Ablation for PAF and ectopic heart beats πŸ’—

Hi πŸ‘‹πŸΌ, I am new here and new to this AFib . I had my first run of it back in November and it lasted 7 hours in and out of it . I have suffered a lot over the years with runs of ectopic heart beats πŸ’— and SVE in sinus rythem! But in November the run sent me into AFib . I am now on blood thinners and getting ready for an ablation in around 3 months time . I have also just been told I have a mild regurgitation and a dialated left atrium πŸ˜• My cardiologist said not to worry but I am now . Ime sorry I googled it and am seeing stuff that has terrified me . Can the left atrium go back to normal size ? This is all new to me as all my scans had allways came back normal ' they said I was an anxious person which is no surprise with all these irregular heart beats I've had to put up with over the years . Ime understanding the ablation procedure is going to be done using the toparel mapping system and I am having it done at Leicester heart hospital. Has anyone had it done with this procedure at Leicester? Or any other hospital for that matter? Ime so nervous about this and terrified about my left atrium being dialated. Sorry for the long post , but I don't no we're to turn to talk to anyone else ❀️ thanks x

Last edited by

20 Replies

oldest β€’ newest
  • I can understand how you would be scared, after years of frightening symptoms and being labelled anxious as well you have suddenly been diagnosed with a list of heart problems and whooshed off to an ablation! First thing to say, many of us have been through the same or similar, my story was almost identical except I have a slightly dilated right ventricle instead and it took 15 years to get to the ablation! The dilated atrium is caused by AF and can shrink once the AF is stopped. It sounds as though you might have had AF for a while. I don't know your age but a slightly leaky valve is common as you get older. I can't comment on the hospital, I had my ablation at Harefield and was scared witless (also the rhyming word 😨) but everything turned out well.

    I'm sure others will be posting to reassure you soon, but suggest you give Google the boot unless to go to the AF Association, Arrhythmia Alliance or British Heart Foundation.

    Best wishes πŸ’•

  • Aww ino it's been a shock for me πŸ˜• and yes I think I have had it since my early 20s but just little bursts of it . They thought I had SVT at first and put a implant loop recorder in for 3 years , I got checked every 3 months but they said it didn't show anything towards , then boom in November . Ime very sympathetic as well I feel every bump and missed beat in my chest . Ime 44 but lost my brother 4 years ago from heart failure he was 46 at the time and passed away in his sleep suddenly with no warning. And have a first cousin that has just hit 40 and is male with heart failure . I think because of the history in the family they offered me the ablation strait away , it's hard work trying to take it all in and I am so frightened about everything. Thanks for the reply back πŸ‘πŸΌI appreciate that and hope you are well x

  • Hey!!!! I am a 33 year old male and I have a very similar story...I felt skipped beats when I was in my late 20s. Then one night bam! SVT at 180 beats a minute for an hour. Adenosine didn't work and I just converted on my own at the hospital . They sent me home and I took diltiazem for 3 years. After about 3 years my skipped beats increased and I didn't want to keep taking more medication. I chose to have an ablation 1 year ago for AFIb as they found it to be the underlying rythm. I don't regret that decision one bit....by the way all of this happened and I am still active duty army. Didn't miss a beat! Ablation is definitely the way to go.. I had some difficult parts in the first few months after the ablation but all worked out!#trusttheprocess

  • Hi Sam and welcome to the forum. It's good to hear that you appear to be in good hands and that you have a medical team working to a plan, there are many in this forum that would wish they were in a similar position. I'm not medically trained, but I can understand why you are concerned about all the treatment options that have been discussed, but many here will relay their experiences of ablation and I sure your will find their comments helpful. I had a cryoablation last July and I certainly have no regrets. Using Google when you know a bit about AF can be very helpful, but if done with little or no knowledge it can be quite challenging as I know to my cost!! Taking an anticoagulant is good, because it offers a high level of protection against stroke. From what you say, it sounds as if your heart is in pretty good shape and you might find that your atrium could return to normal size once the ablation takes effect....but this you must check with your doctor.

    I'm from the south so have no knowledge of Leicester but it sounds as though they are well equipped so no worries there.......check out the AFA webpage where you will find a wealth of information and try not to worry.......and don't forget to let us know how you get on in the summer....the best of luck. John

  • Aww thanks John πŸ‘πŸΌI am glad I found this forum now , it's so nice to be able to chat to all of you β€οΈπŸ‘ŒπŸΌ I will check out AFA webpage and will let you no how it's going . Hope your well and thanks for replying back to me x

  • Hello flapjack,

    I agree with your comments. Its a natural instinct to Google everything. Sometime that makes more anxiety. I am always doing it even though my AF apears to have been cured. I seem to remember my atrium was slightly dilated but since 2015 I have been well. Its always reassuring to read positive comments. People who have't experienced AF have no idea how debillitating it can be. Its good to talk.

    Thanks,

    Carole

  • My wife is also a Carole with an "e" ......would be great if I could get her to agree with my comments too!!!! (I jest).

    Good to hear you are doing well, long may it continue and thank you for your comments.......John

  • Just to add to the above comments, a successful ablation could well allow the left atrium to return to normal size. Do understand that ablation is often just part of your journey through AF. It isn't an instant fix for many people and takes a while (three to six. months) to heal before you can know how successful. You may well have some strange goings on in that time so don;t worry. As above Read all about it on AFA site as knowledge is power.

  • Thanks bob πŸ‘πŸΌ I have heard some people say they have had some runs of ectopic and fast heart beats while the scar tissue is healing. That's something I'm not looking forward to to be honest πŸ˜•but I have also spoke to some people that have had nothing and been fine . But I am very symptomatic so I will feel every thing 😏 i will just have to try not panic, I get skipped beats every day and sometimes at night in my sleep . They said they no them beats have came in clusters and runs then kicked me into AFib and probably SVT . I do panic as I don't like the breathlessness that comes with it . But ime hoping to have a lovely nice rythem eventually that I can get my life back and start exercising again 😊 I believe they don't start to bring you off your meds until 3 months afterwards. Thank you for your reply bob πŸ’—

  • I would urge you to remember that you do still have your life, just a bit different. Try to look forwards rather than back as a positive attitude is so important.

    I do understand ectopics as I average a couple of thousand a day myself(according to my last monitor) although mostly I ignore them as they are pretty harmless. I do agree that they are a pain in the --- at two in the morning when you are trying to work out some knotty problem and they keep you awake. Try deep slow breathing. Make sure that you breathe from you diaphragm not your shoulders and slow it right down to less than six breaths a minute for at least five minutes., This is amazingly successful at stopping ectopics for many people.

    Bob

  • I will give it a go πŸ˜ŠπŸ‘ŒπŸΌthanks for the help bob and I don't no how you cope with all them ectopics 😲my mum gets them but doesn't feel them , o I wish I didn't feel mine . My cardiologist says because I have had them for so long I am tuned into them more now πŸ™„I used to be very active and the meds have slowed me down Ime on 7.5 mg of bisoprolol in the morning and 2.5mg at night . My heart rate is 51 bpm and I have gained some Weight like over night since using the 2.5 at night from the past month . But my problem is if I was to run up the stairs or bend over or eat a bit of food they start off . Honestly it's like they love me 😏 on waffrin as well now got some headaches the first 2 days but eased off now thank god . Ime hoping the sadation is good what they give you while in the procedure coz I don't no how they will keep me still ? Did you stay awake bob ? And did it hurt when they burn ? O I am so sceard of the whole thing . Ime usually very hyper and get talking when ime nervous , hope the sedative is strong . 😬

  • I had general anaesthetic for all mine so no pain apart from a bit of an ache the next day. If you moan a bit they will knock you out I think.

  • Lol πŸ˜‚ I think that might be best all round bob πŸ‘πŸΌπŸ˜¬. They said they will give me some heavy sadation tho . But I have the option to get put under 😊❀️

  • Yes. i agree PMA not always possible but we must keep trying

    Carole

  • @ BobD - Did you have the ectopics before the ablations? And also in that number?

  • Hi Sam 72 - hang on in there - there really so many of us routing for you-I am at my wits end right now not sure who else to speak to or which ablation hospital to contact. Have been

    suffering for 20 years with af at different stages and now have been admitted to hospital so many times that I know the staff personally!!!!!! have decided to make a private appt to be assessed as to (a) am I suitable for an ablat ion and (b) how long is the waiting list?

    Good luck I'm sure we will all get sorted in time!!!!

    Gillyflower13,

  • Hi , I got seen and gave the option on the day at Leicester, they now have a procedure called the novel system ? Other names are toperal F.R.I.M ablation procedure. It's actually got a fantastic outcome for people that are in AFib all the time . if you look on YouTube you can see all about it and it's quite amazing. They said 3 months but it could be a bit longer, Ime on my blood thinners now to get ready for the procedure, I hope I have spelt it right. I am under professor NG . I have PAF that comes and goes , but they said they like to get in and ablate before it becomes more frequent . The mapping system pin points right to the sorce of the problem and has less burning and less time finding the problem . That can also mean better healing afterwards πŸ‘πŸΌthank you for your kind words xx I will let you no how I get on in my next appointment. And I am praying for a good outcome like a lot of people have had with this new ablation πŸ‘πŸΌit came to Leicester in march 2016 . Professor NG was the first to use it in the uk πŸ‡¬πŸ‡§. Also you can pick your doctor and what hospital you want to go to on the NHS ! It's your write x

  • Hope this helps πŸ‘πŸΌalso professor NG does private work to x

  • Thanks Sam72 your comments have been very helpful AND encouraging especially as I have been in persistant AF now for 6 weeks. It is making me very breathless and tired all the time! I live in Northampton so Leicester is not that far away. I rang an AF doctors secretary today - she visits Northampton Gen Hsp part time. Secretary said she would have a word with her to see if she would be able to speed up an appt with her. I live in hopes that as my GP has written to her as well that I may get to see her soon. Have a good Easter and so pleased all is going well with you so far. Xx

  • Aww I calnt imagine how that feels being in it all the time Hun πŸ™ bless you . I am glad i can help you Hun , apparently there was a man in AFib constantly and when they used this procedure it stopped it within minutes!! That was in 2012 ! It's been available in America eaven tho it was an English cardiologist that invented it for about 4 years now . Honestly the YouTube video is amazing πŸ˜‰ πŸ‘πŸΌπŸ’—xx take care and good luck with getting an appointment soon . Keep pushing for your appointment and stay strong girly πŸ™‹πŸΌπŸ˜˜god bless you and I hope you get seen as soon as possible xx

You may also like...