Made my decision. Cleared my body of all traces of chemo and radiation. The cancer has jumped to my liver.
In making my QOL decision, my MO believes that more treatment would put back in hospital and my shorten my life.
I have elected to go to home hospice and have quality, not sicknesss. Today is day 3.
Had the Eucharist Sunday for first time in 3 months. Hugged my wife snd two daughters for first time in 2 months.
Watched TB12 earn another trip to Super Bowl with friends..
Gastro issues all set. Just going fight physically, mentally, spiritually for the remaining time. Want to meet my first milestone - see KC graduate from nursing school in may 2021 and Liv from URI in 2022. Will keepyou all updated.
Satuit Mike
Written by
SatuitMike
To view profiles and participate in discussions please or .
I had cryoablasion on my spine/ribs at Mayo 4/5 years ago. Worked wonderfully as here I sit. I do realize liver mets are worse than bone, but its worth a try. Its relatively pain free procedure because they put you out. Im a believer.
Many blessing to you on your journey. It was a tough post to read, Im sure for most of us.
Your MO may not have any additional drug available but just like Ken recommended I would consult a doctor who offers SIRT for liver mets. There should be several clinics which offer this treatment because it is not limited to prostate cancer.
Hi SatuitMike,
That's a very tough decision to make, but I totally respect your right to make it.
I too made the very difficult decision to stop conventional treatment back in early 2017 due to severe side effects and have only been taking Essiac tincture and CBD oil since then.
Four years later I'm doing fine and have not regretted that decision.
I'm not suggesting anyone else should follow my example. We're all grownups capable of making our own decisions. I'm just reporting what I've done and my results so far.
If you click on my avatar picture you’ll be able to read my bio and some posts I started about those supplements and my own cancer journey.
I'm the first to admit that there's no peer reviewed scientific evidence to show that Essiac tincture or CBD oil are effective, but I've been taking them for 4 years and am very happy with my results so far.
When I stopped conventional treatment in early 2017 due to severe side effects my oncologist assured me that my PSA would keep continually rising and my mets would spread further.
However, 4 years later my PSA is virtually the same as when I was first diagnosed December 2016 and my 2020 PSMA PET scan was better than my December 2016 PSMA PET scan.
Distant metastases had either resolved or reduced in size.
I still see my oncologist every 3 months so he can keep a track of my progress.
He is amazed at how well I'm doing as it's over 4 years since I was first diagnosed. He can't explain it and tells me to keep doing what I've been doing because it seems to be working for me.
Here's a link to the post I started on this forum about my own cancer journey.
Day 2. GI working. My daughters Kathryn has dedcided to be my primary care taker. She has taken leave of absense from BWH. All beds, etc ended up on first floor. It appears she can be paid by workers comp.
From your use of a capital E in Eucharist, I am assuming you are Catholic as am I.
I admire your faith and I can only hope I have the same strength and conviction that you are showing if encountering the same situation.
I also assume you have given your situation a great amount of attention and did not come to this decision in hast. I will not comment on that since the decision is a personal one and you and your family are resigned to the eventual outcome
You are blessed to have a daughter who is a nurse. Daughter's are special and nurses are even more special. My mom was a nurse. My wife is a nurse and my daughter started nursing school this year.
That is a difficult decision to make but you have clearly thought about it and made a decision that is right for you. I wish you well on this next phase of your journey. Please keep us informed how you are doing.
So wonderful to have this time with your daughter by your side. I am curious about what peace or other mental clarity would arise from your decision and acceptance of life as it is? First: Good luck to your team on the Super Bowl.
thanks for sharing this Satuit Mike ... it's inspirational ... i think your decision is a very smart one ... i like to think i'd do the same ... will offer Mass for you ... best wishes ... Nous
Breakfast and cleanup from 7 to noon. Medicine is be managed by my visiting nurse. But my daughter hands out medicine as my primary care taker. Hospice nurse showed. Nice you lady.
Sat in wheel chair from noon to five. Paper work snd some discussion with insurances. Some chicken parmigiana for dinner. Quite day
Mike Martin visited. Spoke on phone with old college room mate. Nice to catch up.
Satuit = American Wampanoag Indian word meaning "cold brook". Well Mike I wish you a long long comfortable stay with your family and friends... Just remember to down shift when you're riding that wheelchair....
I live in Scituate Ma, home os Satuit Brook. When i started a company in early 2000s, the name fit part of my business plan. Water resources. Plus always thought it was cool.
I just looked it up on google.... if you're living in the lighthouse don't lean out the window, unless you like swiming in the Atlantic (different kind of "resources").BTW looks beautiful..... Take care and enjoy the family....
Day 5 part a. Did not sleep well and got up early into whell chair. About 8 am. More fatigue set in anf the boys snd the fire station hzd to give me a hand.
10m to noon. Roger Ogden and Dave Ferreria stoped in great visit. Met my NA Maria. Waiting for my accountant to finalize taxes. Get back to on the rest of ny day.
Day 6. Again sleeping is an issue. Awake from 1 am to 7 am. Nod off, eat breakfast and nap. Got in wheel chair for hour with new lift seat. Very uncomfortable. Need thin gel seat. My sis came by great visit.
Day 7 Hospice at home. Gi tract normal . Got up your with large BM. So all is workin. Hospice nurse will be here to review meds. Home aide to assisst with bath. Got my rosary done. I can feel some of the burden being lifted. Great btreskfast. Will follow up later toda
Hey Mike, I am a newby and feeling my way around the community, but i just wanted to say that I came across your post, read all of the heart-felt replies and I got teary-eyed from the pouring out of support and love coming from the members. I can tell that you are a kind man and well respected. My heart goes out to you and your family. God Bless You and may your days ahead be AWESOME!
Jane, Thank you for your comments. I have been fighting this disease for over seven years. I have tried almost everything, and am know fighting for a Quality of life that allows me to enjoy my family, faith, friends, as i wind down. No surrender
I met with hospice yesterday. Not quite ready to start but getting close. I admire your decision. I hope you are comfortable and most importantly your quality of life exceeds your expectations. Peace.
Week 2 and day 1. I am eating, drinking, urinating, and defecating consistently. Relief.
I have been receiving alot of visitors which reminds me without their support i am less. Then if we are together.
My brother brought his family to see us and for the first time ever he blessed are meal.
Frank and Paul came by the five of us where able to receive the Eucharist. Another huge spiritual accomplishments. Is 5:45 pm and i am dog tired and have a zoom with the animal’s in a bit. Wonder if I will fall asleep.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Moving on to hospice care
Starting Hospice
Time for Hospice
Going on hospice
