Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,056 members • 27,671 posts

All posts for July 2022

Zytiga withdrawal symptoms

I was told I could stop Zytiga without any tapering. So I did so but now I have flu like symptoms. No fever but headache, shakiness, and fatigue. General...

I was told I could stop Zytiga without any tapering. So I did so but now I have...

sleepless-in-seattle

•2 years ago

38 Replies

Pluvicto plus Xtandi

A question for Tall_Allen, j-o-h-n, LearnAll, tango65 and a lot of other guys smarter than me. In Aug 2019 I had a Radical prostatectomy. Nov 2019 I was dx...

A question for Tall_Allen, j-o-h-n, LearnAll, tango65 and a lot of other guys sm...

Rondief

•2 years ago

29 Replies

Between a rock and a hard place

I am 67 years old and ver healthy. However, I was recently diagnosed with PCa . My Gleason score is 9 in one sample and 7 in the other two samples from the 12...

I am 67 years old and ver healthy. However, I was recently diagnosed with PCa . ...

Sanctus

•2 years ago

30 Replies

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Need advice on rampant metastasis.

To catch folks up, my asymptomatic husband had a 9.71 psa in March. MRI in May confirmed spread. Biopsy inJune said Gleason 4+3 an 4+4. PSMA scan in July...

To catch folks up, my asymptomatic husband had a 9.71 psa in March. MRI in May ...

Sewinggam

•2 years ago

26 Replies

Is Protein a PCa Risk Factor?

New study below [1]. The jounal is Complementary Therapies in Medicine, which is new to me. It became full access this year & some might like to...

New study below [1]. The jounal is Complementary Therapies in Medicine, which i...

pjoshea13

•2 years ago

10 Replies

Latest Numbers

For those who have followed my remarkable 18 year journey with metastatic prostate cancer, new numbers are: PSA, Total, 0.05 Testosterone, Free, 78.1...

For those who have followed my remarkable 18 year journey with metastatic prosta...

Hidden

•2 years ago

26 Replies

Pluvicto (LU 177) and radiation worries

it looks like I will finally be able to get Pluvicto soon, but have heard that the radioactivity it leaves in the body can be harmful to others . Do any of...

it looks like I will finally be able to get Pluvicto soon, but have heard that ...

shipoo

•2 years ago

22 Replies

Good news from Urologist

Saw my Urologist yesterday. Had the usual lab work drawn and received the Eligard injection. The Eligard is still doing its job as my PSA is still 0.0 per the...

Saw my Urologist yesterday. Had the usual lab work drawn and received the Eligar...

B8ssist

•2 years ago

3 Replies

Treatment Options for Hot Flashes

The hot flashes that I have been experiencing since starting my ADT treatments (first, Eligard & Xtandi, now Orgovyx) are limiting my sleep and the frequency...

The hot flashes that I have been experiencing since starting my ADT treatments (...

jcarey79

•2 years ago

36 Replies

Xofigo paused

good afternoon - desperately seeking advice My dad has had his 3 round of xofigo , was scheduled for his 4th but platelets are at a 37. he has gotten blood...

good afternoon - desperately seeking advice My dad has had his 3 round of xofi...

danyelpolo

•2 years ago

5 Replies

WHY IS XGEVA SO EXPENSIVE?

I have been on Xgeva for 3 months & my insurance is being charged $10,635 per month, of which they are paying $10,200. It is a monthly injection. I talked...

I have been on Xgeva for 3 months & my insurance is being charged $10,635 per mo...

john4803

•2 years ago

52 Replies

Boring! (In a good way.)

Mr. Spouse21 had bone and CT scans last week. Everything looks stable since the Jan. 2022 scans six months ago, PSA=.15. ALP=40. (My profile of him is very...

Mr. Spouse21 had bone and CT scans last week. Everything looks stable since the ...

spouse21

•2 years ago

12 Replies

Delayed effect of radiation

Has anyone experienced a delayed effect between received SBRT and a lowering of PSA? My MO says it is a real thing, but he didn't go into detail.

Has anyone experienced a delayed effect between received SBRT and a lowering o...

Jvaughan0

•2 years ago

11 Replies

ED injections and OS/rPFS

My Urologist prescribed 30/2 Bimix for ED during ADT. I looked but couldn't find any studies that investigate its effect on OS or rPFS. Are there any? Don't...

My Urologist prescribed 30/2 Bimix for ED during ADT. I looked but couldn't find...

Djangler

•2 years ago

16 Replies

Coco 309, Lupron 3

Update to progress; Halfway through Radiation treatments and all is going well. Exercises are getting harder to complete, but I am persevering. Have taken...

Update to progress; Halfway through Radiation treatments and all is going well...

Scout4answers

•2 years ago

7 Replies

Causes of Death Among Patients With Metastatic Prostate Cancer in the US From 2000 to 2016

This post is prompted by Scout4answers': "Abiraterone and Enzalutamide Raise Metabolic, Cardiovascular Adverse Event Risks" [2] I think an August 5,...

This post is prompted by Scout4answers': "Abiraterone and Enzalutamide Raise Met...

pjoshea13

•2 years ago

53 Replies

HealthWell Foundation | Prostate Cancer - Medicare Access is now Re-enrollment Only

FYI The Prostate Cancer - Medicare Access fund is now accepting grant applications for re-enrolling patients only. . Please note that funding is limited and...

FYI The Prostate Cancer - Medicare Access fund is now accepting grant applicatio...

anonymoose2

•2 years ago

2 Replies

lynparaza

I an BRAC2 Taking Zytiga and orgvyx and prednisone for Gleason 9 statarting at psa 200 in September psa 21--nadir psa 13 recently and rising to psa...

I an BRAC2 Taking Zytiga and orgvyx and prednisone for Gleason 9 statarting at ...

nuc1111

•2 years ago

3 Replies

Lu 177

For those who have gone through Lu 177 treatments! May I ask did you have any side effects? How well it worked, or did not ? My husband was approved for it....

For those who have gone through Lu 177 treatments! May I ask did you have any si...

Fight11

•2 years ago

8 Replies

Lower Back Pain

Many of you have been experiencing lower back pain so I thought that I would post something that has pretty much cured mine. I have no idea what caused the...

Many of you have been experiencing lower back pain so I thought that I would pos...

E2-Guy

•2 years ago

10 Replies

Is it OK to start ADT immediately after biopsy or need to wait until after healing?

My husband has suspicious recurrence in prostate as well as BCR mets in lymph nodes, etc. He has been wanting to start ADT soon to treat BCR mets in lymph...

My husband has suspicious recurrence in prostate as well as BCR mets in lymph no...

TCMG

•2 years ago

12 Replies

Neutropenia

After my RT in March I’m still low in WBC (Neutropenia). Yesterdays result show 2.6, lowest normal is 4.0. The value didn’t change compared to two months ago....

After my RT in March I’m still low in WBC (Neutropenia). Yesterdays result show ...

Nusch

•2 years ago

7 Replies

mCRPR

I’ve joined for my dad who has been diagnosed with metastatic cassation resistant prostate cancer (mCRPC). He originally had a prostatectomy over 10 years ago....

I’ve joined for my dad who has been diagnosed with metastatic cassation resistan...

Hidden

•2 years ago

8 Replies

How infrequently can you be administered Lupron?

I am trying to take less Lupron. It seems if I keep with the normal monthly regiment, my PSA drops below .2 and my Testosterone goes to <3. If I don't take...

I am trying to take less Lupron. It seems if I keep with the normal monthly regi...

Dave78717

•2 years ago

60 Replies

Dutasteride and Apalutamide

Hi to all I remain PSA undetectable since mid 2020 with Lupron injections every 4 months and daily Apalutamide and like everyone on this site, I would like to...

Hi to all I remain PSA undetectable since mid 2020 with Lupron injections every ...

Squirrel71

•2 years ago

29 Replies

NCCN guidelines

Hello friends could used some help. Does anyone know if the NCCN guidelines recognize the use of genomics, specifically the Decipher Assay, as a...

Hello friends could used some help. Does anyone know if the NCCN guidelines rec...

ixolib

•2 years ago

18 Replies

Abiraterone and Enzalutamide Raise Metabolic, Cardiovascular Adverse Event Risks

Abiraterone was significantly associated with an 84% and 37% increased risk for a major or minor diabetic event, respectively, and a 91% and 75% increased...

Abiraterone was significantly associated with an 84% and 37% increased risk for...

Scout4answers

•2 years ago

46 Replies

Why finish Taxotere /Docetaxel treatment?

Brief history- 8/2011 psa 47, G9, open RP. 0 club until 7/2014. Fast forward to 5/2022- no further treatments, psa 57, 5 involved inquinal lymph nodes swollen,...

Brief history- 8/2011 psa 47, G9, open RP. 0 club until 7/2014. Fast forward to ...

Startech

•2 years ago

20 Replies

Steven Rosenberg, M.D., Ph.D.: The development of cancer immunotherapy and its promise for treating advanced cancers

“It's the balance of the aggressive immune reaction against the inhibitory molecules that can prevent that immune reaction that is the holy grail of trying to...

“It's the balance of the aggressive immune reaction against the inhibitory mole...

Scout4answers

•2 years ago

4 Replies

Is both a PSMA scan and a FDG scan needed to check heterogeneity of Prostate Cancer for LU-177 (Pluvicto) treatment in the US?

I have heard in this forum that both a PSMA and FDG scan should be performed to determine if your cancer will respond to LU-177. With the hoped for answer...

I have heard in this forum that both a PSMA and FDG scan should be performed to ...

TJGuy

•2 years ago

9 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for July 2022

Zytiga withdrawal symptoms

Pluvicto plus Xtandi

Between a rock and a hard place

Need advice on rampant metastasis.

Is Protein a PCa Risk Factor?

Latest Numbers

Pluvicto (LU 177) and radiation worries

Good news from Urologist

Treatment Options for Hot Flashes

Xofigo paused

WHY IS XGEVA SO EXPENSIVE?

Boring! (In a good way.)

Delayed effect of radiation

ED injections and OS/rPFS

Coco 309, Lupron 3

Causes of Death Among Patients With Metastatic Prostate Cancer in the US From 2000 to 2016

HealthWell Foundation | Prostate Cancer - Medicare Access is now Re-enrollment Only

lynparaza

Lu 177

Lower Back Pain

Is it OK to start ADT immediately after biopsy or need to wait until after healing?

Neutropenia

mCRPR

How infrequently can you be administered Lupron?

Dutasteride and Apalutamide

NCCN guidelines

Abiraterone and Enzalutamide Raise Metabolic, Cardiovascular Adverse Event Risks

Why finish Taxotere /Docetaxel treatment?

Steven Rosenberg, M.D., Ph.D.: The development of cancer immunotherapy and its promise for treating advanced cancers

Is both a PSMA scan and a FDG scan needed to check heterogeneity of Prostate Cancer for LU-177 (Pluvicto) treatment in the US?

Search posts

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Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for July 2022

Zytiga withdrawal symptoms

Pluvicto plus Xtandi

Between a rock and a hard place

Need advice on rampant metastasis.

Is Protein a PCa Risk Factor?

Latest Numbers

Pluvicto (LU 177) and radiation worries

Good news from Urologist

Treatment Options for Hot Flashes

Xofigo paused

WHY IS XGEVA SO EXPENSIVE?

Boring! (In a good way.)

﻿Delayed effect of radiation

ED injections and OS/rPFS

Coco 309, Lupron 3

Causes of Death Among Patients With Metastatic Prostate Cancer in the US From 2000 to 2016

HealthWell Foundation | Prostate Cancer - Medicare Access is now Re-enrollment Only

lynparaza

Lu 177

Lower Back Pain

Is it OK to start ADT immediately after biopsy or need to wait until after healing?

Neutropenia

mCRPR

How infrequently can you be administered Lupron?

Dutasteride and Apalutamide

NCCN guidelines

Abiraterone and Enzalutamide Raise Metabolic, Cardiovascular Adverse Event Risks

Why finish Taxotere /Docetaxel treatment?

Steven Rosenberg, M.D., Ph.D.: The development of cancer immunotherapy and its promise for treating advanced cancers

Is both a PSMA scan and a FDG scan needed to check heterogeneity of Prostate Cancer for LU-177 (Pluvicto) treatment in the US?

Search posts

Pinned Posts

Latest poll

Aware of our online community's impact, resources & support—please consider helping sustain & expand our group. https://malecare.org/donate

Topics

Archive

Delayed effect of radiation