Recently diagnosed with a
Gleason 9 and the urologists all suggest surgery. I want to consult with a radiation oncologist or other doctor to see if radiation is a viable option for my treatment. Please help me find such a doctor here in Florida or elsewhere.
With the current technologies of accurate spot radiation, why is surgery a top choice?
youtube.com/watch?v=Pya8N78...
What the doctor describes in this video is interesting and a great option, but I still opted for surgery because I wanted to have radiation available for reoccurrence(s). I understand that there is only a certain amount of radiation that one can take as well as no longer being effective.
Hi there, I've completed my radiation therapy at Dana-Farber/Brigham and Women's Cancer Center Department of Radiation Oncology. The six weeks of treatments were a breeze with minimal side affects.
Greetings snugrose,
Would you please be kind enough to tell us your bio. Age? Location? When diagnosed? Treatment(s)? Treatment center(s)? Scores Psa/Gleason? Medications? Doctor's name(s)?
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THANK YOU AND KEEP POSTING!!!
Good Luck, Good Health and Good Humor.
j-o-h-n Tuesday 02/15/2022 11:30 AM EST
The treatment with the best stats is whole pelvic external beam radiation, with a brachytherapy boost to the prostate. There are two kinds of brachytherapy that can be used - "high dose rate (HDR)" or "low dose rate (LDR)" In the hands of an expert practitioner HDR will probably provide fewer side effects. Don't confuse this with non-boost therapy. It also entails at least 12 months of ADT.
In Florida, Matthew Biagioli in Orlando is an expert practitioner of HDR brachytherapy. In Lakewood Ranch, Florida, there is John Sylvester - one of the pioneers of LDR brachytherapy (seeds).
I just read this info about whole pelvic external beam radiation with brachytherapy. I wish that I'd had that information a year ago. My RO put me through IMRT (which was a breeze anyway) after chemo but here I am less than a year later getting abiraterone added because PSA is taking off. I wonder what salvage radiation possibilities exist?
It depends on what was treated before and where any distant metastases may be.
Oh, and try to get a PSMA PET scan to rule out distant metastases first, before you put yourself through all this.
snugrose My DX at age 47 was also Gleason 9, Group 5 with full involvement of the prostate from my biopsy. At UCSF, my surgeon strongly recommended against surgery and Dr. Meng the former Chair concurred. I finished in Dec 2021 with whole pelvic External Beam Radiation + HDR brachytherapy, along with two different hormonal treatments (Zytiga + Prednisone & Lupron) through July 2023. So it's definitely treatment used more broadly for advanced PC w/o bone involvement. Did your MO also recommend a dual hormonal treatment plan?
I have talked a couple times with Dr John David at Tampa General Hospital. My initial impression is that he is the real deal. Check him out.
I have used Dr Nanda in Orlando for the past 3 years. I highly recommend him.
Agree w Nal. I am going to Moffitt. They use a multi discipline team approach to review your case periodically and agree on best option for you. Plus they have on-site specialists and equipment to provide whatever treatment is needed.
Without ANY doubt - Dr Tim Williams in Delray Beach.
If he is within your reach distance-wise, Dr. Matthew Biagioli with AdventHealth in Orlando is truly excellent. He was my husband's RO in 2019. He consults with selected other radiologists in the state if that's what you need.
Datoli center in Sarasota has a great reputation for Pca radiation treatment.
Please help has anyone here done photon radiation 
Seeking help with Radiation Therapy
Radiation oncologist recommendation in Las Vegas 
RO Consult /Radiation or wait for Molecular Tests
