XOFIGO Update after round 4 - Advanced Prostate...

Advanced Prostate Cancer

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XOFIGO Update after round 4

BigTex3 profile image
15 Replies

Good morning everyone. I received a call yesterday postponing my 5th dose of Xofigo for a month. My WBC is too low .74 even though I’ve been getting booster shots each week for the last 6 weeks. I have to admit this is a little frustrating to have to wait at least another month to have a PET scan to find out how the Xofigo is working.

Has anyone else had this experience? I remain hopeful it’s being effective. You all remain in my prayers as we continue this fight.

Hope you all have a better day today

BT3

15 Replies
tango65 profile image
tango65

Unfortunately bone marrow suppression may be associated with Xofigo.

accessdata.fda.gov/drugsatf...

BigTex3 profile image
BigTex3 in reply to tango65

Thanks Tango for the information.

tango65 profile image
tango65 in reply to BigTex3

Best of luck with the treatments.

Tall_Allen profile image
Tall_Allen

Booster shots of Neulasta (pegfilgrastim)? Hopefully, your WBC count will come back up.

BigTex3 profile image
BigTex3 in reply to Tall_Allen

Thanks TA. I’ve been getting shots of ZARXIO.

CAMPSOUPS profile image
CAMPSOUPS

Hang in there sir. I have been following you. Wish I had some help to offer you.The experiences of your journey might be of help to me some day so I appreciate you going thru RA-223.

Just quit if you need too of course.

Yes, I too wish you could get a scan sooner to see the progress.

I am optimistic especially in light of your reduced pain (aside from the increased pain for a week after each infusion) that the mets are "shrinking" as they say.

Wishin for the best outcome.

BigTex3 profile image
BigTex3 in reply to CAMPSOUPS

Thanks for your words of encouragement. We have no choice but to stay the course and play the hand we’ve been dealt. I thank God each morning for another day.

Avusly profile image
Avusly

My experience shows a severe weight and appetite loss. As far as any blood tests everything looks normal.

BigTex3 profile image
BigTex3 in reply to Avusly

Thanks for the reply. How many treatments have you done so far or are you finished with all 6? I’ve also lost 30lbs since starting. I do attribute to radically changing my diet and loss of appetite.

Avusly profile image
Avusly

Completed 4 courses of treatment.

Avusly profile image
Avusly

I am about to take the fifth treatment in 5 days subject to blood test results (tomorrow).

BigTex3 profile image
BigTex3 in reply to Avusly

Good luck on your lab results. I hope they are good and you don’t have an issue completing the cycle.

Yorkielover2 profile image
Yorkielover2

Sorry about the bump in road! Husband just had his 3rd Xofigo and has been able to cut down on pain meds!Will follow you for your progress with this treatment! Prayers

MateoBeach profile image
MateoBeach

Well you can know thatYou are getting the maximum

Benefits of Xofigo that your body can currently tolerate. Can’t do More than that. Scan results in due course, so stay the course in peace amigo.

BigTex3 profile image
BigTex3 in reply to MateoBeach

Thanks Mateo. I hope you are doing ok.

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