Interested to find others that have been going to Dr. Scott Tagawa @ Cornell in NYC.
My cancer is at a new turning point. My PSA has been on a slow rising for at least 10 months now, from undetectable to, as of last month 3.3. I was on Zytiga 2.5 years , Lupron since chemo (ended 11/2017) and Xgeva since chemo. However I stopped Xgeva 4.5 months ago because of I now have MONOJ.
This past 02/2021 I just had 20 rounds of radiation to the prostate. After a CT scan revealed my prostate was very large and I been having heavy bone pain in my crotch area and from my hips down to my knees on both legs, also my shoulders.
Now , more than a month after radiation, crotch area pain is gone. Radiation Onco also targeted the lesions in my crotch area.
Radiation Onco hooked me up with Dr. Scott Tagawa in NYC. BTW, I live in South NJ.
I had a Zoom meeting with Dr. Tagawa last week and he is suggesting 4 different trials treatments at Cornell.
I was just wondering if anyone has any experience with Dr. Scott Tagawa ?
Any feedback would be great!
Thanks Eric
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I've traded emails with him. He is excellent! I hope you qualify for one of his radiopharmaceutical trials. He is using ligands that may be more sensitive and specific than the ones that will be approved.
Thanks Tall_Allen. From what we had talked about in the meeting, I think I qualify for any of the above 4, I just have the hard decision to choose the best one for me. SCARY
Thanks Nalakrats, After my zoom meeting with him, I felt I would be in very good hands with Dr, Tagawa. That's the other thing, I live in NJ and Not to sure if my insurance will cover anything because I will have to go to NY?
My husband hasn’t seen Dr. Tagawa; however, we have been impressed with his discussions on UroToday. We were impressed by the hospital when my husband received MRI guided hypofractionated radiation there. We travelled from SC for that. They seem to share some faculty with MSK which is nearby. You might ask Dr Tagawa about the study TA mentioned
I recently participated in the ARV-110 trial with Tagawa. After 8 weeks I was taken off the med as it was not effective for me. Now considering another of his trials. He is recommending for me a combo of AC225+ Enzalutamide + Keytruda.
I live in central NJ, and it is a bit of a commute to Weill Cornell. I suggest you get a late morning appt and avoid the heavy morning traffic into NYC.
Thank You Hoping for the best1I'm still on Lupron every month and I forgot to say after I stopped Zytiga, I did start Xtandi on12/26/20 and Dr. Tagawa suggests I stop it. He feels as though its doing nothing, He is suggesting for me the 225 AC- J591 and also the PT 112
He also recommended to me AC225 + Xtandi + Keytruda. I am re-evaluating whether I should now have proven chemo combo of Carboplatin + Cabazitaxel before going on to my 3rd trial participation.
I guess I’m not the only Jerseyite (Manchester) traveling to the Big City. Even though I retired from UMDNJ Rutgers Medical School, my local oncologist sent me to Dr. Herbert Lepor at NYC. Both my Blue Cross/Aetna Medicare advantage plans covered the visits and procedures
Pretty funny! Eight years ago we went from Tom’s River to the FL Keys! Does that count? When people ask us where we lived I would tell them 2 miles from where the Hindenburg blew up!
Dont08759, Thank You, Could you please tell me your process that you took to find out your insurance covered you in NYC, I only have Horizon Blue Cross, Blue Shield that I fund myself.
I was told up front that Dr. Lepor’s group inside the NYU Urology dept. had opted out of Medicare! From that I knew not only were they out of network, but the fee schedule was very different! I am a retired NJ state employee so my BC/BS was a bit different. I was scheduled for a focal cryo ablation and told the cost, about $12,000.00. I was advised by a thoracic surgeon I used to work with called BC/BS explained my situation. Because of my radiation and surgery for rectal cancer 30 years earlier, I was not a candidate for radiation or a prostatectomy. They told me to document everything and they would consider. I did and they paid 90% that NYU accepted. I’ll admit it took me 6 months of weekly phone calls. After that Dr. Lepor advised me to change NYU urologists to one that accepts Medicare which solved future procedures costs. The state changed providers and I am now with Aetna who reaches out me all the time...
I have AETNA through work and I have been very happy with the coverage. During the entire first year starting before my RP the case worker was calling 1 a month to make sure I was getting what I needed. She even greased the wheels when the insurance company was giving the MO trouble with approving the Zytiga.
Same here. Having worn a surgical mask for 41 years, I loved the purple one. I did upgrade by swapping the metal strip over the bridge of my nose with one from a N95 that’s elastic went south...
No, I used my degree in animal science for 41 years surgical research here at UMDNJ. I’m just a day sailor now, my cruising days a pretty much over....
Hello, We think very highly of Dr. Tagawa, my husband was on the Vision trial with Dr Tagawa's team and now is on the AC224-J591 trial. My husband got 14 months from LU 177 drug and since taking AC225-J591 two dosages in February, his PSA is down to 1.40 . We travel from Massachusetts to NYC to be treated by Dr. Tagawa. Good luck.
I've seen his name many times on this forum.... so if you want to see/read the members comments just to a search on the doctor's name. If I recall correctly most/all comments where in favor of the doctor. There are a few short videos of the doctor on the net.... His educational background is spot on..... I think you have a Gem there..
One thing I found very interesting that Dr. Tagawa said after asking me about my chemo treatment I had in 2016. I told him I had 10 rounds of taxotere at high dosage's. I believe my onco based my treatment on the Stampede trials?I could be wrong about the name, but I was told by him that based on my age @55, I was very healthy and had mets on the pelvis and spine that this method of BLASTING those little demon cells right out of the gate with a high dose of chemo was better for me than only having the typical SOC 6 rounds at a lower dose and ramping it up at the end of those 6 rounds. Dr. Tagawa told me he never heard of that and basically it was wrong to do that? During my chemo, I did my research on chemo treatments and I did find, and READ about that treatment. I mean he was like "WAHAT" 10 rounds.
I remember making a post on here about the 10 round high dose treatment and I got many replies say YES , that's the way to go. I was kinda shocked by his response.
really, my husband sees him and we have stated we want aggressive treatment and preemptive medicine, the SOC needs to be more personalized earlier than later…something to think on….
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Finally, my MO's treatment plan:, no Triplet Therapy. Let's do Eligard, XTANDI, Radiation, XGEVA
Cyberknife is in my future
Has anyone used BookiMed to get treatments (Lu-177) over seas? 
Scott Lulu700 Slimpicken Whimpy 
