QoL me Irresponsible : youtu.be/Sl... - Advanced Prostate...

Advanced Prostate Cancer

18,123 members22,306 posts

QoL me Irresponsible

dockam profile image
70 Replies

youtu.be/Sl_wkNQJp5sLoL

Had a Snow Day up here, had to rsch the day as fwys were closed.

Did a 5k today tho, in the snow just cuz🤣

Did a Chicken Marsala cuz saw it on Food TV😋

Re-connected with Lindsay, I helped her finish 2019 NYC marathon 🏃🗽

She's a Grief counselor and runs this site lifeafterloss.co/

Maybe we were meant to reconnect🤔

QoL on Y'all

Randy

70 Replies
dockam profile image
dockam

Yea, I'm a dumb*ss😂😂

5k and 27 outside
dockam profile image
dockam in reply to dockam

Did it babee

NYC marathon finishers 🏃🗽💙
maley2711 profile image
maley2711 in reply to dockam

she seems young!!!!

dockam profile image
dockam in reply to maley2711

Think that she's around 30😊

maley2711 profile image
maley2711 in reply to dockam

no problema...unless windy? 5 k = 3miles? also my daily goal, but other things reduce my 7-day average to closer to 2/day.

Poowater profile image
Poowater

Positivity admirable.

dockam profile image
dockam in reply to Poowater

Mahalo nui loa for thatMy way of uplifting those on here, maybe a wee distraction from the dreck of PCa

Spreading Aloha 💙

dockam profile image
dockam

Her post

She posted about us meeting 😁
fmenninger profile image
fmenninger

yum!

dockam profile image
dockam in reply to fmenninger

Mahalo, it sure was, had to swig Marsala whilst browning the chicken 😁

Zengal79 profile image
Zengal79

Yum! And brrrr! ❄️

dockam profile image
dockam in reply to Zengal79

And Yes to both.Delish dinner and I walked on the plowed asphalt against traffic, so when cars came down I got onto the sidewalk. Had 3 pairs of socks on and all were soaked 😂

Kaliber profile image
Kaliber

go get out there buddy …. If it doesn’t give you frostbite, it’ll make you stronger yayayayaya.

A lot of places, even here, that see a piddling of snow every 50 years or something …. those have a foot of snow on them. So much snow up at China Peak you can’t find the buildings or lifts.

Been to Kaiser for a pile of spinal and lower right quadrant X-rays , along with a urine FRS test for my liver - kidneys. Been busy with that last couple of days buddy.

❤️❤️❤️

Carlosbach profile image
Carlosbach in reply to Kaliber

Hope the results are positive, we're pulling for you big guy

dockam profile image
dockam in reply to Kaliber

Yup, kept wriggling toes to make sure I felt them❄️🤣Oh dang Bruddah Kal

Hope that all is well, you have your trip to the Coast upcoming

Sending Good Vibrations Bro

Love ya man

Kaliber profile image
Kaliber in reply to dockam

it’s ALL gooooooood bruddha , definitely gonna go to the Tides again pretty soon. .

Thanks for the Vibes …. You need to go find some outdoor activities in San Diego or Ensenada Mex.

Love ya back bruddha

❤️❤️❤️

dockam profile image
dockam in reply to Kaliber

Hopefully can get back to Ventura if the weather is good

Enjoy your trip Brother 💙

Kaliber profile image
Kaliber in reply to dockam

❤️❤️❤️

Carlosbach profile image
Carlosbach

You topper! Spinach enchiladas and only 3 miles in the rain here.

Today its pouring, but this is my day for a 7 miler. Guess I'm a dumb*ss too.

dockam profile image
dockam in reply to Carlosbach

I'd rather be in snow than rain. Wonderful my Brother, get er doneDid you get that 7 miler in?

Awesome 💙🏃

Carlosbach profile image
Carlosbach in reply to dockam

yes, and it was uphill both ways

dockam profile image
dockam in reply to Carlosbach

youtu.be/iUODdPpnxcA

dockam profile image
dockam in reply to Carlosbach

LoL here's a lil vid out last night 😂

photos.app.goo.gl/8vMiRZGwL...

Carlosbach profile image
Carlosbach in reply to dockam

Lookout that you don't break a hip. Just say'n

dockam profile image
dockam in reply to Carlosbach

Slipped a bit at times, but stayed upright LoL

Carlosbach profile image
Carlosbach

Respect your attitude as always. Glad that the test and scans just confirm the existing conditions, and didn't reveal any new big bugaboos. For me the tests, exams and scans are always a yin/yang thing. I'm always glad when there is no new bad news, but have to do some internal work to accept that this is my new normal.

Exciting news about you walking more yesterday. Just don't try to keep up with Doc.

I've got facet arthropathy as well and last week a couple of my vertebrae decided to play slinky. Feels like my lower body is disconnected from my upper body, but so far the spasms haven't gone crazy. Oh well, gives me something else to think about besides the cancer.

Carlosbach profile image
Carlosbach in reply to Carlosbach

Simple QOL. I had a moment of zen yesterday. I picked up some snow and ate it. Brings back a lot of childhood memories and was simple pleasure. I ended up bringing some in and using it for ice in my drink. Smooth...

Kaliber profile image
Kaliber in reply to Carlosbach

I ate fresh snow as a child too. Out in the country it was super clean. We collected it for drinking water. In town, after a day or two ….all the new snow turned black … coal was the primary heating fuel back then. You never realized how much soot you breathed in until you saw that. We don’t have any snow here ….. I always try to avoid the yellow snow when I’m in snow tho ……

😂😂😂😂

Carlosbach profile image
Carlosbach in reply to Kaliber

We have 5 acres and its surrounded by trees. My grandson was always proud to make yellow snow, so I've learned to be extra careful

Kaliber profile image
Kaliber in reply to Carlosbach

yayahahahaya ech ……. ❤️❤️❤️

dockam profile image
dockam in reply to Kaliber

youtu.be/shq0PoqGp84

Kaliber profile image
Kaliber in reply to dockam

Zappa was a freak , his dental floss farm one of his best.❤️❤️❤️

dockam profile image
dockam in reply to Kaliber

How bout this: youtu.be/WzzWEeiUf3Y

Kaliber profile image
Kaliber in reply to dockam

classic …

dockam profile image
dockam in reply to Kaliber

youtu.be/N9Jdvbw8AxQ

Kaliber profile image
Kaliber in reply to dockam

Zappa was very cool and funny to boot. I liked most of his stuff …

❤️❤️❤️

dockam profile image
dockam in reply to Kaliber

Yea, really offbeat, I dig him too.\

I watched shows about Laurel Canyon on Amazon Prime and Zappa was there. Then The Birds, Buffalo Springfield, Mamas and Papas, Beach Boys, Joni Mitchell were collaborating in the 60s

youtu.be/C25FVYzQBHY

amazon.com/Echo-Canyon-Tom-...

Kaliber profile image
Kaliber in reply to Carlosbach

thankee buddy …. I’ve accepted all this as my new normal ( like I have a choice yayayayaya ) no new bad news is good for guys like us. 😂😂😂

Doc is my inspiration to get up and walk more …. maybe, some day, I’ll go on one of his easy walks …. or more realistically, walk comfortably out to my truck …or over to a picnic table in the park. Or walk myself to my room at the Tides. That would be really good …… I’d be happy with that for now.

There are a lot of great new fixes for spinal issues nowadays. You’ll probably be able to get a fix for that if it comes to a point of need . That’s good.

❤️❤️❤️

dockam profile image
dockam in reply to Kaliber

Awww my Bruddah Kal, that warms my lil💙So glad to motivate you and anyone else with my QoL posts

I remember that you posted with a pic "Randy made me do it" LoL

Yea, lots going on with spinal therapy nowadays.

Kaliber profile image
Kaliber in reply to dockam

❤️❤️❤️

dockam profile image
dockam in reply to Carlosbach

Yea, dang Scanxiety, haven't gotten Genetic results from that dang biopsy last monthOh crap Brother about the facet arthropathy. Any meds for that

Positive Vibes coming ur way 💙

Scout4answers profile image
Scout4answers in reply to Carlosbach

have to do some internal work to accept that this is my new normal.

Still struggling with this new Normal

Carlosbach profile image
Carlosbach in reply to Scout4answers

Yeah, I don't like this version of nomal.

I've decided to lay on the floor, hold my breath and kick my heels against the floor. Ohhh, that's tiring, maybe I'll just take a nap while I'm down here...

dockam profile image
dockam in reply to Carlosbach

I just have a beer (s) to cope with new normal 🍻😊

CAMPSOUPS profile image
CAMPSOUPS in reply to dockam

Although I often strike up a bowl and or consume infused coconut butter and beer consumption started to decline a lot even before my dx, yesterday was one of those rare times i pulled a beer out of the fridge to go with a pizza. Newcastle beer. Made me think of you. Don't know how many times I've seen you with a good beer and said to myself "I think I'll have a beer(s) tonight" lol.

dockam profile image
dockam in reply to CAMPSOUPS

Oh yum to a Newcastle beer🍺Check these out with former girlfriend 🍺🍻🥃😊 photos.app.goo.gl/uhrMxunem...

CAMPSOUPS profile image
CAMPSOUPS in reply to dockam

Hugh oh.Good Svengoolie tonight started 7 minutes ago. I gotta go.

dockam profile image
dockam in reply to CAMPSOUPS

Have fun, I'm in the ER and all is good, will post here later 😂

dockam profile image
dockam in reply to CAMPSOUPS

3 1/2 hrs in ER and haven't been treated yet, good thing they have free Wi-Fi 😜BTW, not prostate related 💙

GoBucks profile image
GoBucks

Great headline Doc!

dockam profile image
dockam in reply to GoBucks

Mahalo 💙I'm always tryna be clever. The Moderator gave me thumbs up for these, but wanted the QoL at the start, so anyone not interested can skip it

AMIN25 profile image
AMIN25

Certainly enjoying one day at a time --- with all the treatments so far do have have any bone loss issues and if so are you on any on-going treatments for this???? like prolia or calcium supplements etc...

dockam profile image
dockam in reply to AMIN25

I have osteopenia and just doing weight bearing, LOL did 124 miles in Feb

On Calcium, Vit D per recommendations. No ProLia hopefully ever. Fingers crossed 😊

maley2711 profile image
maley2711 in reply to dockam

when Prolia????

dockam profile image
dockam in reply to maley2711

No prolia unless DEXA shows loss of Bone Mineral Density

AMIN25 profile image
AMIN25 in reply to dockam

That's really great - yes prolia is the last thing to start on - once you start there's no going back and the side effects do more harm sometimes that what the drug is supposed to help against... It's surprising so many women (and some men) are given this drug with known side effects....

maley2711 profile image
maley2711

holy crap....no wonder so skinny !!!! or is that a larger than it looks plate? why the skimp on veggies? love asparagus...I only skimp because of $$$$$$

dockam profile image
dockam in reply to maley2711

LoL, been thin whole life, 8 years on Lupron and definitely lost muscle mass. I split the asparagus into three sections as I was gonna make three meals :-)

maley2711 profile image
maley2711 in reply to dockam

Thanks. You have been on ADT for LONG time!! Assume you had a number of DEXAs over that time? If so, where did start re DEXA result, compared to where you are now after all that ADT??

dockam profile image
dockam in reply to maley2711

Hi, here are the latest DEXA scan results comparing the 2021 with 2018So femur lost some bone density and the recommendations are still weight bearing exercises and Calcium and Vit D

Fight on

QoL on

Randy

DEXA scan
dockam profile image
dockam in reply to dockam

Treatment Recommendations (Men and Women):

All Patients: Calcium 1,200 mg/daily; vitamin D 1,000 IU/daily;

Weight-bearing and muscle-building exercise; Counsel to stop smoking.

maley2711 profile image
maley2711 in reply to dockam

doing anything else for weight bearing?

dockam profile image
dockam in reply to maley2711

Did 16 miles on Sat despite dog bite at mile 3 LoL

maley2711 profile image
maley2711 in reply to dockam

16 miles walking?????

dockam profile image
dockam in reply to maley2711

Yea, did 16 miles, it's training for the 28 miler for Make A Wish Foundation to help critically ill Kiddos 💙

Training for 28 mile Make A Wish Challenge 💙
maley2711 profile image
maley2711 in reply to dockam

amazing...would take me minimum 5 hours , plus breaks!! but I'm 74??? but not ADT ,etc!! must be maintaining muscle mass in legs!!!

spencoid2 profile image
spencoid2

We have four feet of snow, not exactly 5k weather. Might get out tomorrow with a track vehicle. Have gotten plenty of exercise the last couple of weeks. I had no idea I could shovel that much snow in my new body :)

dockam profile image
dockam in reply to spencoid2

That's great that you could shovel snow, my lumbar would cry out. I have degenerated L4 L5

spencoid2 profile image
spencoid2

My back is a wreck too but I seem to be able to keep it working with exercise. Unfortunately cycling which is best is not possible when we can barely get a track vehicle out which we did today. My back did rebel but it is good pain, sort of, not bone pain or the likes. Just hope I can get to my next chemo infusion without all that shoveling. More snow is forecast.

dockam profile image
dockam in reply to spencoid2

That's wonderful that you're still able to work it with exercise, we have a bit of snow Forecast Sun to Mon. Gonna get a long hike in this am in prep for the Make A Wish 28 miler in May

Fight on Brother

You may also like...