Discovery at a Japanese University Ho... - Advanced Prostate...

Advanced Prostate Cancer

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Discovery at a Japanese University Hospital may help Advanced Prostate Cancer Patients

elvismlv123 profile image
12 Replies

"Advanced PCa has an unexpected weakness that can be targeted by drugs". The drug is called thymoquinone. I want to know if anyone has read this study and please post your opinion on it.

October 07,2020

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Tall_Allen profile image
Tall_Allen

It's just another lab study (one of thousands). This one found that it may be worth doing a test on mice with a SUCLA2 gene deletion. I guess if you know you have that gene deletion, you might be excited about it.

sciencedaily.com/releases/2...

elvismlv123 profile image
elvismlv123 in reply to Tall_Allen

Thank You for your comment. A friend on Natural Prostate Cancer Support group sent it to me and I thought it might help someone on this site.These studies are quizzical.They help no one but may give a ray of hope.Someday a cure.

LearnAll profile image
LearnAll

I will keep taking some black seed oil because it has thymoquinone in it. This SUCLA2 gene deletion type PCa will respond. But, even if I do not have that type, Black seed oil still is beneficial because it is anti oxidant, anti inflammatory and this way, it will help all types of PCa.

Karirudy profile image
Karirudy in reply to LearnAll

Is it ok with Xtandi?

j-o-h-n profile image
j-o-h-n

Greetings elvismlv123,

You've been with us since October 2018, would you please be kind enough to give us your Bio. Age? Location? Scores psa/gleason? Treatment(s) to date? Treatment Center(s)? Meds? Doctor's name(s)? Thank you!!!

All info is voluntary but it helps us help you and helps us too. If you do respond it would be a good idea to post this response in your homepage for your future reference and for other members to view.

Keep posting here...... we can use you.....hang tough...

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 10/09/2020 9:40 PM DST

elvismlv123 profile image
elvismlv123 in reply to j-o-h-n

hi john,thank you for inviting me to tell the group my bio. You have some heavy hitters here including yourself. I came here because my group was disappearing and to follow Patrick O'Shea

elvismlv123 profile image
elvismlv123 in reply to j-o-h-n

I was dx'd in 2004 with a PSA of 4,7 and a biopsy showing a GS of 3+4. My tissues samples were reviewed by 3 pathologists at well respected hospitals. I did several scans which showed I wasnt metastasized. I went to 7 drs to select a tx protocol.I was close to getting RT. I gave up on it for many reasons and selected ADT. I chose the Leibowitz protocol or triple ADT. My doctor is Dr Lawrence Kemp in NYC who follows that protocol.I did 18 months.First 6 was Dr Kempf is not like any other Dr.He the best Dr and friend I have ever met. Dr Bob Leibowitz did a retrospective study of 99 patients who were treated with his protocol. They were all doing well except one who ha a PCA similar to Breast Cancer.Hes a Harvard trained medical oncologist and a great man.

elvismlv123 profile image
elvismlv123 in reply to j-o-h-n

I took prostasol two capsules per day and my PSA dropped in half after 3 months of use. I started in January 2004 and went for a 2nd biopsy at Sloan Kettering on 68th st in NYC. It was brand new at the time and it was March 2004.I did a 2nd biopsy and recvd lousy results indicating my GS was now 4+5. Tissue samples were sent to Johns Hopkins hospital and a Dr Oppenheimer checked my slides. He called me up and asked me if I was on Lupron. I said no...I took Prostasol.No comment. After that my treatment options became tougher and had worse outcomes. I sent the same slide to the Dr Donald Gleason Institute in VA .His opinion reversed the 4+5 back to 3+4. However it didnt matter as the last reading prevailed. Anyway I based my TX on 3+4. Theres more to my story...

elvismlv123 profile image
elvismlv123 in reply to j-o-h-n

I hope you are not sorry you asked me to post my bio.

j-o-h-n profile image
j-o-h-n

Never sorry.... we are here to help.....Just wish to mention that Dr Lawrence Kemp in NYC is listed as speaking Greek and attended a University in Athens. I happen to be Greek also and the doctor's name is not a typical Greek name, but he may of changed it (many Greeks do, usually shorten the name), Which doctor did you see at Sloan Kettering (68 St NYC), which is where I am being treated? It would be a good idea to copy your post and add it to your home page for future use. Keep fighting the good fight and keep posting in H.U.....BTW where are you located?

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 05/10/2021 10:26 PM DST

elvismlv123 profile image
elvismlv123 in reply to j-o-h-n

Dr James Eastham second to Scardino..Hes ok but a little too doctor for me.Sloan is pissing me off right now re my sisters breast cancer in particular a Dr by the name of Neil Iyengar.She is bipolar and has BC mets. They gave her Ibrance which almost killed her. She is now bedridden and wont do a goddamned thing to help her. they are abusive and aggressive and disrespectful of me as he caregiver of 40 years.All those critical comments that our guys have of most drs who dont know you what from you know what.I would not go to Sloan for aa thing these days. Their bureaucracy is frightening and their ability to do frontline medicine is impossible. They are out of touch with the Medicaid system in NYC and managed long term care.I am not whistling Dixie.These people are really messed up and I have evidence to prove it.That is if you want to hear it. My doc is on e 68th street. He worked for D r Robert Atkins at his cancer clinic in NYC. When Dr Atkins died all thoise drs disbanded and opened up their own practices.Dr Kempf has a relationship with Dr Robert Leibowitz in California. Dr Bob has a office called Compassionate Oncology in LA, I think. He was treating PCa patients with triple ADT at the time 2004.He was having success with it and a lot of people's anxiety went way down including mine.I and anyone I could find. I joined the Natural Prostate Cancer Support Group online in 2004 and I was talking to everyone I could find. It is how I found Dr Bob who was considered a quack.

j-o-h-n profile image
j-o-h-n

Dr. Eastham was the surgeon that performed my RPD. I found him to be competent, friendly and caring and so is everyone I've met in Sloan. From doctors to clerks... Dr. Eastham performed the old "open" RPD (not robotic) since I also had two hernias repaired at the same time. I have an excellent Oncologist (Dr. Michael Morris) for my Pca and a great Melanoma Oncologist (Dr. Margaret Callahan).I'm sorry to hear about your dear sister's treatment at Sloan, since as far as I know it appears to be an anomaly of their staff. It may be a good idea to notify the CEO at Sloan and explain your dealings with his organization and get some help for your sister.

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 05/11/2021 11:06 PM DST

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