as most of you know...I still look(and mostly feel) pretty great. BUT my PSA is just under 1000 and my last scans showed cancer in 97 % of my bones. So the picture is not pretty. (kinda reminds me of "The Picture of Dorian Gray". Everyone keeps telling how good I look and how I don't "look like" I have cancer...oh, and how I don't look 64.
HOWEVER, My treatment options have fizzled out...I've done almost EVERYTHING...radiation(originally and again more recently when I only had 3 cancer spots showing up), HIFU, Chemo, (chemo again, recently which dropped my marrow's production to almost nothing so I just did one infusion). Provenge, Xgeva, Lupron (now castrated for real since my dog said it was no big deal...and he was right). The last 8 years have been some party! REALLY (well not so much at times)...especially when my urethra has clog up and I have to go in for catheterized to clear up the blood (from the scar tissue left in my urethra around and near my prostate area...from the lovely radiation and HIFU)
All this to say...I spoke with Dr. Onik this week and he sounds great...and he's within walking distance (almost) from my house in Fort Lauderdale. He says he would (as he did for himself) create a individualized "immunotherapy" from taking some of my cancer cells with a biopsy and using that to create something that is injected back into a cancer area and having it spread the "immunotherapy" and (in his case with stage 4) create a durable cure. He says that there is appx 30% chance of this...and that there are some cases where it just helps and some where it ...has bad side effects.
That said....Please help me if you are familiar with him...or have had treatment with him. It's all "out of pocket" and I feel so blessed not to have any real "heirs" we care about (and my Husband's life expectancy is very low--Lewy body Dementia) ...so I have the money to spend and then some...but I want to make sure it's a wise move.
For Picture...I'm going to add my bacon/egg/roll I had for breakfast. Not a real exciting thing....but it was SOOO delicious.