Recurring Prostate Cancer

[Daveeeuk]

Not sure if I am in the right group. I have recurring prostate cancer which was treated with RT in 2004. PSA however never went below 0.72 (in 2008) and was up and down around 1 until 2017 when it started rising. Since then it has been up and down between 5.35 and 7,53 and is currently 6.26. I was told i would have to have Hormone treatment if it reaches 10 but im not sure if this is the right thing to do. I am 71 years old and have never had any symptoms.

[Tall_Allen]

You're certainly in the right group -welcome.

It seems like you need some diagnostic info before deciding how to proceed. Your first step should be to get an Axumin PET/CT scan. That will tell you where the cancer is. If it is still in your prostate and/or pelvic lymph nodes, you can still be cured. Prostate cancer in your prostate can be cured with FOCAL brachytherapy - they just put some extra radiation in the spot where there is a recurrence. If you are in England, I suggest you talk to Peter Hoskin at Mt.Vernon Hospital in Northwood. External beam radiation + limited-term hormone therapy may be able to cure any cancer that has spread to the pelvic lymph nodes.

If the Axumin PET/CT shows distant metastases, hormone therapy would be a good next step.

[Daveeeuk in reply to Tall_Allen]

Thank you for your reply. I was told by my consultant to wait till PSA hits ten before considering hormone therapy. As it is bouncing up and down around 7 this year I have just tried to put it out of my mind hoping I will die of something else and putting off considering HT until I have to. Does this make sense?

[Tall_Allen in reply to Daveeeuk]

I just told you what makes sense to me. Did you read it?

[Daveeeuk in reply to Tall_Allen]

Yes I did read your suggestions and thank you again for taking your valuable time to reply. I forgot to say I have had a recent MIR scan with a no trace result. Another reason I had decided to just let it run its course,

[Tall_Allen in reply to Daveeeuk]

MRIs can't show nearly as much as PET scans. Ask for the Axumin PET scan.

[Daveeeuk in reply to Tall_Allen]

Thank you I will ask when appointments are resumed. My main question however is if it is worth doing this or even considering HT with my PSA bouncing as it is around 5-7 and being 71 year old? I would hope to live to 80/85 and if I can have several years before going on HT I would be happy. I have no problems or symptoms and do not wish to have any by having further treatment.

[Tall_Allen in reply to Daveeeuk]

You should NOT do HT until AFTER you've had an Axumin PET scan. It will invalidate the PET scan if you do.

If you are metastatic, you are quite wrong to believe that because you feel fine now, it will continue that way.

[Desertcactushighways in reply to Tall_Allen]

Thanks for stripping everyone here from hope.

[Tall_Allen in reply to Desertcactushighways]

Dealing with things as they are is much more beneficial to your health than entertaining false hopes.

[JolleySprings in reply to Tall_Allen]

Yes! I respect your shooting straight!

[MateoBeach]

Welcome Dave. T_A’s advice is spot on and he is the most informed and up to date on the clinical science of PC. Keep us informed. Paul

[j-o-h-n]

Greeting Dave in the UK, We are not picking on you, the following is sort of a formality to help you.

Please tell us your bio. Age? Location? Treatment(s)? Treatment center(s)? Scores Psa/Gleason? Medications? Doctor's name(s)? Thank You!!!

All info is voluntary, but it helps us help you and helps us too. If you do respond copy and paste it in your home page for your use and for other members’ reference.

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 11/04/2020 6:05 PM EST

[Daveeeuk in reply to j-o-h-n]

It was 16 years ago that I had RT at the age of 55 in Preston England under Marcus Wise. My PSA was 15 at the time Information on my record card says it was a Gleeson 3+3 stage T2 (grade2+3). Biopsy was 5 positive of 8. I had 40 sessions 3D Conformal RT ? Never had meds.

[j-o-h-n in reply to Daveeeuk]

From your history I would say you're in the wrong group (lucky you). You may want to join the "Prostate Cancer Network" here in H.U. Enjoy yourself....Don't forget to laugh....

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 11/05/2020 6:00 PM EST