keep plodding along, until I can bound again.

It’s funny how these situations can give you clarity on other matters in your life. But mostly that you are not alone, and never be scared to face the unknown. I have always tried to live my life facing fear and not letting it dictate what I will and won’t do.

Kaz747 profile image
Kaz747

What an awful time you’re having. Remember, cancer is a word and not a sentence. Like jennydog, my husband was diagnosed with malignant melanoma many years ago (he wasn’t a sunbather either). Thankfully after surgery and treatment, 40 years later he’s still here. Long term health issues are draining. I was perfectly healthy until 3 years ago then it’s been one thing after another. On 31 December each year we say “next year will be better”. I don’t want to wish my life away but I’m really looking forward to 2019 😃 Take care and look after yourself.

doodle68 profile image
doodle68

Hi DD , my goodness you are certainly having 'one of those years ' and must be sick of it all.

Try to stay positive and tell yourself each procedure is one less to undergo on the path to returning health :-)

Wishing you well... x

So sorry to hear this . You have certainly been through the mill. It often takes something like this to make us realise what our priorities are.

Wishing you well in your recovery.

Sandra

It’s impossible to imagine what you must have been through and then to be faced with delays in treatment because of medication must be the final straw! After I retired, I spent around 6 years working in Patient transport and much of that was with cancer patients at the Royal Marsden. All I can tell you is that it was an inspiration working with so many positive and determined people and it was amazing how many won their fight thanks to all the amazing new developments in cancer treatment and testicular cancer was certainly one of the success stories. Let’s hope the worst is over .....best wishes....

Leeson profile image
Leeson

Don't despair, try to take one day at a time, and just fight like hell, you will get there, I had Breast cancer five years ago, will be taking hormone tablets for ten years , my specialist told me write off twelve months for treatment and recovery , and he wasnt far wrong, there is life after cancer, these days it isn't a death sentence, take care of your health while going through Your treatment......good food, plenty of rest, and being kind to yourself.

wilsond profile image
wilsond

Sorry to hear all this.My brother ignored a large lump in o n e of his testicles,eventually went to doctors,admitted there and then for immediate surgery,aged 19. Hes now 56 ,and never had further cancer .

Not belittling how you must be feeling,can't be good,but as others,have said,treatment is very effective now .

I know how you feel about your managers attitude,having had recent experience of this.Keep records of what is said,dates etc. If you can,take someone with you to meetings.

Good luck and keep your chin up! Xx

Dangerousdriver profile image
Dangerousdriver

Strange thing with mine was there was no lump, the tumour was growing inwards. Had I not seen the blood in my urine, then who knows. But I am pretty confident that the prognosis is ok long term. I am getting a free MOT every 3 months for the next 5 years.

The hardest thing is coming to terms with the aesthetics as it looks odd now. I am considering my options there and see what I am offered.

As for the boss, well she will still be there when I return. And I have covered myself fully along the way. She however, is not as smart and has on numerous occasions made it quite clear she has an agenda against me, but I have provable evidence against her, so once I am back to work I will reconvene the grievance and get things moving again.

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