This is my christmas miracle! - Advanced Prostate...

Advanced Prostate Cancer

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This is my christmas miracle!

Costarica1961 profile image
49 Replies

Some of you know my 6 year jouney. I recently went to Omaha to visit with Dr. Nordquist. I went with some reservations, although optimistically, At the time, I arrived in omaha my Psa to my dismay Was 561. Just coming off my 16th chemo rounds of cabataxal and carboplatin. I felt and looked horrible. Well today my psa is 1.6 one month later. I was prescribed xtandi and zytiga combo. It may be short lived, but I dont care, its amazing..... some of the quru's on this forum may be able to articulate the why, all I know is I feel better than I have in two years. This may have bought me some time until I get on Lu 177 in january or Februar. MERRY CHRISTMAS TOO ALL.

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Costarica1961 profile image
Costarica1961
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49 Replies
andrew61 profile image
andrew61

16 rounds of Jevtana and Carboplatin ! I just did my first and I already feel lousy.I hope the Xtandi and Zytiga combo keeps working for you and that Lu177 is successful.

ellie2211 profile image
ellie2211

Merry Christmas to you and yours! I'm glad you're feeling better and i hope it continues

mrscruffy profile image
mrscruffy

Congratulations and Merry Christmas. Are you from CR or do you live there?

Hallelujah Costarica! Feeling better Psa running , awesome . You deserve a break . Thank you for this news. It’s the greatest present for us all! Also this gives Hope to me and others that might be on the same path someday ! Pura Vida . Y Gracias a Dios! 🙏🥳👏🥂

I was born in Omaha in 1961 ..I’m happy that you had good luck there? 👏👏👏🥳

j-o-h-n profile image
j-o-h-n in reply to

I purchased some steaks from Omaha Steaks via the mail in 1961......I'm still waiting for the delivery - Do you think they're aged by now?.....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 12/24/2021 1:35 PM EST - Happy Christ's birthday tomorrow.

in reply to j-o-h-n

I’ll make a call? 😎✌️

addicted2cycling profile image
addicted2cycling in reply to j-o-h-n

snail mail ??

j-o-h-n profile image
j-o-h-n in reply to

Omaha 1961 both of us ..... Maybe we're related?

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 12/24/2021 2:00 PM EST - Happy Christ's birthday tomorrow.

in reply to j-o-h-n

By that day! 😂👏🏼👏🏼And in Christ🙏❤️

Boywonder56 profile image
Boywonder56

Greatnews.......enjoy

With 16 rounds of Jevtana plus Carboplatin, you might have knocked the hell out the androgen-independant cancer cells which allowed the more hormone sensitive ones to come back a bit, raising your PSA. Hitting them now with an anti-androgen double whammy might work really well. That's pretty much the idea behind alternating chemotherapy and anti-androgens.

I know someone on this forum who told me that neither Zytiga nor Xtandi worked alone, but he got 9 more months out of doing them together.

Hope it works for you.

JamesAtlanta profile image
JamesAtlanta

Wow! What a Christmas miracle! Congratulations!🎄🎁🙏

James

Shooter1 profile image
Shooter1

I have a full bottle of Zytiga at home. On Xtandi my PSA climbed for 6 months then radiation treatment which led to 6 months of down ward trend. Now latest test back up. May add Z when I get home. It's worth a try. Wish me luck. Life Is Good , especially when you feel good.

in reply to Shooter1

There was a clinical trial that showed they were safe to use together, although there was not a statistical difference in outcomes (not sure what was measured). As far as I'm concerned, as long as it's safe why not go for it if you can?

leebeth profile image
leebeth

Fantastic! Congrats! I am curious as to where you are planning to get Lu-177. Sounds like a great plan!

CurrentSEO profile image
CurrentSEO

Congratulations and Merry Christmas!

Can you please let us know what doses of Xtandi and Zytiga you are taking?

Are you currently on Lupron or similar ADT or just Xtandi and Zytiga?

Surrender1 profile image
Surrender1

Buenos Dias, Costarica 1961, from Playa Coyote. I hope you continue to heal. Christmas blessings and a salute with an Imperial Light.

Jp2sea profile image
Jp2sea

Merry Christmas! Enjoy

tayninhtom profile image
tayninhtom

Glad you're better. I've visited Costa Rica and loved it. Have a healthy holiday season.

Rickmartin1948 profile image
Rickmartin1948

Your Xmas Miracle is a Xmas present for all of us.

Good luck with your Lu 177 and let us know how it goes

diamondrn profile image
diamondrn

Merry Christmas and Praise God, Costarica1961.

Cooolone profile image
Cooolone

A Merry Christmas indeed!!! It's brings joy to read of success, however it's measured for those of us in this fight!

God Bless and Godspeed!

Pianodude profile image
Pianodude

Merry Christmas!

Spyder54 profile image
Spyder54

Oh Man….Merry Christmas indeed. 2 strong level 6 drugs in unison seems to be some of the latest thinking. We are all a giant experiment. Glad your tough body could handle both. Did you also have a Lupron or Firmagon injection??

Devtony8 profile image
Devtony8

Merry Christmas to all. I Start lu 177 in January in Maryland

Scout4answers profile image
Scout4answers

Great news! Good health to you in the New year

GREAT News - Merry Christmas

keepinon profile image
keepinon

WOW. That's great! Good luck with LU 177. Merry Christmas!

Hailwood profile image
Hailwood

Thats such a tough road you have come through. Just a big "way to go" my friend and what lovely news for a Christmas season.

APL1881 profile image
APL1881

That is wonderful news. Merry Christmas!

Lasered profile image
Lasered

Awesome news! Merry Christmas!

j-o-h-n profile image
j-o-h-n

Bueno, Bueno y Bueno......

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 12/24/2021 1:38 PM EST - Happy Christ's birthday tomorrow.

619eh profile image
619eh

Your journey and mine are very similar. I had 6 rounds of cabataxal then 3 of cabataxal and carboplatin. (after everything else) I kept feeling worse, psa continued to climb, my tumor grew larger to the point of ureters becoming restricted. Soon nephrostomy tubes were my only choice. Much better than self cathing 5-6 times daily. Miserable and tired I finally was referred to Dr. Nordquist. 12 hours after my visit, I felt better and continue to get better every day! My psa was 392 and haven’t had one yet.(only two weeks since my visit) I was put on Zytiga and xtandi combination. Previously I was on Lynparza for 2 1/2 months.( damn near killed me) My 8 year adventure will continue thanks to Dr. Luke!

rogerandme profile image
rogerandme

Take every good day as a blessing and enjoy it. None of us know what the future will bring with this disease so if you feel good and the treatment is working give your thanks to the universe and thank your lucky stars....

Thats perfect, I also recently started on Xtandi, I guess I am one of the lucky ones and do not have all the side effects all others are getting, I feel great as well. Congrats to you, keep us informed on how it goes.

Here's wishing a Christmas miracle for every one of us. 😀👍

Realistic profile image
Realistic

God bless you on your Journey sounds like your doing fantastic. Enjoy xmas stay positive from SheilaFx

Grumpyswife profile image
Grumpyswife

Happy to hear of your great results. Dr Luke suggested the combo of darolutamide and abiraterone for my husband as a bridge to Lutetium. His PSA also nosedived but has now leveled off. Hope yours keeps dropping to zero or close . It was a great feeling.

Back2future profile image
Back2future in reply to Grumpyswife

What was the combined dosage of Xtandi, Zytiga, prednisone?

Costarica1961 profile image
Costarica1961 in reply to Back2future

4 zytiga in the morning. 4 xtandi at night.

Costarica1961 profile image
Costarica1961 in reply to Grumpyswife

Yes, its a good feeling I am now at 1.6 hopefully it last until Lu 177.

jfoesq profile image
jfoesq

FANTASTIC!!!Very happy for you.

Costarica1961 profile image
Costarica1961 in reply to jfoesq

Thankyou

Bestdays profile image
Bestdays

Best news ever.

Costarica1961 profile image
Costarica1961 in reply to Bestdays

Yes it is. Thankyou!

Daddyishealing profile image
Daddyishealing

Love hearing this. Bravo to your strength and tenacity. Keep kicking butt! Lol merry merry christmas. Ty for sharing this joy!

Costarica1961 profile image
Costarica1961 in reply to Daddyishealing

Bravo! Bravo! At 1.6 now

Back2future profile image
Back2future

What was the combined dosage of Xtandi, Zytiga, prednisone?

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