Update on Pluvicto Treatment and my N... - Advanced Prostate...

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Update on Pluvicto Treatment and my New T-shirt for the Next Infusion

EdBacon profile image
20 Replies

Third day after my Pluvicto infusion.

Noticable reduction in pain today and for the first day since I got home, I got out of my pajamas and off the couch for more than 20 minutes. My cancer has been progressing rapidly since my last PSA check in December around 60 all the way to 243 with no treatments. Still felt like I was going downhill after the infusion, but now I see a glimmer of hope. My appetite is also coming back, I've lost some weight without any treatment. Looks positive and keeping my fingers crossed.

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EdBacon profile image
EdBacon
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20 Replies
Izzygirl1 profile image
Izzygirl1

What wonderful news !! You keep that hope going strong!!! ❤️

EdBacon profile image
EdBacon in reply to Izzygirl1

Thanks! I've noticed even more improvement in pain just in the last 6 hours.

Izzygirl1 profile image
Izzygirl1 in reply to EdBacon

AWESOME!!

GSDF profile image
GSDF

So good to hear!... Let's keep 'er going! 😄👍🙏

EdBacon profile image
EdBacon in reply to GSDF

Thanks, I've had a little nausea today, but Zofran is helping. Feling a lot better today.

dockam profile image
dockam

Wow, and Wonderful results. It's always joyous to hear of a great outcome. Appetite is back, go treat yourself to your fav meal, like Bacon EdBacon 😂

EdBacon profile image
EdBacon in reply to dockam

Thanks! So glad my appetite is coming back although it scares me a little. I can just imagine really pigging out on everything if it continues to improve. I lost weight on the "cancer diet" without even trying and I really needed to lose that and probably more. I just know my body is going to try to get the weight back. On the other hand, we need to keep ourselves nourished.

dockam profile image
dockam in reply to EdBacon

Well, give yourself a lil treat of something that you're craving and just set yourself a limit on quantity. You need your body well nourished, but not overweight esp with like belly fat. Like at the end of Indiana Jones and the Last Crusade "Choose Wisely"

youtube.com/watch?v=oF2UrYS...

utswmed.org/medblog/belly-f....

So glad to hear of your grand results💙

Fight on, Qol on

Randy

noahware profile image
noahware in reply to EdBacon

I lost nearly 20 pounds in Dec without trying. A course of high-dose dex in Jan, and I've gained most of it back. Now I need to go on a diet! (Ice cream, LOTS of it, has been soothing my mouth and throat as I try to recover from oral thrush.)

EdBacon profile image
EdBacon

Thanks! Seems to be getting better by the hour, really amazing so far.

Muffin2019 profile image
Muffin2019

Great news and hope it gets better and better, never give in and never give up, fight on !!!

Fabulous news Ed, let’s all hope it continues this way.

Zengal79 profile image
Zengal79

Here’s hoping for a great Pluvicto response for you! Keep the positive attitude. It will take you far. Best wishes. I know how hard it is to keep moving when you’re feeling miserable.

Univs profile image
Univs

Hang in there! Wishing you all the best!

nobaday profile image
nobaday

I would say keep it up, but even Li177 has its limits. I just had 4th infusion out of 6 this week. Seems to be working. Have a bit of fatigue and some dry mouth and PSA back down to 0.01 from 016.

db1966 profile image
db1966

great news. Was that your first treatment?

EdBacon profile image
EdBacon in reply to db1966

Yes, my first treatment. My pain got worse again, but still not as bas it was before treatment. Maybe some of that pain is the treatment killing the cancer, who knows. Overall still feel better, but really don't know yet if it's working. I had a high PSA of 243 at the start so could take a while to get results.

swwags profile image
swwags in reply to EdBacon

Still hoping for the best outcome for you Ed!!

EdBacon profile image
EdBacon

Update at 10 days from first infusion. I feel significantly better in terms of my energy level and my appetite, big improvement there, but pain came back after a few days. I'm hoping that's not a bad sign because I feel really good other than the pain. I'm wondering if it's just related to the treatment killing the cancer. It does also seem to somewhat depend on the weather.

Anyone else have pain after infusion?

Poowater profile image
Poowater

OneOne must always be positive. I have not had pain. New treatments will always be on the horizon.

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