I’m guess I’m getting Americanized from spending all these hours here and reading a lot of American articles, so now I want to get an online second opinion for international patients from the US for my father (oligorecurrence discovered this May, removed prostate 2017, G-9, two small bone mets pelvic and iliac, PSA 0,2 in June 0.14 in July, first dose of Firmagon yesterday, 7 weeks of VMAT-radiation to bed + mets, 3 more weeks of radiation to go)
I was thinking M.D. Anderson?
Also I thought of Mayo Clinic and Dr Kwon? (Although their second opinion system is quite complicated?)
I’ve been reading about the late Robert Amato, perhaps a doctor that good?
Also: since its me doing everything (with the permission of my father) if it is easy to access it is a big plus for this technical idiot! Entering the Mayo Clinic as a Swedish patient felt like (as we say in Swedish) ”a Rififikupp” and they only answer my questions with automatically generated answers that dont really answer my questions.
Also of interest: just being able to talk to a doctor on the phone, paying of course, that would listen and answer all my questions. Since my father is deeply depressed and angry about the way he has been trying to get help for years and being dismissed I would love an optimistic but still professional doctor. The Swedish doctor we met before going to Finland said ”If you had checked this before you might have lived longer” and I wanted to just scream (he has been asking the doctors for ten years and everyone has simply replied ”no need to worry” since his PSA has been low). But I still prefer a socially incompetent but skilled doctor to someone just telling us what we want to hear. But since my father is so depressed I would love for him to hear SOMETHING a little promising. Perhaps I’m asking for the moon.
Any recommendations highly appriciated!
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TheTopBanana
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Didn't you notice that he was PSMA PET/CT scanned with a PSA of only 0.2x,leading to the detection of the two bone metastases. In other parts of the word, including the USA, he would had been BSed with arguments of the sort: "very low detection at this PSA" or "it will not change anything in your treatment" and such crap. He would had been considered an M0 until these and other metastases attained dimensions detectable by scintigraphy or CT.
He has an exemplary, up to date, treatment IMO.
Swedes and the Nordic countries in general, to include Finland, are far ahead in this field. Why is his daughter trying to get a second opinion from the US? It won't hurt and possibly help under the placebo effect, i.e. if the patient feels that something is good for him, there is a possibility that it will, even if this something is just some mgs of fructose.
Little explanation to you and to her ,i recommend her to start make contact with Germany Oncology every thing she pay will be returned by the social insurance.
I do live in sweden too.....and i like my country..... My experience is my Urology in sweden takes information from me because i was treated in Germany what happened here yes... The urologies and the oncologies in sweden recommended to take away my prostate gland ,the germany urology and the german oncology they treated my prostate cancer they succeeded to cure the cancer BUT few of cancer sells were running out to my Lymphnodes and i treated too now the oncology in germany reccomnded Bicalutamide150mg until 6 months and what it will happen after i do not know!!!!!!! The politician in sweden pay 5.2 billions dollar to the other countries as help these money should be invested in all cancer treatments ,the cancer dr.s by the order of social departments are not uppdated if you compare it to Germany ,we in cancer treatment in sweden is not better than Philipine state.Philipine state they have
Lutetium 177 PSMA but not here in sweden the question why....!
yes Finland have advanced treatment if you are a rich man.
The facts many Amercican cancer patients visiting Heidelsberg in Germany why.......! can't USA make treatment like Germany ?????? PSMA Galuim68 /PET/CT
was developed by the team from the university hospital in COLOGNE in Germany my urology is a member of this team all of them they have a professor degree.
I did a contact with an ameican professor he told me this devepment of PSMA Galuim 68 etc was the best compound in the entire world.
When a patient in sweden have prostate gland enlargement which i had in 2007 my house DR, he told me not to do it in sweden BECAUSE they will cut the 2 nerves and the seminal vesicle away and you are out of order as a man.
In this case i did my operation with Green laser and it was the most successful operation,if you like i have the adress and the DR.PHD in Urology and the clinic name.
I hope these sheep who called politians in sweden to change their mind and concentrating on the health and good treatment for the swedish people.
Thank you
I made my narration according to my experience.
I forgot somthing when you call the urology or oncology in sweden they tell you by phone that your dr, decided to make PSA after 6 months or 1 year and you are in the
risk zone.There are private clinics in sweden thanks """ svenskprovtagning#### swedish sampling you pay 25 us dollars and you make your PSA test all over sweden.
I would gladly take any contact information! Both Sweden and Germany is of interest. My father was treated wrongly in Sweden (they cut wrong on the surgery, according to another doctor the surgery might have been one of the reasons the cancer spread) so that is one reason why we want to find something better now.
I prefer to write in english Please to let the members understand :
Okej i will give you the telephone number and the name and you tell DR.Stephan Neubauer that the information it comes from George from sweden who have been treated in your clinic.I want to mentioon a very imported information about the refugees doctors i do not trust these dr.s from the middeleast they are butchers....!
If you need a radiation oncologist, we did a phone consult with Amar Kishan at UCLA and really liked him a lot. He took time to explain everything and never rushed us. I felt better after speaking with him, because it's easy to second guess.
i’m just throwing this out there- if you have a specific question, just email the doctor online. it’s so easy to find their contact info. when i first found out about my husband’s intraductal carcinoma, i emailed all the top docs who had experience with this particular entity! and to my surprise almost all of them emailed me back immediately! still write back and forth with emmanuel antonarakis! i didn’t waste their time with a lot of info- just got my question across & they responded with their expertise. pretty amazing! just like our resident experts on this site! ❤️
I’ve only tried this once before with an interesting research I found that I wondered if it might benefit my father , I e-mailed the main researcher with a question, but the reply was very brusque. Perhaps it’s also that English is not my first language, not being as cognizant with the nuances of the language. But I will definitely try this as once! Thank you Very much for the recommendation‘
Perhaps I have been spending too much time with this because I’m feeling like I’m e-mailing the top celebrities on the planet. I can’t believe that their e-mails are this accessible!! Nervous, but hopeful.
Haha! I know the feeling! As for my emails, I was just straight to the point. I included relevant details about my husband's case (less than a paragraph) & then asked my question. Yes, their responses were sometimes only one line, but sometimes that is exactly what I needed! Other times, they were interested to hear more, and I gave them more info. Good luck!
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