EP at last.

[Nannadee]

Hi everyone. I have just to LGI to see the arythmia nurse again and had the ECG before he saw me and as my heart is now permanently out of rhythm, tho no longer AF, it's now ectopic beats every couple of heart beats, he has said that I now need to see an EP.

It's been a long time getting here but at last I can talk to someone who does the ablation and lay all my fears before him.

I'm still scared but hopefully once I've talked to him I will feel more reassured. And as I'm going to the conference on Oct 4th, I will be able to talk to some of you who have it done and that will help.

[Barry24]

Hi Nannadee,

Look forward to seeing you, I hope to have my ablation soon as well.

Best Wishes

Barry

[Nannadee in reply to Barry24]

Thanks Barry. I'm looking forward to meeting up with you all and sharing stories.

[Rellim296]

Several of us will be there. Do wear a badge with your forum name on.

[Nannadee in reply to Rellim296]

Actually you've just reminded me that I need to ring Tamsin as I've paid for the day but haven't received any written confirmation or proof of payment. Have you?

[Rellim296 in reply to Nannadee]

Good question! I think so.

[BobD Volunteer]

Sit next to me and I will tell all. lol

Look forward to seeing you. Pink carnations to the fore.

[Nannadee in reply to BobD]

I most certainly will Bob, you appear to be a fountain of knowledge.

Think I might have to wear a homemade paper pink carnation as they are not in season are they?

I'm staying in the same hotel as you so will have chance for a drink and a chat.

[BobD Volunteer in reply to Nannadee]

I have you booked in for supper. 7 for 7.30 in reception. I usually bring a dozen Pink Carnations so dont worry

Bob

[Hidden]

I'm the same. Not much if any AF but constant ectopics, so much so you can't take my pulse. Anyhow, my EP has found drugs that work for me and been doing fine for the last 2-3 years. Hope you get a similar result. I had to be quite definite/almost pushy about my drugs. I was started on one, told them it didn't work, then another, didn't work well enough, then a third which was/is great.

Good luck getting it sorted, and great you're seeing an EP.

Koll

[Nannadee]

Thanks Koll. What drugs are you taking?

I'm on Bisoporol 2.5mg twice daily and Flecainide 100mg twice daily.

The AF nurse suggested trying Amioderone but I said no as my pharmacist had told me that this is not a very pleasant drug and can have severe side effects.

[Hidden in reply to Nannadee]

I'm always put on rhythm control drugs because beta-blockers do nothing for me except make me feel very old. But what works for me is not really relevant as we're all different. Flecainide which works for most believe, doesn't work on me; Propafenone works but not too well and affects my mind; Disopyramide is what I'm on at the moment and it's working well but doesn't for others as is evident from this forum.

Koll

[AnticoagulateNow]

I had mine done at the LGI Nannadee (assuming you mean Leeds!). A walk in the park!

[Nannadee in reply to AnticoagulateNow]

Yes AN, it is Leeds General. Just waiting for next appointments.

I assume I will have to wear the 24hr monitor before I see the EP so would imagine that will be my first appointment.

So a lot more trekking up and down between Leeds and Lincoln!!!

[PeterWh in reply to Nannadee]

Ask them if you can get your surgery to fit and take the 24 hour monitor (our surgery has 48hr). That would save a trip.

[DavDug]

Hi! Nannadee

Your remark about Amiodarone is interesting. It is rather an aggressive drug. Certainly got me going and turned me yellow and put me on the loo for a few days (there are better places!). Rang Ward 20 at LGI and resorted to Daltiazem a much softer approach.

Had my second ablation on Wednesday morning just at LGI and recovering quietly here at home. The team at the LGI are just marvellous. You are in good hands in both the Ward and in the Catheter Laboratory (Cath. Lab.). There is no need to, in any way feel, unnerved. They are very patient, will answer any questions, are friendly and when you get your ablation, well organised and relaxed. They cannot do enough for you. If there is anything you need just ask (I had forgotten my towel!!)

It is strange going into any operating room (theatre) and the cath. lab. is more like a computer room so you do feel you are in another kind of world. Please do not worry. When the experience comes, that's what it is, another of life's experiences and a good one to relates to relations and friends. Get well.

Dave.

[Nannadee in reply to DavDug]

Hi Dave. Please can I ask you 2 questions.

1. Did you have a general anaesthetic or sedation and

2. Did you have the TOE done.

[PeterWh in reply to Nannadee]

Thought I'd chip in as well. I had a sedation though out completely for quite a bit of the time. I had a TOE - standard at my hospital.

[DavDug in reply to Nannadee]

Nannadee,

Hi! Sorry about this - just picked up your remark. I had a local anaesthetic or I suppose that would be sedation and I am wondering whether they just relied on the dash of morphine when they went through the septum. Anyway it was all fairly painless although I could feel the catheters moving about inside and it was enough to make you hold your breath when they were ablating.

The TOE was done 3/4 days earlier. That wasn't so bad either and once the anaesthetic spray had been carried out down the throat I seem to drift away so there must have been some anaesthetic put into my arm.

Pleased to help,

Dave.

[PeterWh]

Good result to be seeing EP! On to the next stage!!!

There is a load of information and experience around on this site and I am sure that you will ask!!! You aren't alone. Glad that someone said below what LGI stands for!