Hi, I'm new to this site so I will give a small insight into my heart condition.
I was born with TOF (Tetralogy of Fallots). Unfortunately I was one of the old generation to have this so I've had further complications. I had my original repair in 1982 then in 1992 I had my first pulmonary valve replacement, then I went on to have my second pulmonary valve replacement in 2013, a pulmonary artery repair and I also had a tricuspid valve repair done which wasn't successful for me.
After my heart surgery I got afib. I was offered the ablation, but after going over it with the consultants we decided the risks for me outwayed the benefits. Plus it would only give me 6 months free from it if it worked, which wasn't likely.
I have pacing wires in ready for that to happen in the future and I have aortic, pulmonary and tricuspid valve leaking. I've been told I'm in heart failure and to live my life now as they can only pro long it for me.
I recently lost my disibilty car and can't get to my gp. (I live very rural). I'm on warfarin, bisoprolol, ramipril, digoxin, butamide and spironolactone.
Over the last week my heart rhythm has been all over the place, especially at night time. (I'm getting no sleep at all).
My heart is aching to the point I'm feeling so tired with it. I really am at breaking point and need to cry. Does anyone else's ache so badly?
My next appointment with my cardiac team was October, I rang last week and now have one the middle of July as my symptoms have gone horrendous lately. I get dizzy, light headed (to the point of fainting), odemea, breathlessness, tiredness, muscle weakness, plus more....
If anyone else has this aching feeling I would love to hear from you. I really don't like ringing my cardiac nurse unnecessarily.