Is this the end

[Blair77]

So Mike has had this cancer for a little over 3 years. His last PSA had doubled from 12 to 24 in one month. He has small cell so this isn’t a great indicator. They did 1 cycle of yervoy/ nivo on March 9th. The last week he’s had a terrible cough, can’t clear his chest and has started to need a walker to walk. He also needs my assistance to get up from a sitting position. Latest chest X-ray showed the nodules in his lungs had grown from 16mm to 2cm and have increased in number. His doctor says the “plan” is to give another cycle of the yervoy/ nivo combo on 4/21. I’m not sure Mike will make it till then. The doctor gives me no ideas about if this is the end or not. I’m lost...

[Hidden]

We need some help and a miracle for him . You have my prayers. 🙏

[Blair77 in reply to Hidden]

Yes. A miracle would be nice 💖

[Hidden in reply to Blair77]

🙏🙏🙏🙏🙏🙏❤️

[Blair77 in reply to Hidden]

Thank you🥰

[Hidden in reply to Blair77]

Hang in there Blair.🙏✌️

[Pftahoe77]

🙏🙏🙏🙏

[Hidden in reply to Pftahoe77]

🕊✌️

[Tall_Allen]

I hope he can remain comfortable. Lung problems can make one feel terrible.

[LearnAll]

Sending prayers to almighty for you, your husband and the two lovely children.

[Tub111]

Prayers and strength to both Mike and you 🙏❤️

Sheri...

[Rooked]

Since he has double negative prostate cancer, read this article and ask your MO about dovitinib. Mention “Right to Try” law and see if this could help along with Opdivo and Yervoy. Good luck!

cancer.gov/news-events/canc...

[Blair77 in reply to Rooked]

Thanks I will mention it to his oncologist

[j-o-h-n]

My thoughts and prayers are with you all. Damn Pca...... (if ever I wanted to curse... it would be right now)

j-o-h-n Thursday 04/09/2020 10:19 PM DST

[Blair77 in reply to j-o-h-n]

Thank you

[Hidden]

Prayers coming your way. Peace & Love.

[Fanger1]

Blair & Mike - keep fighting we're rooting for you😺

[depotdoug]

Keep fighting,fighting,fighting. My prayers to God our Father for Mike and you Blair. Best of care and comfort. Touch his body with a renewed burst of energy.

Doug

[16starsky]

Sending all my love and prayers to you both.

Keep strong.

Kim xx

[MateoBeach]

Also I am sending my prayers and silent support, holding you both. You have been fighting with ferocity and devotion. Only you (together) can decide when it is time to stop, ok to let go of fighting so hard and focus on comfort. We honor and support you just the same.

[Collarpurple]

Yes a miracle and loads of prayers

[Collarpurple]

Everyone here wishes that they had that

Miracle to help your husband and your family May God be with you and give you the strength during this time .

[ctarleton]

You might want to review Section 5.6 "Immune-Mediated Pneumonitis" of the Prescribing Information for Yervoy at this link, and then discuss with his doctor(s) BEFORE getting the next infusion.

packageinserts.bms.com/pi/p...

(Maybe test to rule out a potential COVID-19 infection symptom, too?)

Please do not hesitate to "call in the cavalry" of others to support him and you in this difficult time if things continue to rapidly trend downward. Sometimes a good personal physician, a hospitalist, a hospital social worker, some palliative/hospice care specialists, etc. can do a lot to take much of the burden of suffering and pain from both a patient and a primary caregiver in such difficult times.

Hopefully, he may begin to recover soon, or during a break from treatment(s).

With the kids at home, there are always comparable dynamics happening, too. Getting some family support for you and them is/will be another area where "asking for help" sooner rather than later can have benefits.

Still, it is so hard. It is so painful. It is so sad. It is so tiring. It is so frightening sometimes.

One day, hour, 10 minutes at a time...

Big Hugs from all of us.

Charles

[Bird8]

Hi Blair,

I just recently started reading your posts. I’m not on HU very often. I wanted you to know that you and your beautiful family are in my thoughts and prayers. Our paths are very similar. I am also married to a Mike with small cell pc. My Mike is now 47, dx at 44. We have two boys. It is a gut wrenching journey. Sending lots of love! 💙

Nikki

[jmwife330]

Hi , my 53 year old husband is going through the same thing. My heart breaks for you. i just joined because we just found out from a liver biopsy that the cancer has new cells. Because of virus everything is over phone. He said it is neuroendocrine. Meeting with doc Friday to go over everything. Maybe you can help me with this. Stay strong my friend!!!

[Hidden in reply to jmwife330]

My husband was diagnosed with small cell(neuroendocrine) prostate cancer,found in a mass on his sacral nerve. He has had 6 radiation treatment to that lesion and to the right inguinal lymph nodes. He has had adenocarcinoma of prostate, had radical prostatectomy then radiation. His psa remained undetectable so we were thrilled. Then this. This mutated form of prostate cancer secretes no psa. There are very few men,a few wives,but few on these forums. Dr.Beltran at Dana Farber in Boston says it occurs in 20 to 30 percent of men who have been on chemical treatment of prostate cancer. Mind my French,but it is a bitch of a cancer, very ferocious and little effective treatments. I'm so sorry that your husband has this. Nothing good about it.

[jmwife330 in reply to Hidden]

Hi, as wives we need to stick together . We started a three day treatment on Monday. Feel blessed that i do live in Boston. His cancer is in all the bones , liver and adrenal gland. I am thinking of your family ! It is such a hard road to go down. Stay strong and positive ! We need all the the positive energy around us that we can get right now!!!!!

[Hidden]

Much love and prayers go out and upwards for you both.

[RalphieJr64]

I pray for a miracle for myself and others every night. I'll include Mike in my nightly prayers because we all need a miracle for a healing of this horrible debilitating cancer.