New member, some info about me - Advanced Prostate...

Advanced Prostate Cancer

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New member, some info about me

addicted2cycling profile image

Hello all. Just joined as another PCa guy with Gleason 10. No ADT so began treatment immediately with a bilateral orchiectomy ( makes my bicycling long distance much - MUCH more comfortable ;0) ) then cryoablation and immunotherapy injection. My doctor offered the cryo/immuno treatment with it being a first patient experiment that wife and I agreed to try. After treatment I started bi-weekly testosterone injections, unusual for Gleason 10 and despite muscle loss, endurance loss, power loss, still bicycle 100+ mile rides 2 to 3 times a week made easier living in SW FL. Hope of competing in my 3rd Ironman Florida for my 70th birthday later next year and my 24hour bicycling event in February goal of 350 miles.

Main interest is Quality of Life not quantity of life. Imperative for Quality is my healthy diet, plenty of exercise and the ability to joke about my PCa.

Glad to be here and BE WELL you-all.

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6357axbz profile image
6357axbz

R u metastatic?

addicted2cycling profile image
addicted2cycling in reply to 6357axbz

Hello. Not at this moment as far as I know but have PSA test every 3 months (next in a few weeks) to track trend.

Tall_Allen profile image
Tall_Allen

Why did you have orchiectomy and testosterone? The testosterone undoes the effect of the orchiectomy. Is this BAT (alternating T on and off)? What PSA signals a recurrence for you?

addicted2cycling profile image
addicted2cycling in reply to Tall_Allen

My urologist wanted me to begin with ADT. My research revealed the possible side effects and since I'm not particularly fond of drugs I felt castration had fewer side effects and was immediately effective. After the surgery I saw him for the check-up and then left him. My actual treating doctor said he would get me on T injections after completion of cryo since I am very active and then we would simply monitor. I am not on "alternating on/off" just biweekly. More of a doubling time rather than a set given number that is of concern.

addicted2cycling profile image
addicted2cycling

My Gleason 10 Unique Eunuch approach with Cryo plus immuno injection plus TRT is a "ONE OFF" experiment that could prove successful --- or not. Completely aware of the "What if" scenario and have no issue with it. In the mean time I'm giving life all I have and right now preparing my bike/food for a 12:01AM departure to start my Midnight Madness 100+ mile ride.

Wassersug profile image
Wassersug

Dear "addict",

I am impressed with your athleticism.

I do have question though about one thing you wrote. You say that you "felt that [surgical] castration had fewer side effects" than pharmaceutical androgen suppression. Could you let us know what side effects you thought were less with the orchiectomy and the references you have for that led you to that belief.

Thank you!

Richard Wassersug

LIFEonADT.com

addicted2cycling profile image
addicted2cycling in reply to Wassersug

Hope my simple rationalization makes sense -----

Castration = A soundproof house with windows. Able to look out the windows to see weather conditions, i.e. -side effects. Know present conditions and can see changes as they occur. No drug induced negative mental reaction.

ADT = A soundproof house without windows. Anything can be happening from a sunny day to full blown hurricane. Drugs add a different level of mental side effects due to individualized reactions, with some having a clear understanding of what is and will be happening but others becoming confused due to the drug's chemical reaction on one's mental thought process. Some enter a very dark place that then require other drugs to escape from that place.

If the above is confusing I apologize.

Currumpaw profile image
Currumpaw in reply to addicted2cycling

Hey addicted2cycling!

Well said! Thank you for accepting my invitation to come on HealthUnlocked and relating your very unique story!

I am still in as much awe of your decisions for your treatment and as I was initially. I am also inspired by your courage in what almost all would consider a rash decision, the orchiectomy, your tenacity and the "Joi de vivir!" you have that many wouldn't find after diagnosis with a Gleason 10. The athletics? How many "healthy men" half your age could do that which you do?

Would you be comfortable posting details about your cryo? Some of the men on HealthUnlocked mentioned your uro--- mentioned him, but had little knowledge of him.

It was you that first informed me that there were alternative antibiotics other than the fluoroquinolones to prevent sepsis. I wish we had begun communicating earlier. The damage done to me by the repeated use of Cipro and Levaquin appears to be permanent according to testing.

Thank you my friend!

Currumpaw

Jimhoy profile image
Jimhoy in reply to addicted2cycling

To the later (ADT), and in one word...... Bing-fucking-O!!!!!

Jc

Jimhoy profile image
Jimhoy in reply to addicted2cycling

Old age is the natural side effects of low T. If we naturally loose our T with age, then we loose muscles, energy, get hot flashes, etc...... welcome to andropause!!! These are the ones our Dr’s / professionals tell us about.

With the introduction of leuprolide into your body, you will now be subjected to the natural effects of low T, AND to and any of the drug’s particular chemical’s side effects!!!

These “unpublished” lists of side effects should not be part of those listed as a result of the drugs intended use.

*You don’t feel less Cholesterol from Cholesterol lowering meds, but you feel the meds, and you have less Cholesterol at the end of the day!!

*You don’t feel your “silent killer” at all and all of a sudden you’re 120/60, but you’ll feel the side effects of the drug doing it!!!

I get a kick out of the big pharm commercials that state “do not take bla bla if you are allergic to the ingredients in bla bla”!!!! No shit!!!

Maybe because of their lack of interest in rocking the SoC boat, there are no / very limited clinical studies into “leuprolide side effects” warnings other than those complained of for the intended result of their use (i.e. andropause)!

I’m finding complaints of these are not as rare as first thought!!!!

This is the problem!!!

This needs to change!!!

And all this coming from a Eligard induced moron!!!!

Jc

addicted2cycling profile image
addicted2cycling in reply to Jimhoy

What you have experienced regarding the "unpublished side effects" is what numerous men I have communicated with also conveyed to me as happening after beginning their ADT. The "nobody told me about this" seems to be all too common.

Jimhoy profile image
Jimhoy in reply to addicted2cycling

I reposted my comments tonGeorgesCalves and Wassersug only not out of malice but because my comments were more-so addressing their comments and I am not sure who gets notified about what!!

I look forward to their comments! My feelings are (obviously) very strong about this subject!!

Jc

Wassersug profile image
Wassersug in reply to addicted2cycling

Dear "Addicted",

You say that "nobody told me about this [i.e., the side effects of androgen deprivation] ahead of surgery", did you not have a discussion about informed consent with your surgeon before your surgery? If not,have you had one since?

Richard W.

LIFEonADT.com

Wassersug profile image
Wassersug in reply to Jimhoy

Dear Jimhoy,

If "old age is the natural side effects of low T" then how do you explain the fact that women (and also castrated men in history based on one study of Korean eunuchs) live longer than men?

Also, I do not believe that the side effects of the LHRH drugs are "unpublished". They are covered , for example (along as evidence-based strategies for managing the side effects), in detail in the ADT book.

But what side effects do you believe are unpublished? That's important questions as you may have discovered ones that are in fact unknown and under-investigated by researchers, who study the impact of ADT on patient quality of life.

Richard W.

addicted2cycling profile image
addicted2cycling in reply to Wassersug

Reading "published reports and studies" first requires the individual who has just had his life turned "upside down" and who might be in total disbelief/denial of his diagnosis to put that emotional devastation on a simmer and then clearly proceed to locate the pertinent information. Maybe for Mr. Spock being a Vulcan it would be logical and easy but likely hard for a devastated human. Thinking that the attending physician should reveal the positives along with the consequences of medication and modality chosen.

Wassersug profile image
Wassersug in reply to addicted2cycling

Dear "addicted",

I completely agree with you about how a diagnosis of PCa can leave a "life turned "upside down". I've been there myself.

I am though concerned about an issue that you indirectly seem to have raised. It is about the medical ethics of a surgeon doing an orchiectomy without advising a patient about the psychological effects of testosterone suppression. Were you not told that there are little or no differences in the psychological impacts from castration, whether achieved chemically or surgically?

Interestedly there is one paper that suggests that anxiety can be slightly lower with the orchiectomy than with the drugs since one is less likely to get anxious worrying about whether the ADT drugs are working and what the next PSA test might show. But that study was not specific to advanced (Gleason 8-10) patients.

Note: I've published a fair bit on voluntary surgical castration so this is a genuine academic interest of mine. As such, I am not at all opposed to your choice of the orchiectomy, particularly if it makes cycling easier for you, which I gather it does. Also it makes good economic sense given that with a Gleason of 10 you are likely to be on sustained androgen suppression (unless you go on supplemental T and some BAT protocol).

I would like to hear from others on what they feel a surgeons should tell patients about the side effects of surgical castration. I would seem to me problematic for a surgeon not to discuss the psychological side effects with a patient, to make sure that the patient's decision for treatment is an "informed" decision.

Also, folks are always to email me directly if they have opinions on this topic but don't want to get caught up in protracted open discussion.

Thanks.

Richard W.

addicted2cycling profile image
addicted2cycling in reply to Wassersug

My urologist was informative about ADT and did begin to "fill me in" when I ABRUPTLY STOPPED HIM and said I want castration. He was indeed set back a bit but felt more comfortable about my request as I informed him that I did my due diligence and understood the results.

My reference to being under informed was regarding men I have communicated with. They put their life and trust in their Dr. and now feel let down.

BTW, the Orchie recovery was a breeze, bicycled 50 miles within a week, it also lightened my load making hill climbing easier ;0) but hasn't helped with singing.

Jimhoy profile image
Jimhoy in reply to Wassersug

Old age is not necessarily living. Records of age do not attest to QoL which we are kind of talking about.

Being prop’ed up in the corner of a home is alive but not living!!

Maybe “not youthful” is a better description? I believe you know what I meant with “typical” old age!!! Or...... Maybe its the rice?!!!

Because it is in “your” book does not mean that it is published / shared / used by care givers!! We have had the discussion as to how we can correct this!!!

I have your book and am working my way through it. Not because of its quality but because of my recently developed shortcomings from my Eligard experience!! Reading at an adult level is very difficult now!! Now that is real to me and was never mentioned!!!

First duckduckgo search

emedicinehealth.com/drug-le...

Nothing about mental effects (headaches(?)!

Nothing about brain fog (very common)

Nothing about cognitive / executive decline.

Many items other than “mind” but nuf-said!

As with George, this is my opinion! I may weigh a lot more into it because I live it!!

Jc

Wassersug profile image
Wassersug in reply to Jimhoy

Jimhoy,

I am truly sorry that you are having such a hard time with ADT.

Perhaps you can help other patients, but letting your MDs know what resources you have found that do help education patients.

My colleagues and I have a paper submitted for publication right now that shows that the side effect burden from ADT can be significantly reduced if we can educate patients AHEAD OF TIME about how to manage those side effect. And I share with you the frustration of getting that message to other patients BEFORE they get hit with ADT side effects.

Happy to get your ideas and those of others about how to get the information to patients when it can be most effective.

Richard W.

LIFEonADT.com

Jimhoy profile image
Jimhoy in reply to Wassersug

I don’t know if there is complaint department at the FDA but it has to start there!! But I guess that would require clinical studies!!

Big Pharm is not going to list anything that could be detrimental to sales on their bottles. Especially on the slim chance someone is going to react as I did!!

I don’t know where my Dr got his numbers last week (maybe pulled them out of his ass just to appease me) but he said severe reactions appear in about 5% of the ADT patients!!

Maybe not enough to care about?!!!! I’ve asked my Dr’s point blank and they don’t say it but ...... body language!!!

Jc

GeorgesCalvez profile image
GeorgesCalvez

Reactions to leuprolide, Lupron and Eligard, which is a GnRH agonist, and degarelix, Firmagon, a GnRH antagonist, do vary from the mild to the very severe.

Loss of testosterone whether by blocking the signal that results in the production of testosterone or by removing the testicles may result in the same side effects.

Side effects do vary from man to man but typically will include sweating, hot flashes, etc in the short term, bone loss, etc is a long term affect.

Younger men tend to opt for the chemical route if they are likely to be cured as stopping the stuff in the short term, six to eighteen months, has a good chance of recovering some testosterone with the beneficial effects that has on bone density and cardiovascular health.

I would say that six months results in almost 100% recovery and eighteen months results in around half of the men unable to recover from subcastrate levels of testosterone.

Long term use two to three years or longer results in effectively the same result as surgical castration without having to take the drugs as either the pituitary ceases to signal to the testes to make testosterone or the testicular tissue becomes degraded to the point that it no longer obeys the signal.

If a man has PCa that is likely to require lifetime ADT then I can see the benefit of orchiectomy, if it looks like remission is possible then drugs that switch off the production of testosterone is the way to go as it means that there is the possibility of stopping the drugs and regaining some testosterone with its health benefits in the future.

Obviously this is my personal view, like with a lot of things in medicine you can argue the toss until the cows come home.

Jimhoy profile image
Jimhoy in reply to GeorgesCalvez

Old age is the natural side effects of low T. If we naturally loose our T with age, then we loose muscles, energy, get hot flashes, etc...... welcome to andropause!!! These are the ones our Dr’s / professionals tell us about.

With the introduction of leuprolide into your body, you will now be subjected to the natural effects of low T, AND to and any of the drug’s particular chemical’s side effects!!!

These “unpublished” lists of side effects should not be part of those listed as a result of the drugs intended use.

*You don’t feel less Cholesterol from Cholesterol lowering meds, but you feel the meds, and you have less Cholesterol at the end of the day!!

*You don’t feel your “silent killer” at all and all of a sudden you’re 120/60, but you’ll feel the side effects of the drug doing it!!!

I get a kick out of the big pharm commercials that state “do not take bla bla if you are allergic to the ingredients in bla bla”!!!! No shit!!!

Maybe because of their lack of interest in rocking the SoC boat, there are no / very limited clinical studies into “leuprolide side effects” warnings other than those complained of for the intended result of their use (i.e. andropause)!

I’m finding complaints of these are not as rare as first thought!!!!

This is the problem!!!

This needs to change!!!

And all this coming from a Eligard induced moron!!!!

Jc

Wassersug profile image
Wassersug

Addicted2cycling,

Thank you for your reply.

Based on the literature that I've read, GeorgesCalvez's understanding of androgen suppression, which is different form yours, is correct. I known of no data, of example, to show that being "confused due to a [LHRH agonists and antagonist] drug's chemical reaction on one's mental thought process" (as you state) is due to anything other than gonadal hormone suppression itself; i.e., low testosterone and low estradiol.

As such, you can expect the same mental side effects from the orchiectomy as you would get from drugs like Lupron and Degarelix. Only one paper reviewed on the LIFEonADT.com website mentions any difference in LHRH versus orchiectomy side effects...and it is not about mental functioning.

Addicted2cycling, I think you make a better case of the orchiectomy over the drugs in that it may make extended bike riding more comfortable. [Does anyone know if Lance Armstrong viewed his treatments for testicular cancer as giving him an advantage in terms of tolerating a bicycle seat?]

Going for a gonadectomy may also be cheaper in the long run they using drugs the LHRH drugs.

Richard W.

Jimhoy profile image
Jimhoy in reply to Wassersug

Old age is the natural side effects of low T. If we naturally loose our T with age, then we loose muscles, energy, get hot flashes, etc...... welcome to andropause!!! These are the ones our Dr’s / professionals tell us about.

With the introduction of leuprolide into your body, you will now be subjected to the natural effects of low T, AND to and any of the drug’s particular chemical’s side effects!!!

These “unpublished” lists of side effects should not be part of those listed as a result of the drugs intended use.

*You don’t feel less Cholesterol from Cholesterol lowering meds, but you feel the meds, and you have less Cholesterol at the end of the day!!

*You don’t feel your “silent killer” at all and all of a sudden you’re 120/60, but you’ll feel the side effects of the drug doing it!!!

I get a kick out of the big pharm commercials that state “do not take bla bla if you are allergic to the ingredients in bla bla”!!!! No shit!!!

Maybe because of their lack of interest in rocking the SoC boat, there are no / very limited clinical studies into “leuprolide side effects” warnings other than those complained of for the intended result of their use (i.e. andropause)!

I’m finding complaints of these are not as rare as first thought!!!!

This is the problem!!!

This needs to change!!!

And all this coming from a Eligard induced moron!!!!

Jc

j-o-h-n profile image
j-o-h-n

to addicted2cycling....I'm addicted2recycling.....jokes.......

A compost heap walks into a McDonald's. The cashier takes his order and asks, "Do you want flies with that?"

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 11/19/2019 8:29 PM EST

addicted2cycling profile image
addicted2cycling in reply to j-o-h-n

I'm in recovery room after my orchiectomy and coming out of the general anesthesia when nurse asks "How do you feel?" In my best Soprano voice I responded, "Fine thank you." She laughed.

Pathologist's report on my testicles had a side note...... "Finally proof that 10 pounds of balls can fit in a 5 pound sack!"

j-o-h-n profile image
j-o-h-n in reply to addicted2cycling

Love that humor.... thanks.............

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 11/19/2019 9:08 PM EST

daguro profile image
daguro

Hi Addicted,

I wanted to follow up with you and see if you had anything to add to the discussion about orchiectomy.

Did you/your doctor consider using a testosterone cream rather than injections?

Have you had a test for testosterone lately? PSA?

Thanks,

daguro

addicted2cycling profile image
addicted2cycling in reply to daguro

daguro, my doctor never mentioned the alternatives but I did research the methods and felt injections were fine. Each has its own quirks regarding uptake, highs/lows between applications, issues with other people coming in contact. Last T injection 2 weeks ago tomorrow so due for another. Blood work was Tuesday with T @ 840 and PSA = .93 Recent Axumin Scan in February showed nothing. Did a 145 mile bicycle ride last Wednesday and 114 mile ride today.

daguro profile image
daguro in reply to addicted2cycling

Thanks for getting back to me addicted. I ask because I did Lupron for 18 months after EBRT and I found the side effects sucked. Beside the hot flashes, I experienced a loss of mental acuity, strength reduction and a loss of ambition. I mostly wanted to just sit around. I'm getting my PSA checked soon and if it is anything other than zero, I am looking for alternatives to Lupron.

Thanks again,

daguro

addicted2cycling profile image
addicted2cycling in reply to daguro

Having read about ADT side effects I chose orchiectomy because it was simple, quick and immediate. My sweats/flashes were bad at first and reduced with time. Loss of strength and endurance was and still is MY biggest issue but NEVER did I suffer with your "...I experienced a loss of mental acuity ............ a loss of ambition. I mostly wanted to just sit around... " My long distance riding continued as did my walking the 5K to marathon events ---- just SLOWER. Surgery for myself was "logical."

GOOD LUCK!!!

rmarkley profile image
rmarkley in reply to addicted2cycling

Hello addicted2cycling,

The following is a moderately long ramble, but I am seeking some feedback.

I am currently 81. I restarted cycling in 2012 on an old mountain bike, and quickly purchase a Specialized Roubaix. I rode a number of centuries and metric centuries here in Maine, as I gradually got into biking condition. Previous to that I was a mountain climber and rock climber. My PCa was first diagnosed in 2013. My URO said go figure out what you want to do, giving me the obvious choices of surgery and radiation. I was G3+4 with only a bit of 4. I discovered Dr. Walser and FLA. Sent him an MRI, and he said come on down. Prior to first FLA, PSA was 4.9. FLA was performed 1/26/2015. Post FLA by 11/4/2015, PSA was1.8, and that was nadir. PSA wandered up, and by 10/7/2019 was 16. Another FLA on10/7/2019. PSA wandered up, on an MRI by Dr. Joseph Busch in Chattanooga, TN, he thought he saw very small bone mets in the left hip. Went to a local MO at the local Harold Alfond Cancer Center, who consult with Boston's Dana-Farber Cancer Institute.

On 6/24/2020, I had an Axumin PET/CT scan, and 6/26/2020 a whole body bone scan. The small hip mets were still there. On 7/14/2020, I started Firmagon which continues every 28 days. On8/11/2020 I was started on abiraterone 250 mg with breakfast, and 5 mg prednisone with breakfast. Had 20 days of radiation starting 9/16/2020, with the help of a SpaceOAR. Flunked a Dexa scan, so am on Xgeva every 12 weeks. Only very modest and occasional hot flashes. Not so bad in Winter but could be a bit more annoying in the Summer

I train on Zwift in the Winter, and find I have lost about 3 mph. Note that the earlier rides here in Maine were on quite hilly terrain. A metric century might have 3000 to 4000 ft. altitude gain. The century is the Lighthouse ride along the coast, so only moderate altitude gain.

The loss of strength without T is a nuisance. My T =7.

I just had my shots, so when I feel a bit more rugged in a day or so, I am going to go out on a local railtrail on my hybrid-a Specialized Crosstrail.

Riding in Florida, as I recall from some Road Scholar trips is mostly flat. Nothing flat in Maine except MUPs.

To allow me to calibrate myself, what is your T and if you don't mind, your age.

I have already signed up for the early Sept Lighthouse Metric century, so I have to get out and about.

addicted2cycling profile image
addicted2cycling in reply to rmarkley

One of the very few QUOTES I mention is from Dr. George Sheehan >>>

​“We are each an experiment of one.

A unique, never-to-be repeated event.”

georgesheehan.com/bio

rmarkley wrote >>> " ... To allow me to calibrate myself, what is your T and if you don't mind, your age... "

I am a soon to be 71yo UNIQUE Eunuch GL10 PCa oddball. I never tried to "calibrate myself" by comparison to others but instead chose to simply try to achieve something that appeared to be out of reach unless I made that painful effort of stretching 1 extra inch. Your accomplishments are awesome to me and to be continuing with a T = 7 is remarkable. Simply looking within and using my years of riding along with accepting my physical limitations has proven to be rewarding even when not completing the desired goal.

Not sure that I could accomplish what you are doing now IF I MAKE IT another 10 years but I am committed to keep on KEEPING ON to the best of my abilities.

BIKE ON 👍👍

rmarkley profile image
rmarkley in reply to addicted2cycling

I will admit that I changed the chain rings on the Roubaix from 50 x 34 to 46 x 30, and cassette is now 11 x 36 instead of 11 x 32. Much easier to get up hills

addicted2cycling profile image
addicted2cycling in reply to rmarkley

NICE MOVE on the front and just think that with the back you can be climbing tall buildings with a few crank rotations. 😀 (misread at first so corrected)

rmarkley profile image
rmarkley

I have a nutrition question. Naked I weigh about 135 lb. On rides longer than 30 miles, I take a cliff Bar. On rides longer than 60, most are events that provide check stops with food and drink, so I only carry a couple of emergency Cliff Bars. For liquid, I drink Nuun Sport. Always carry a couple of water bottles. On longer rides I will have a breakfast of oatmeal, with a bit of brown sugar, a tablespoon of peanut butter, a few slivered almonds, 1/4 cup raisins, add boiling water and stir. That will last me to the first checkpoint, usually 15-20 miles into the ride. Continue with checkpoints until end of ride, and then event usually provides pizza and beer, lobsters and corn on cob, or a lobster roll.On your unsupported longer rides how do you manage nutrition? For breakfast, on the ride, and after the ride. I hope that some of your longer rides are supported, or you might need to carry a bit of food. If that's the case, what do you carry, and what do you drink?

addicted2cycling profile image
addicted2cycling in reply to rmarkley

The longer organized event rides of 100-300 miles that I've done always had SAG stops so never an issue with fuel/liquid on those. My 100+ milers when I ride an out and back include convenience stores for anything extra needed and my local 100+ always have me close enough to stop back home. Breakfast could be just a banana w/almond butter or oatmeal w/cinnamon and some raisins and pop a gel as I leave. Water in both bottles or might have BUD ZERO in one. Bring 1 banana, M&M's, gels, mandarin, dates, a soft Tortilla almond butter w/strawberry preserves sandwich folded flat wrapped in aluminum foil. After shower when home it's eat whatever.

rmarkley profile image
rmarkley

Ok, thanks. Pretty close to what I do. I won't change anything.

rmarkley profile image
rmarkley

We were in Florida on Feb and March 2013 on Road Scholar trips to South Florida Islands in the Gulf and Everglades and Big Cypress. 25 to 35 mile per day, lunch stops at restaurants, not very stressful. When we finished that we went to visit friends in the northern part and rode the Withlacoochee Trail. Only hill going south was an interstate crossing. I rode my age that day plus a few miles, but not stressful.

I compared my ride time and speed on last fall 's Lighthouse experience metric century to one I did 2 years previous. Both distances were 63.56 mi. On the first one, I had a moving time of 4:57, an elapsed time of 6:06 and an average moving speed of 12.8mph On last years after starting ADT, my moving time was 5:55, the elapsed time was 6:06, and the average moving speed was 10.8mph. An hour longer and 2mph slower. Going to need to train a bit to reduce that gap.

I hope I can maintain the 10-11mph moving speed this year. If so next Sept lighthouse ride will be no big deal.

On your 100 mile rides, what is your average speed, or perhaps more interesting, completion time?

Regards,

Reed

addicted2cycling profile image
addicted2cycling in reply to rmarkley

👍👍 Sounds like you are doing great and HAVING FUN

I'm still trying to average at least 15mph solo. Goal is to ride 50 mile no-touch (non-stop) segments in 3 hours. BC - (Before Cancer) - I would summer time ride a 12:01AM Midnight Madness Solo 100 mile - no touch - non stop in 6hrs then stop back at home for shower, eat breakfast, kit up and meet the group of guys for 40/60 more miles.

rmarkley profile image
rmarkley

I am not sure I could ever ride 50 miles at 15 mph, let alone nonstop. Even if my legs would let me do it, my butt would not. Even with my fancy Selle SMP seat, the best I can do is 12-15 miles. so that's a couple or three legs down in 50 miles. How does your butt manage? What seat do you use? Recognizing that seats are very individual, and what works for one rider might kill another rider.

addicted2cycling profile image
addicted2cycling in reply to rmarkley

A good pair of cycling shorts, Chamois Butt'r, standing and pedaling frequently, varying hand positions on the bars AND decades of bicycling 😀 all add up to more comfortable riding. Seat on my Giant is ISM PR3.0 60mm and the Roubaix is an OLD CHEAPO Bike Nashbar. Age and PCa are combining to make cycling less enjoyable so I need to push through the anguish to have SOME FUN.

p.s. -- still hurting from an ENDO on Thursday's ride but got out for a ride to Walmart earlier and now going to CVS. Simply put >>> idle time = rusting of the body

treedown profile image
treedown in reply to addicted2cycling

How did you endo in flatsville? Not another wild animal I hope.

addicted2cycling profile image
addicted2cycling in reply to treedown

LMAO Took the Propel OFF ROAD (DUMB IDEA) in Rotonda West and zigged right instead of staying straight, had the front wheel sink into a commercial (tractor) mower's wheel rut that resulted in the launch over the bars. As I was being elevated I looked down to see the wheel placement (not straight but pointing left) and kind of figured it was going to be a landing on my right side. THANKFULLY the landing was on soft ground/tall grass so when my newly installed right shoulder(August 2016) dug in it did not get messed up BUT I managed to stress the pectoralis major and minor muscles. Hurting more 2 days later than last April's Miss Piggy's run into me cracked scapula, cracked ribs, punctured lung and left shoulder impact.

I'm an equal opportunity crash damager with last year's left side and now the right side and in 2011 it was a FLAT ON THE BACK landing for the tiny broken neck and clavicle + nerve damage. No face plant on the bicycle but did do that on my Honda CB350 motorcycle in 1972.

treedown profile image
treedown in reply to addicted2cycling

You have your share and mine of mishaps so thanks for that 😀. Glad your mostly OK! Maybe some tuck and roll practise is in order for future rides. Just kidding with the miles your doing per capita your chances are greater than mine. I did a nice gravel ride Wed and a mtn bike ride Thur and was pretty wiped so took a couple lazy spills but ended up unscathed. That is accept for the swollen face from what I suspect were fly or spider bites. Didn't notice them until I had finished my shower. I forgot the risks that come with warmer weather.

rmarkley profile image
rmarkley

That's one of the things about biking that concerns me. I flunked a Dexa scan. I am on lots of calcium and Vit d, as well as denosumab (Xgeva) every 12 weeks. I would hate to fall and break something. In the past, I have had some pretty good tumbles, but only achieved road rash and bruises. I will cycle regardless, however. Too much fun.The owner of a local bike shop told me that, at my age, (81) I should definitely not take up mountain biking. You will fall, and you will break something.

treedown profile image
treedown in reply to rmarkley

At 81 your quite a bit older than I am, I hope I am riding (and alive) at that age. I have been a mtn biker since by early twenties and started road and gravel about 15 years ago. Not sure where you live but I started mtn biking in the Midwest and found a completely different type of mtn biking when I came west. We have green to double black trails here but I tend to do the same blue routes I have done for the last 15 years. I have muscle memory of these trails I know them so well. I do think about my bones but I also read mtn biking is better than road for bone health. I do more road and gravel now but often hit mph in the high 30s on downhills so if I go down at that speed I am sure to do some damage (knocked on wood). Are you riding gravel and back roads now? That would be a good start before hitting single track.

addicted2cycling profile image
addicted2cycling in reply to treedown

Just put a pair of Panaracer Gravelking SK 700x32 on the Roubaix. Gonna try Rotonda West again.

treedown profile image
treedown in reply to addicted2cycling

Thats getting back on the horse. 32 is still on the narrow side what did you have before? I am currently on 700x44 and though a bit heavy at 40psi they are very comfortable and handle gravel and dirt very well. They also stick like glue to the pavement on fast curving descents despite the chip seal.

addicted2cycling profile image
addicted2cycling in reply to treedown

Standard 28's since new because it was simply road riding and might be able to fit 35's but don't want to order yet. Already texted with Ghost Rider about riding Myakka Forest area next week with him before he heads back north. Could eventually wind up adding another "horse in the barn" if my body handles the impacts.

addicted2cycling profile image
addicted2cycling in reply to rmarkley

Ever see the MotoGP Inflation Crash Suits >>>

youtube.com/watch?v=9mWet5G...

Thinking maybe it's for me.

BTW -- Thought D3/K2 sublingually is supposed to be best for absorption.

rmarkley profile image
rmarkley in reply to addicted2cycling

That may be true. However, I am on coumadin (warfarin) and metoprolol for lone atrial fibrillation. If my INR gets too high, I am given Vit K IV to bring it down. I suspect this is why my MO has not suggested this approach.

treedown profile image
treedown in reply to addicted2cycling

Thats a quite impressive suit. Might be a bit hot for biking though.

addicted2cycling profile image
addicted2cycling in reply to treedown

Probably not too bad when you have SNOW on the ground.

rmarkley profile image
rmarkley

I have a Specialized carbon 2012 Roubaix that I use for road riding. Note that I live in Winthrop, Maine. The only flat spots are at the top of hills or at the bottom of hills where the gradient changes direction. My other bike is a Specialized Crosstrail for MUP riding-rail trails, etc. There is some good mountain bike riding up near Carabassett, Maine, which I don't do, and some old railroad beds, which I do ride. I have a bunch of trail books, which I am going to use.

treedown profile image
treedown in reply to rmarkley

I bet its beautiful. I am in PNW. Nothing flat here when compared to FL but I can get in 50 with only 1600 ft of elevation or head to the foothills and get in much more which I will do once the snow is gone and temps are higher at least high 60s is preferred.

addicted2cycling profile image
addicted2cycling in reply to treedown

THANKFULLY SW FL is FLAT so there's not a bunch of coasting down hills but we do have winds, been 15mph to 25mph last few days. Hopefully 7 weeks from TODAY the winds will be down and if I don't crash or die before then I can get my 71st Birthday Ride in. Have to add 2 more miles to last year's total >>>

strava.com/activities/37414...

treedown profile image
treedown in reply to addicted2cycling

Thats some strong wind, I have ridden recently in 15 mph winds and got pushed around quite a bit. 25 is time to stay home. 10 is pretty normal these days. I look forward to that bday ride post on Strava but I am sure to forget 7 weeks from now. Are you off the bike awhile due to endo or did you brush that off?

addicted2cycling profile image
addicted2cycling in reply to treedown

Walmart grocery ride today and was going to ride to CVS but a no-go had a bit too much pain. Next Wednesday is Full MOON 100 miler.

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