I'm laid up in bed today with the most common coronavirus (i.e., a cold - but it sounds so much more dramatic to call it a coronavirus these days). Because my brain is foggy from cold meds, I can't concentrate enough to write, and I certainly can't go out in public. So I was looking at some old threads and some of the replies from others. I found (to no one's surprise) that there was a lot of good information, and also a lot of well-meaning misinformation. I also noticed that sometimes the OP responded to me, but did not hit the reply button, so I never saw the reply. I am humbled by the number of followers I have on this forum, and I try hard not to abuse that trust. I want to reach out to as many as I can.
•I try to get through as many new posts as I can to which I feel I have something to offer. I usually spend about 3-4 hours a day on this. I am often as brief as possible in my replies, especially is I am on my iPhone at Starbucks. It is easier to supply references, including articles I've already written on appropriate subjects.
• I do not read the responses of other people on this forum, unless they respond to me directly. I could spend all day qualifying or correcting posts, and I just don't have the time. This forum is huge and active (much bigger than others I've been on). This also means that I may be duplicating exactly what others have said.
• I do not usually read posts about new studies. I'm probably already aware of them, at least the ones that matter. I also don't think it serves a useful purpose to quote a whole abstract that can be read more easily on a link. I also think it does patients a disservice to quote a study without assessing the quality of that evidence. I do recognize that those who quote abstracts are trying to give others hope. But over time, it only adds to the confusion. Every day, I see 30 or so such studies, most of which are irrelevant to patients.
• I save my responses to long posts for last. I can check the profile for the background info, so it helps if the profile is complete and updated.
• I am here to help people, so I am more apt to respond if there is an actual question about therapy or support.
So, if you want my attention. it has got to land in my inbox. That will happen:
• the first time you start a thread
• if you hit the reply button after I respond
• if you private message me
I hope this didn't come across as conceited - I actually think I don't know a lot more than I know. I've been blessed to meet many amazing doctors, who always add to my knowledge. I've even been more blessed to meet many patients who have graciously allowed me to play some role in their prostate cancer journey. I continue to learn even more from them.