Finally got the ALL GO I'm approved f... - Advanced Prostate...

Advanced Prostate Cancer

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Finally got the ALL GO I'm approved for the LU-177 Trial in Omaha with Dr. Luke

greatjohn profile image
80 Replies

I have been loading our SUV...packing and getting ready for the big day (tomorrow) all this week..and I just finally got the email that I was 100% approved for trial. The way It was set up...I have my first injection on Monday morning there...I needed to leave tomorrow to make it there with a day to rest before the injection. We had decided that we would go on a road trip EVEN if I wasn't approved for the trial...because we had to be ready to go. I just got the news at 4pm today and we're heading out for Omaha for six months in the morning. I love this place, the doctor, and his entire staff. Hope springs eternal.

gJohm

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greatjohn profile image
greatjohn
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80 Replies
NWLiving profile image
NWLiving

😀😀😀safe travels!!!! Yahoo!

Jmr11820 profile image
Jmr11820

Heartfelt congratulations. Go get em!

Jmr11820 profile image
Jmr11820

Is he the only physician in the place?

greatjohn profile image
greatjohn in reply to Jmr11820

I think so, but he is a force of nature. Amazing how much time he spent with me going over my case history from his memory. Two full hours.

in reply to greatjohn

A good sign

in reply to greatjohn

That’s good!

6357axbz profile image
6357axbz

Congrats gj. Pls keep us informed of your progress. You’re a trail blazer!

greatjohn profile image
greatjohn in reply to 6357axbz

A new day, new journey!

Deadstick profile image
Deadstick in reply to greatjohn

GreatJohn,

The very best of luck and outcomes to you....

dublin1717 profile image
dublin1717

Good to hear your update. Stay well and safe.

Some guys have all the luck.

tango65 profile image
tango65

Have a great trip and best of luck with your treatment.

Dban profile image
Dban

Brilliant- May the force of Lutetium be with you.

greatjohn profile image
greatjohn

I’m humbled, thank you.

RyderLake2 profile image
RyderLake2

Hello, I had the opportunity to listen to Dr. Luke a few years ago at the PCRI conference in Los Angeles. Trust me, greatjohn you are in good and capable hands. Here is an Irish Blessing, if I remember it correctly from my youth, to help you on your way:

"May you have a long life full of gladness and health,

With a pocket full of gold as the least of your wealth,

May the dreams you hold dearest be those which come true,

The kindness you spread keep returning to you!"

There are lots of us on Health Unlocked interested in your Lutetium story so stay in touch. Good luck and God bless!

greatjohn profile image
greatjohn in reply to RyderLake2

Thanks...will do

Jvaughan0 profile image
Jvaughan0

Safe journey. Your spirit and determination are emotional uplifting as always.

greatjohn profile image
greatjohn in reply to Jvaughan0

You’re too kind. Thank you so much.

Daddybearblue profile image
Daddybearblue

Godspeed and prayers 🙏. Arlis

Shooter1 profile image
Shooter1

Wow, You made it. Now make it work for you and maybe send a little my way.... PSA rising and looking at options...Doug

greatjohn profile image
greatjohn in reply to Shooter1

Thanks Doug, I’m sending positive vibes your way!

Kaliber profile image
Kaliber

Good luck warrior gj .... keep us updated. Pulling for you brother. 💪💪💪❤️❤️❤️

noirhole profile image
noirhole

Congratulations I know the waiting was agonizing but everything has fallen into place. Good luck, safe travels and relax. Happy for both of you.

benninger profile image
benninger

Congratulations and best wishes...along with lots of prayers

GoBucks profile image
GoBucks

Excellent news. Best of luck in Omaha.

Marcev profile image
Marcev

I hope for the best!

Right On! greatjohn. Your shining attitude is inspiring to me always . May the Lu-177 serve you well . Best of luck to you in the heartland . God bless brother!

Flash64 profile image
Flash64

Awesome news! Good luck!

Collarpurple profile image
Collarpurple

❤️. Follow the yellow brick road to wonderful the new treatment

topofthemountain profile image
topofthemountain

Best of luck. I have had too LU-177 infusions in Australia. After my first infusion my PSA dropped from 50 to 3.5. Have not got my second results. Little or no side effects. Fanastic.

Newyork6264 profile image
Newyork6264

Good luck. Hope it’s a wonderful experience with a wonderful result.

TonyS58 profile image
TonyS58

Godspeed, greatjohn.

TwilightZone profile image
TwilightZone

I'll be praying for you.

Haniff profile image
Haniff

Enjoy and stay safe 😷

My best to you and loved one 🥰

Haniff

konichiwa12 profile image
konichiwa12

Fingers crossed for you in Newcastle, England!!!

Costarica1961 profile image
Costarica1961

Congrats

HealThyb profile image
HealThyb

I got the song Omaha by Counting Crows in my head. “get right to the heart of matters, it’s the heart that matters more”

Wishing you an amazing journey and heartfelt recovery.

ctflatlander profile image
ctflatlander

Best wishes and have a safe trip.

RJ-MN profile image
RJ-MN

May your body accept, process, and eliminate the lutetium in health-giving ways, greatjohn. Strength and Health to you!

Channelhomec profile image
Channelhomec

God bless I pray it all works out for you

snoraste profile image
snoraste

Great news. Wishing you best of luck. Keep us posted please.

vforvendetta profile image
vforvendetta

Go get 'em John!

Lavender22 profile image
Lavender22

Excellent.

dress2544 profile image
dress2544 in reply to Lavender22

Very good news. All the best

dress2544 profile image
dress2544

Very good news. All the best

SuppWife profile image
SuppWife

Congratulations and Godspeed! ❤️🌻

ocman profile image
ocman

Hey brother, glad to see good things are happening!

Pianodude profile image
Pianodude

Best of luck!

REOeburg profile image
REOeburg

Great news greatjohn! Keep us updated and we will keep you in our prayers!

Psa73 profile image
Psa73

Great news, God's speed!

Magnus1964 profile image
Magnus1964

Good luck, John!!!

greatjohn profile image
greatjohn in reply to Magnus1964

Thanks

tallguy2 profile image
tallguy2

Congratulations and best wishes!

MateoBeach profile image
MateoBeach

Happy travels together. Great adventure awaits. Omaha!

wagscure259 profile image
wagscure259

Prayers lifted up for a great sojourn and result in the heartland of America. Peace and healing.

Hey John: Wishing you a wonderful voyage to Omaha. This forum really needs a success right now (I feel), and I am hoping it comes to you. Have a safe trip, and my non-religious thoughts and prayers are sincerely with you. Mark

Mikeski profile image
Mikeski

Great news! Wishing you the best. 🙏

bellyhappy profile image
bellyhappy

God be with you. Looking forward to hearing your success.

dadzone43 profile image
dadzone43

all positive thoughts go with you, John.

GoBucks profile image
GoBucks

Omaha! Omaha!

DMohr011 profile image
DMohr011

Safe Travels John - you will do Great!

Chivato646 profile image
Chivato646

great news...thoughts and prayers...travel safely...

Spyder54 profile image
Spyder54

Great attitude, and Attitude is Everything!!We wish you much progress toward remission with LU-177. The US needs this approved soon! Show us the way Brother🙏

16starsky profile image
16starsky

Wishing you every success in your treatment ! Kim and Clint in the UK xx

GeorgeGlass profile image
GeorgeGlass

I wish you look and send my prayers for a good result.

Is the trial you are doing still open? and is it open to castration-sensitive, chemo naive patients?

greatjohn profile image
greatjohn in reply to GeorgeGlass

I think it requires being castrate resistant

GeorgeGlass profile image
GeorgeGlass in reply to greatjohn

Ok thanks. It’s interesting that several trials and they all focus on the same demographic. The good news is that it will help you guys. I hope you do very well.

j-o-h-n profile image
j-o-h-n

O-MA-HA........Omaha Indian word meaning “upstream people". So let's hope and pray your results are upstream....

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 04/20/2021 7:19 PM DST

Aodh profile image
Aodh

Best wishes for your journey, take good care of your self all along the way

Hugh

treedown profile image
treedown

Sounds great, enjoy the Midwest. I will look forward to your updates.

timotur profile image
timotur

Onward, forward, bon voyage, best of luck!

strummer profile image
strummer

that is FAB!! Keep us posted please

Maleko808 profile image
Maleko808

Great news!! Hopefully you can get the results you need. And hopefully we can get this treatment elsewhere in the US.

Chiquis profile image
Chiquis

I wish you the best. Praying for you.You are not alone🙏

siouxbee19 profile image
siouxbee19

Fabulous news! Keeping you all in my prayers...you, your SO, your doctor and everyone involved in your journey...🕊️🙏❤️

shipoo profile image
shipoo

Hi greatjohn. I just saw your post and am hoping for some feedback as I am thinking of scheduling an appointment with Dr. Norquist to see if I qualify for one of the trials utilizing LU177. Have you had this treatment? Was it successful? What about side effects? Are you glad you entered the trial? Any info you can give me would be great. I originally was told I could get early access to LU177 at the University of Chicago, but was just told I did not qualify because I have not had chemo.Shipoo

greatjohn profile image
greatjohn in reply to shipoo

Personally, the LU 177 treatment was a huge mistake. Something like 10 to 15% too badly on it. I was one of those. To really find out how it went for me go to my profile and read some of the posts I did upon getting there and doing the treatment. Now I’ve been forced to go in for blood transfusions for low hemoglobin and IV incredibly low death like platelet count. It’s been a very difficult period of my life since I had the one LU177 treatment back in April Of this year. That totally doesn’t mean it will be good for you are bad for you. It’s good for a lot of people. Just read my postings on my profile. All the best, G John

shipoo profile image
shipoo

After sending you my inquiry about your trial with LU 177, I saw the post where you advised that he treatment did not work for you. So sorry you had that result and also sorry for not seeing your follow up post indicating that LU177 did not help. Did not mean to be insensitive Shipoo

greatjohn profile image
greatjohn in reply to shipoo

LOL. And now I just saw your response here so you did see what I was talking about. That doesn’t mean it won’t work great for you check it out and I hope it does!

spinosa profile image
spinosa

John - you ok?

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