Saw Oncologist today, my PSA has been steady 0.028 since the Chemo ended, today it's 0.70. I had the surgery (subcapsular orchiectomy) in Nov so maybe my body just needs to settle from the trauma. I asked about Testosterone levels, he didn't know and he asked for another blood test.
He did say the Chemo will last 9 to 15 months, so it's not unexpected change. He checked my MRI that the pain specialist ordered, he said it shows same as PET scan, the damage is widespread, the pain specialist is back from sick leave and will see her on the 3rd Feb
I will see him in 3 months, if PSA rises about threshold of 2.0 he said they will try Radium 223 as my bone Mets are so extensive.
Thoughts?
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Zetabow
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Sorry to hear about the PSA rise but I did recently read that orchiectomy has better long term results than ADT. Hoping you do have just a transient condition from the surgery!
That is the reason I opted for the surgery, my MO said he thinks it's my best chance taking into account how aggressive and the amount of progression. I have no issues with the mental side, it's not like I would ever be able to have an ADT holiday. I do what I do not for myself but for my children.
I always appreciate your input, you seem very knowledgeable on current treatment options. MO said I responded to Chemo far better that he anticipated, with the level of advancement to get PSA down to 0.028 from 1386 is amazing.
Finished chemo (taxetere) Feb. '17. Been on Xtandi since chemo #5 of 9. PSA steady at 0.12/0.13 for 18 mo. Yesterday results came in at 0.08 (a fluke??) and all other blood chemistry is the best it has been in the last 5 years. Only on 80 mg Xtandi acct. acute side effects with 160 mg dose. Wonder what's up, but not complaining.
My day just gets better. Went to Dentist because of toothache, she didn't find anything wrong and did an X ray, she then gave me flash drive with X ray and said go and see Oncologist ASAP without going into any details.
Just an update, after first round of Radium 223 my blood counts went a bit crazy and the had to delay the second round a couple of weeks, this second round they gave me Filgrastim injections used to stimulate the production of Granulocytes and my blood counts kept stable. I've had a great improvement in pain levels and reduced my Opioid intake by half, which I'm very pleased about.
My PSA started climbing in the new year which concerns me. Thoughts please?
Very happy to hear you're getting some pain relief! Too bad the PSA isn't dropping as well. Unfortunately I don't have any great advice to offer.
Less need for opioids is still a victory worth celebrating. Keep us posted on your progress. I and I'm sure others are following your journey and we care deeply about you and your victories and setbacks.
Thanks you have to take any positives you can with PC.
I took a trip to ER last Sunday. My left foot and lower leg inflated like a balloon, I was reluctant to go but a Dr friend insisted I to go to ER to rule out Thrombosis which they did and sent me home 3hours later. A couple of days rest and keeping feet elevated sorted things out. I was away on family weekend, it was hot and I was on my feet a lot more than usual. Although I am still slightly concerned as parts of my foot an ankle the bones still feel tender to touch, almost as if I had twisted my ankle (which I didn't). I have my next infusion on Thursday so I will mention it, maybe the RO can come up with an reason.
Oh, the joys of having the body go all wonky during treatment. I'm sure your ankle is just fine, other than the inexplicable swelling and resulting collateral damage. I can say from first hand experience it's really difficult to differentiate side effects from symptoms and not become paranoid.
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